2026 Annual Symposium

Las Vegas, Nevada

April 9–12, 2026


The Coalition’s Annual Symposium brings together a distinguished faculty, including medical, research, mental health, and policy experts, alongside industry leaders and advocates. It provides attendees with education, mutual support, and a unique opportunity to connect with others on their path toward greater independence and success. Our event fosters a deeper sense of community and empowers individuals as they move forward in their careers and lives.

Symposium Schedule

Wednesday, April 8

7:30 AM – 5:45 PM
Let’s Play IX Golf Fundraiser Tournament (Invitation only)

9:30 AM – 2:00 PM
Pre-conference Advisory Boards (Invitation only)

12:00 – 12:30 PM
Volunteer Orientation Meeting #1

5:00 – 8:00 PM
Registration Open

6:00 – 7:30 PM
Coalition Welcome Dinner

7:30 – 8:00 PM
Volunteer Orientation Meeting #2

Thursday, April 9

7:30 – 9:00 AM
Breakfast Symposium (Sponsored by CSL)

9:15 – 11:45 AM
Family Day Workshops

10:00 AM – 10:00 PM
Registration Open

12:00 – 1:00 PM
Lunch Meet & Greet (Sponsored by Sanofi)

1:00 – 1:45 PM
Affinity Group Gatherings
• Inhibitors Gathering (Sponsored by HEMA Biologics)
• Foro Latino (Sponsored by Pfizer)
• Caregivers & Families Gathering
• 50+ Gathering

2:00 – 3:30 PM
Women’s & Men’s Gatherings (Sponsored by Medexus)

5:00 – 6:30 PM
Dinner

6:30 – 9:30 PM
Exhibit Hall Open

Friday, April 10

6:30 – 7:30 AM
Morning Physical Wellness Sessions

7:30 – 9:00 AM
Breakfast Symposium (Sponsored by CSL)

9:00 – 9:45 AM
Kickoff & Volunteer Awards with Elec Simon

9:45 – 10:30 AM
Main Hall Keynote: Dr. Christopher Walsh

10:30 – 11:15 AM
Main Hall Keynote: Coalition Advocacy Panel

11:30 AM – 12:30 PM
Morning Breakout Sessions

12:30 – 2:00 PM
Lunch Symposium (Sponsored by Novo Nordisk)

2:00 – 4:00 PM
Exhibit Hall Open

4:15 – 5:00 PM
Afternoon Breakout Sessions

5:15 – 6:00 PM
Evening Breakout Sessions

6:00 – 7:30 PM
Dinner Symposium (Sponsored by Sanofi)

8:00 – 9:00 PM
Friday Night Hangout with The Bleeders (Sponsored by Medexus)

8:00 – 9:00 PM (Virtual)
Friday Night Hangout — Bingo & Games

Saturday, April 11

7:00 – 7:30 AM
Morning Physical Wellness Sessions

7:30 – 9:00 AM
Breakfast Symposium (Sponsored by Pfizer)

9:00 – 9:15 AM
Main Hall Kickoff with Elec Simon

9:15 – 10:15 AM
Morning Keynote: Dr. Mina Nguyen-Driver

10:30 – 11:30 AM
Product Landscape Panel with Dr. David Clark

11:45 AM – 12:30 PM
Morning Breakout Sessions

12:45 – 1:00 PM
Annual Group Photo

1:00 – 2:00 PM
Boxed Lunch

2:00 – 4:30 PM
Exhibit Hall Open

2:30 – 3:30 PM
Exhibit Hall Ice Cream Social

4:30 – 5:30 PM
Infusion with Nurse Hope (Sponsored by The Hart Family)

4:30 – 5:30 PM
Afternoon Breakout Sessions

7:00 – 10:00 PM
Golden Gala Dinner
"All That Glitters – A Celebration of Our Gold Standard Community"

7:00 – 9:00 PM (Virtual)
Final Night Event

Sunday, April 12

7:30 – 8:30 AM
Breakfast

Breakout Session Tracks

Patient Advocacy & Public Policy
Advances in Hemophilia B Care
Women’s Health, Diagnosis & Advocacy
Living Well with Hemophilia B
Community Track: Sesiones en Español

Featured MCs

Elec Simon
Renae Baker

Featured Speakers

Dr. David Clark
Dr. Christopher Walsh
Dr. Jill Johnson
Dr. Mina Nguyen-Driver
Dr. Amber Federizo
Brian O’Mahony, FACSLM
Wendy Wollner
Lee Kim
Renk Koçtürk

WAYS TO ATTEND

There are four ways to attend the Symposium:

  • Airfare Travel Grant*

  • Driving Travel Grant*

  • 2026 Golden Ticket Winner (awarded at 2025 Meetings on the Road)

  • Non-Grant Attendee (covering own costs)

*Priority for travel grants is given to first-time attendees and driving grant applications, to ensure the greatest number of families can participate.

Travel grant applications for 2026 are now closed.

Please check back for 2027 opportunities.

Watch below to hear from attendees about their experience and the impact that the Symposium has had on their lives.

Are you a medical professional, researcher, or industry representative interested in attending?

Contact us for more information today.

Upcoming Events