Seen. Believed. Women & Girls with Hemophilia B
A B-Hub Learning Lab
Weekly on Wednesdays at 8pm ET/ 5:00pm PT
Seen . Believed. is a B-Hub Learning Lab created for women and girls with hemophilia B, and the families who support them, to better understand bleeding, health, and treatment throughout every stage of life. This series combines expert education with real experiences from women and girls in the hemophilia B community.
From October 21 through November 24, participants will join weekly 30-minute livestreams featuring Nurse Hope Woodcock-Ross, Dr. David Clark, special guests, and community members sharing their own experiences. Together, we’ll explore treatment options, whole-body health, infusion, prophylaxis, caring for girls with hemophilia B, periods and heavy bleeding, and more.
Each session is designed to provide practical information, honest conversation, and tools to help women and girls better understand their bodies, communicate with their care teams, and advocate for the care they need.
SCHEDULE:
Weekly 30-minute livestreams in the B Education Hub, with additional educational content, activities, and resources available here in the course space.
Wed, Oct 21 Treat the Bleeding, Not the Label: Understanding Your Treatment Options
Wed, Oct 28 The Whole Body: Hemophilia B & Your Changing Health
Wed, Nov 4 Infusion 101: Tips, Tricks & Building Confidence
Wed, Nov 11 Could Prophylaxis Be Right for Me?
Wed, Nov 18 Caregiving for Girls & Young Women with Hemophilia B
Tue, Nov 24 Periods & Hemophilia B: The Good, the Bad & the Bloody