Support Our Mission
The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals living with hemophilia B. For over 29 years we have pursued our mission through a family-oriented approach, because hemophilia affects the whole family. Our programs bring patients with hemophilia B together from all over the USA, connecting them with their common bond and empowering them to gain support, lifetime friends, and the knowledge needed to make important life decisions.
Become a Coalition Member!
Membership is free. Complete our membership form to receive our quarterly Factor Nine newsletter and an official welcome kit. You'll also be able to apply for patient and travel assistance grants and much more. And if you want a T-shirt, just tell us your size. Join today!
COVID-19 Resources
Industry, CDC, medical news and resources to keep our members informed during the pandemic
Help Our Emergency Assistance Fund
With an increase in economic hardships among our members as a result of the COVID-19 crisis, we have an urgent need to build up our BCares emergency assistance fund. Donations are welcome at this time. Read More
BCares Eligibility Requirements and Application
Additional Emergency Financial Assistance Resources
The Generation IX Project is an educational program and training ground for future leaders in the hemophilia B community. Read More
Generation IX Virtual Experiences
Time to register for our
Gen IX Mentorship Virtual Experiences
For adult Mentors (Age 18-30) APPLY HERE
For Teens (age 14-17) APPLY HERE
virtual meetings start October 26
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CHECK OUT THE NEW GENERATION IX GAME
Our Programs
Music Video from Bleeder
“Promises” is a new release from Shelby Smoak, writer, musician, and community member, and his indie band Bleeder.
The Bleeders Band
Three tracks from our own cover band, The Bleeders (Live in Orlando, FL @ The Coalition for Hemophilia B Symposium 2019), are available for download: Knockin’ on Heaven’s Door, Folsom Prison Blues, I Melt with You. Proceeds from each download benefit the Coalition for Hemophilia B.
Mental Health &Wellness Resources
We have compiled videos, podcasts and other resources to help improve our physical and mental well-being, plus other helpful links to connect you to outside resources, including hemophilia treatment centers and insurance and benefits resources.
Featured Video
BScene: Hillary Goldrick
Helpful Resources
on treatment, scholarships, financial assistance, mental health, plus downloadable booklets and podcasts.
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Factor IX News
is our quarterly newsletter to keep you up-to-date with relevant news for the hemophilia B community.
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Interact
Contact the Coalition & follow us on social media to connect with other members of our community.
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Programs
We interact with the hemophilia community through family-oriented educational symposiums, meetings & retreats.
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents & patients, our team has over 28 years’ experience with hemophilia B.
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Mission
We educate, seek to ensure access to the highest standard of care & empower those living with hemophilia to advocate on their own behalf.
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Facts & FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options & more.
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Donate
You can further our mission in providing more programs, resources & support to the hemophilia community.
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