The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century
Our mission is to educate, empower, advocate, and ensure that individuals with hemophilia B have timely information about their healthcare so they can have the highest quality of life possible. For over 27 years we have pursued this mission through our extremely family-oriented approach, because hemophilia is a disease that affects the whole family. We provide information about treatment options to patients and their families, work to define new treatment modalities, and support efforts to eliminate the disease.
Become a Member!
Membership is free. Complete our membership form and you will receive our quarterly newsletter and an official welcome kit. You'll also be able to apply for patient & travel assistance grants and so much more. And if you want a T-shirt, just tell us your size. Join today!
Family Meetings on the Road
We’re hosting 13 educational meetings across the country 2019 to share information and resources and bring families together to build a support network! Our Factor 9 Family Meetings are free for those living with hemophilia B and their family members but you must register online. All meetings are Saturdays.
Gen IX Advocacy
September 25-29, 2019
YMCA Camp Collins near Portland, OR
Adults age 20+ with hemophilia B
CLICK HERE FOR 2-PAGE FAQ SHEET with information on the destination and the itinerary
Deadline to apply is August 16th
BScene: Hillary Goldrick
Information on treatment, scholarships, insurance assistance, and more. We also offer several booklets and DVDs that can be sent to you free of charge.
Keep up-to-date with relevant news for the hemophilia community. We publish quarterly Factor IX News, the only newsletter of its kind!
Contact the Coalition and follow us on social media to connect with us and other members of the hemophilia B community.
With a family-oriented and hands-on approach, we interact daily with the hemophilia community online and through educational symposiums, family meetings, support groups, and retreats.
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 27 years’ experience with hemophilia B.
We seek to educate, ensure access to the highest standard of care, and empower people with hemophilia, and their families, to advocate on their own behalf.
Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.