Upcoming Events
The Beats
The Coalition for Hemophilia B Presents The 8th Annual BEATS Music Program
Where music meets healing. Where community meets possibility.
Innovation Lab: Extended Half-Life Therapies
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Innovation Lab: Understanding Inhibitor Treatment
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Hear directly from someone who has received gene therapy and learn more!
Hear directly from someone who has received gene therapy and learn more!
Innovation Lab: Rebalancing Agents
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Innovation Lab: A Closer Look at HYMPAVZI®
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Caregivers Thread: August Rap Session
Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand.
Innovation Lab: Gene Therapy
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Innovation Lab: Future Treatment Innovations
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Innovation Lab: Treatment Considerations for Women
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Support Network: Living B Men's Collective
Introducing Living B: The Men’s Collective, a space built for men living with hemophilia B and dads raising the next generation.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Voices of Her Bloodline
For women living with hemophilia and those still on the journey to diagnosis.
Meetings on the Road - Albuquerque, NM
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Caregiver Thread: September Rap Session
Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand.
Women’s Retreat
The Hemophilia B Women’s Education & Empowerment Program is an outstanding success for women with hemophilia B, mothers of children with hemophilia, and spouses! This is a unique three-day experience, during which women are given a safe space to share their journey with others and gain support.
Strength in Connection: For those 50 and over
For those 50 and over. You deserve support. Let’s thrive—together.
Support Network: Foro Latino de Hemofilia B
Esta serie está diseñada para la comunidad latina de hemofilia B, proporcionando un espacio dedicado a conectar, aprender y discutir temas clave que más te importan.
Meetings on the Road - Salt Lake City, UT
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Support Network: Living B Men's Collective
Introducing Living B: The Men’s Collective, a space built for men living with hemophilia B and dads raising the next generation.
Voices of Her Bloodline
For women living with hemophilia and those still on the journey to diagnosis.
Meetings on the Road - Portland, OR
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Eternal Spirit Awards Gala
We are excited to hold our 2026 Eternal Spirit Award Gala on October 14th, 2026 in New York, New York.
Support Network: Foro Latino de Hemofilia B
Esta serie está diseñada para la comunidad latina de hemofilia B, proporcionando un espacio dedicado a conectar, aprender y discutir temas clave que más te importan.
Men's Retreat
The Hemophilia B Men’s Education & Empowerment Program is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support.
Support Network: Living B Men's Collective
Introducing Living B: The Men’s Collective, a space built for men living with hemophilia B and dads raising the next generation.
Meetings on the Road - Rodondo Beach, CA
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Caregiver Thread - November Rap Session
Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand.
Voices of Her Bloodline
For women living with hemophilia and those still on the journey to diagnosis.
Gingerbread House Decorating + Trivia Night
Join us as our community gathers to decorate gingerbread houses, share laughs, and enjoy a few fun games together.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Support Network: Foro Latino de Hemofilia B
Esta serie está diseñada para la comunidad latina de hemofilia B, proporcionando un espacio dedicado a conectar, aprender y discutir temas clave que más te importan.
Voices of Her Bloodline
For women living with hemophilia and those still on the journey to diagnosis.
Innovation Lab: The History of Hemophilia B Treatment
The pace of innovation in hemophilia B has never been greater. From extended half-life therapies and rebalancing agents to gene therapy and emerging treatments still on the horizon, individuals and families are navigating more options than ever before.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Support Network: Living B Men's Collective
Introducing Living B: The Men’s Collective, a space built for men living with hemophilia B and dads raising the next generation.
Recharge and Integrate: Sound Bath with Intention Setting
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Deep Rest Sound Bath: Let Your Body Exhale
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Caregivers Thread: June Rap Session
Whether you’re a parent, partner, or family member, this is a place to connect, share, and feel supported by others who truly understand.
Kansas City, MO
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Strength in Connection: For those 50 and over
For those 50 and over. You deserve support. Let’s thrive—together.
Reframe & Reset: Journaling for Confidence and Next Steps
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Meetings on the Road - Baltimore, MD
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Clear the Noise: Guided Journaling for Stress & Clarity
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Support Network: Foro Latino de Hemofilia B
Esta serie está diseñada para la comunidad latina de hemofilia B, proporcionando un espacio dedicado a conectar, aprender y discutir temas clave que más te importan.
Mindful Minutes: Healthy Habits for Busy Minds (and Better Sleep)
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Downshift Yoga: Release Tension & Reset Your Nervous System
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Adulting Unlocked: Get Your Life Together
This practical session breaks down the basics of everyday money management in a clear and approachable way.
Meetings on the Road - Dallas, TX
Meetings on the Road are educational, supportive, and free for all members who attend. Gas and toll expenses will be reimbursed, and meals will be provided.
Stronger at Home: Core + Balance for Everyday Energy
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
The 10-Minute Home Movement Reset
Spring Into Wellness is an 8-week virtual series designed to help you feel more grounded, refreshed, and in control through simple, guided practices you can use in everyday life.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Virtual Symposium Final Night - Sher-Locked Escape Quest
B Family Game Night: Laughs, Prizes, and Friendly Surprises!
Virtual Symposium Family Game Night
B Family Game Night: Laughs, Prizes, and Friendly Surprises!
Managing Your Money in Tough Times
This practical session breaks down the basics of everyday money management in a clear and approachable way.