Upcoming Events
Mental Health Mondays in the B-Hub
Join us every week for our ongoing series, featuring practical tools and calming moments designed to help you take care of your mind, body, and soul.
Whether you’re looking for motivation, stress relief, or simply a safe space to breathe and reset, our weekly sessions will help you begin your week on the right note, with compassion, clarity, and community. Join live or watch on replay exclusively in the B Education Hub, and connect with others who truly understand.
Join us every Monday from 1 to 2 PM Eastern
Gene Therapy Rap Sessions
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming
2025 Dates
7/2/2025
7/15/2025
8/5/2025
8/26/2025
9/30/2025
10/16/2025
10/27/2025
11/13/2025
11/24/2025
12/9/2025
Women’s Georgia Retreat
The Hemophilia B Women’s Education & Empowerment Program is an outstanding success for women with hemophilia B, mothers of children with hemophilia, and spouses! This is a unique three-day experience, during which women are given a safe space to share their journey with others and gain support.
Strength in Connection: For those 50 and over
Improve Your Overall Postural Awareness!
For those 50 and over. You deserve support. Let’s thrive—together.
The Beats
🎶 Calling all musicians ages 13+ for an incredible experience with the Beats in Nashville, TN, this summer! All skill levels are welcome to apply! *Ages 13-14 need to be accompanied by at least one parent.
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
Meetings on the Road - Charlotte, NC
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Meetings on the Road - Milwaukee, WI
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Meetings on the Road - San Diego, CA
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Men's Georgia Retreat
The Hemophilia B Men’s Education & Empowerment Program is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support.
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
Meetings on the Road - Minneapolis, MN
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Meetings on the Road - Portland, ME
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Meetings on the Road - Phoenix, AZ
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Meetings on the Road - Pittsburgh, PA
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Survive and Thrive: Mental Health and Wellness
A 90-min live Zoom event, sponsored by Sanofi
Living with hemophilia B can be overwhelming—physically, emotionally, and mentally. You are not alone.
B-Leaders Teen Virtual Event
The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event.
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
B-Leaders Teen Virtual Event
The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event.
Strength in Connection: For those 50 and over
Movement Snacks: Small Bites That Make a Big Difference
Advocacy in Action
Join Lee Hall, Kim Phelan, Jim Romano, Patrick Collins, and special guests for an informal and interactive gathering to get the latest updates on Medicare, Medicaid, SNAP, and the ACA, and what we can do next.
Foro Latino De Hemofilia B
Foro Latino de Hemofilia B: Encontrar atención, sentirse conectado
Survive and Thrive: Mental Health and Wellness
Living with hemophilia B can be overwhelming—physically, emotionally, and mentally. You are not alone.
Men's Tulsa Retreat
The Hemophilia B Men’s Education & Empowerment Program is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support.
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
Family Meetings on the Road - San Antonio, TX
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Mental Health Action Day
Mental Health Action Day Workshop: Finding Balance in Stressful Times
Parenting Support: Newborn to Empty Nest
Understanding the Phases of Childhood, One Milestone at a Time
Family Meetings on the Road - St. Louis, MO
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
B-Leaders Teen Virtual Event
The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Annual Symposium 2025
Join us at the 2025 Symposium!
Get ready for a magical experience in Orlando, Florida, from April 10-13 as we celebrate 35 years of dedication to the Hemophilia B community. This milestone is for the incredible individuals like you who make it all possible!
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Ready for Anything: Emergency Preparedness
February 18 & March 18
SAFEGUARDING OUR HEALTH IN TIMES OF UNCERTAINTY
Featuring Expert Speaker Dr. Bill Patsakos
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Advancing Inhibitor Care
Say hello to a new prophylaxis option for adults and adolescents who have hemophilia with inhibitors!
Foro Latino De Hemofilia B
Expert Speaker: Carolina Castillo, LPC, LMHC, BC-CMHC
Being a Latino(a) parent in the USA: conflicts, beliefs, traditions, fears, family dynamics
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Ready for Anything: Emergency Preparedness
February 18 & March 18
SAFEGUARDING OUR HEALTH IN TIMES OF UNCERTAINTY
Featuring Expert Speaker Dr. Bill Patsakos
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Family Meetings on the Road - Richmond, VA
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
B-Leaders Teen Virtual Event
The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event.
Family Meetings on the Road -Birmingham, AL
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Considerations in Gene Therapy
This virtual session will feature information about the first step in the gene therapy patient journey as well as a question and answer segment with a gene therapy patient and a social worker.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.