The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
Become a Member!
Membership is free. Complete our membership form and you will receive our quarterly newsletter and an official welcome kit. You'll also be able to apply for patient & travel assistance grants and so much more. And if you want a T-shirt, just tell us your size. Join today!
Factor Nine Holiday Fund Underway!
Register for Our Meetings on the Road
We're crisscrossing the country for a series of family meetings this fall. If we are in your area, meet us halfway by registering early and registering online. All meetings are Saturdays. All meetings are FREE for those with hemophilia B and their families.
Deadline to register for a Saturday meeting is five days prior to the meeting. If interested in an overnight stay at the hotel, please register two weeks before the meeting date.
Princeton NJ: November 3. Details on our Events page. Deadlines: Register by October 29; if requesting room, register by October 20.
Richmond VA: November 10. Details on our Events page. Deadlines: Register by November 5; if requesting room, register by October 27.
Denver CO: November 10. Details on our Events page. Deadlines: Register by November 5; if requesting room, register by October 27.
Anaheim CA: November 17. Details on our Events page. Deadline: Register by November 12; if requesting room, register by November 3.
San Francisco: November 17. Details on our Events page. Deadline: Register by November 12; if requesting room, register by November 3.
Cortland NY: December 1. Details on our Events page. Deadline: Register by November 26; if requesting room, register by November 17.
San Antonio TX: December 1. Details on our Events page. Deadline: Register by November 26; if requesting room, register by November 17.
2019 Annual Symposium: March 14-17
The deadline has passed for submitting a travel grant application (formerly known as the lotto form) for airfare and three nights' hotel. The 2019 symposium will be held Thursday March 14 - Sunday March 17 at the Renaissance Orlando at SeaWorld. Email us at firstname.lastname@example.org if you have questions. Online registration for the 2019 Symposium will be available soon.
BScene: Hillary Goldrick
Information on treatment, scholarships, insurance assistance, and more. We also offer several booklets and DVDs that can be sent to you free of charge.
Keep up-to-date with relevant news for the hemophilia community. We publish quarterly Factor IX News, the only newsletter of its kind!
Contact the Coalition and follow us on social media to connect with us and other members of the hemophilia B community.
With a family-oriented and hands-on approach, we interact daily with the hemophilia community online and through educational symposiums, family meetings, support groups, and retreats.
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 27 years’ experience with hemophilia B.
We seek to educate, ensure access to the highest standard of care, and empower people with hemophilia, and their families, to advocate on their own behalf.
Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.