Welcome to the
Boundless B Podcast
Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.
Join us on The Boundless B Podcast: Share your story, inspire our community
Senator Joe Addabbo on Advocacy, Step Therapy & the Power of One Story
New York State Senator Joseph P. Addabbo, Jr. has been one of the most consistent allies our community has in Albany.
Oral Health and Hemophilia B
Dr. Douglas Hutchinson, a practicing dentist and father of a son with severe hemophilia B, on a topic many families quietly worry about: dental care.
A New Era for Women with Bleeding Disorders
What if the biggest barrier to care isn’t access but the words we use?
The Trail of AIDS (Part 2)
What happens when grief becomes evidence — and evidence becomes a national reckoning?
The Trail of AIDS (Part 1)
What happens when life-saving treatment becomes life-altering — and the systems meant to protect families move too slowly to prevent harm?
Holding Space
Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community with Dr. Mosi Williams
Stronger Together
Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman
Finding Peace During the Holidays
Finding Peace During the Holidays: Regulating the Nervous System
From Tornado To Triumph
What do you do when your baby is born covered in bruises, and no one has answers?
Mental Health and Substance Abuse Treatment
When Kate Bazinsky received the call that a young man with Hemophilia had died by suicide after being denied by substance abuse and mental health treatment, she knew something had to change.
Save One Life, Save the World
What does it mean to save a life—not just with medication, but with dignity, opportunity, and hope?
Emergency Advocacy
Emergency Advocacy, System Change, and the Founding of Danny’s Dose with Darlene Shelton
Resilience and Radical Curiosity
What if the secret to resilience wasn’t grit, but awe? In a world of chronic conditions and everyday stress, how can families harness wonder and connection as anchors for strength and healing?
Voices from the Hemophilia B Symposium
In this special episode of Boundless B, host Kai M Sorensen takes listeners inside the 35th Anniversary Symposium of the Coalition for Hemophilia B.
Healthcare Advocacy
Healthcare Advocacy: Navigating Policy, Misinformation, and the Power of Storytelling with Alison Betty of alignco
The Power of Patient Stories with Erik Paulsen
The Power of Patient Stories with Erik Paulsen, Chairman at the Institute of Gene Therapies
We Are the World: Celebrating Unity Through Music
Episode 11: We Are the World: Celebrating Unity Through Music