Video Library

Skip to Videos
  • The Coalition for Hemophilia B's Annual Symposium

    The Coalition for Hemophilia B's Annual Symposium

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Inside the Annual Symposium: A Conversation with Chris

    Inside the Annual Symposium: A Conversation with Chris

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Inside the Annual Symposium: A Conversation with Tara

    Inside the Annual Symposium: A Conversation with Tara

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Inside the Annual Symposium: A Conversation with Bill

    Inside the Annual Symposium: A Conversation with Bill

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Inside the Annual Symposium: A Conversation with Stormy

    Inside the Annual Symposium: A Conversation with Stormy

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Inside the Annual Symposium: A Conversation with Nick

    Inside the Annual Symposium: A Conversation with Nick

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Inside the Annual Symposium: A Conversation with Everett

    Inside the Annual Symposium: A Conversation with Everett

    Experience the Coalition for Hemophilia B’s Annual Symposium, a one-of-a-kind event that brings together inspiring speakers, engaging exhibitors, and unforgettable moments of connection, learning, and laughter. From powerful presentations to community-building experiences, Symposium is unlike any other.

    Learn more: hemob.org/annual-symposium

  • Jerry McMillan Jr.

    Jerry McMillan Jr.

    Jerry’s voice is clear: visibility matters. In sharing his experience with hemophilia B, he reminds us why personal stories are essential to driving understanding, connection, and change.

  • The Beats Program

    The Beats Program

    The Beats Music Program was created for people with hemophilia B to connect and build strong relationships through the common bond of music. Research indicates that 30% to 60% of patients with hemophilia experience depression. We are out to change that.

  • We are the World - Beats Music Program 2024

    We are the World - Beats Music Program 2024

    We are delighted to present a beautiful musical rendition of We Are The World performed by the talented attendees of the 2024 Beats Music Program. It is our hope that this heartfelt performance brings you joy and inspiration. Recorded & Produced by Adam B. Smith

  • Dr. David Clark

    Dr. David Clark

    For more than 30 years, Dr. David Clark has been a cornerstone of the hemophilia B community. His research, advocacy, and dedication continue to drive progress, and remind us what compassionate leadership looks like.

  • Danelie Rivera

    Danelie Rivera

    Cuando todo parecía abrumador, Danelie encontró luz en la comunidad de hemofilia B. Escucha cómo la comunidad, la compasión y la defensa sacaron adelante a su familia.

  • Donnie Akers Jr. J.D.

    Donnie Akers Jr. J.D.

    Donnie Akers Jr., J.D., has spent years advocating for the bleeding disorders community. In this video, he shares the unique challenges we face, and why overcoming them requires unity, action, and unwavering support for one another.

  • Carl Weixler

    Carl Weixler

    When Carl speaks, people listen. His story reveals the quiet strength behind every challenge and the courage it takes to keep showing up, not just for himself, but for the whole community.

  • The Procunier Family

    The Procunier Family

    Meet Cyndi, Mike, Ryan, Andrew, and Alex, a family who’ve faced hemophilia B head-on and emerged with stories of courage, love, and advocacy. Their experiences remind us what it means to belong, to endure, and to rise together.

  • Mandy and Ryan Aberegg

    Mandy and Ryan Aberegg

    Meet Mandy and Ryan Aberegg, part of our incredible community, sharing their journey, strength, and the impact of being part of the Coalition for Hemophilia B.

  • Jacqui Maddix

    Jacqui Maddix

    Meet Jacqui Maddix, part of our incredible community, sharing her journey, strength, and the impact of being part of the Coalition for Hemophilia B.

  • Ashley Zebley

    Ashley Zebley

    Hemophilia Stories That Inspire

    Meet Ashley Zebley, part of our incredible community, sharing her journey, strength, and the impact of being part of the Coalition for Hemophilia B.

  • Nick Marlatt

    Nick Marlatt

    Hemophilia Stories That Inspire

    Meet Matt Marlatt, part of our incredible community, sharing his journey, strength, and the impact of being part of the Coalition for Hemophilia B.