March 19-22 at the Renaissance Orlando at SeaWorld

Extended deadline for Symposium Travel Grants is November 15.

Become a Coalition Member!

Membership is free. Complete our membership form to receive our quarterly Factor Nine newsletter and an official welcome kit. You'll also be able to apply for patient and travel assistance grants and much more. And if you want a T-shirt, just tell us your size. Join today!

Our Mission

The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century. For over 28 years we have pursued our mission through a family-oriented approach, because hemophilia is a disease that affects the whole family. Our programs bridge the gap and bring patients with hemophilia B together from all over the USA, connecting them with their common bond and empowering them to gain support, lifetime friends, and the knowledge needed to make important life decisions.

Generation IX Community Leaders

January 7-12, 2020
Pigeon Key Florida

For adults age 18-35
Applications due: December 6, 2019


Our Programs

Family Meetings on the Road

We may have an educational program in your area during fall 2019. Our Factor 9 Family Meetings on the Road are for those living with hemophilia B and their family members, All meetings are Saturdays, are educational, and bring families together to build a support network! But you must register online.

Advocacy News

Music Tracks by The Bleeders Band

Three tracks from our own cover band, The Bleeders (Live in Orlando, FL @ The Coalition for Hemophilia B Symposium 2019), are available for download: Knockin’ on Heaven’s Door, Folsom Prison Blues, I Melt with You. Proceeds from each download benefit the Coalition for Hemophilia B.

Featured Video

BScene:  Hillary Goldrick

Helpful Resources
Information on treatment, scholarships, financial assistance. We also offer booklets & DVDs that can be sent to you free of charge.
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Factor IX News
Keep up-to-date with relevant news for the hemophilia B community from Factor IX News, our quarterly newsletter.
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Contact the Coalition & follow us on social media to connect with other members of the hemophilia community.
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We interact daily with the hemophilia community online and through on-site, family-oriented educational symposiums, meetings, support groups & retreats. 
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents &patients, our team has over 28 years’ experience with hemophilia B. 
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We seek to educate, ensure access to the highest standard of care & empower those living with hemophilia to advocate on their own behalf.
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Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options & more.
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You can further the important mission of the Coalition for Hemophilia B in providing more programs, resources & support to the hemophilia community.
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