2026 Annual Symposium
Las Vegas, Nevada
April 9–12, 2026
The Coalition’s Annual Symposium brings together a distinguished faculty, including medical, research, mental health, and policy experts, alongside industry leaders and advocates. It provides attendees with education, mutual support, and a unique opportunity to connect with others on their path toward greater independence and success. Our event fosters a deeper sense of community and empowers individuals as they move forward in their careers and lives.
Symposium Schedule
Wednesday, April 8
7:30 AM – 5:45 PM
Let’s Play IX Golf Fundraiser Tournament (Invitation only)
9:30 AM – 2:00 PM
Pre-conference Advisory Boards (Invitation only)
12:00 – 12:30 PM
Volunteer Orientation Meeting #1
5:00 – 8:00 PM
Registration Open
6:00 – 7:30 PM
Coalition Welcome Dinner
7:30 – 8:00 PM
Volunteer Orientation Meeting #2
Thursday, April 9
7:30 – 9:00 AM
Breakfast Symposium (Sponsored by CSL)
9:15 – 11:45 AM
Family Day Workshops
10:00 AM – 10:00 PM
Registration Open
12:00 – 1:00 PM
Lunch Meet & Greet (Sponsored by Sanofi)
1:00 – 1:45 PM
Affinity Group Gatherings
• Inhibitors Gathering (Sponsored by HEMA Biologics)
• Foro Latino (Sponsored by Pfizer)
• Caregivers & Families Gathering
• 50+ Gathering
2:00 – 3:30 PM
Women’s & Men’s Gatherings (Sponsored by Medexus)
5:00 – 6:30 PM
Dinner
6:30 – 9:30 PM
Exhibit Hall Open
Friday, April 10
6:30 – 7:30 AM
Morning Physical Wellness Sessions
7:30 – 9:00 AM
Breakfast Symposium (Sponsored by CSL)
9:00 – 9:45 AM
Kickoff & Volunteer Awards with Elec Simon
9:45 – 10:30 AM
Main Hall Keynote: Dr. Christopher Walsh
10:30 – 11:15 AM
Main Hall Keynote: Coalition Advocacy Panel
11:30 AM – 12:30 PM
Morning Breakout Sessions
12:30 – 2:00 PM
Lunch Symposium (Sponsored by Novo Nordisk)
2:00 – 4:00 PM
Exhibit Hall Open
4:15 – 5:00 PM
Afternoon Breakout Sessions
5:15 – 6:00 PM
Evening Breakout Sessions
6:00 – 7:30 PM
Dinner Symposium (Sponsored by Sanofi)
8:00 – 9:00 PM
Friday Night Hangout with The Bleeders (Sponsored by Medexus)
8:00 – 9:00 PM (Virtual)
Friday Night Hangout — Bingo & Games
Saturday, April 11
7:00 – 7:30 AM
Morning Physical Wellness Sessions
7:30 – 9:00 AM
Breakfast Symposium (Sponsored by Pfizer)
9:00 – 9:15 AM
Main Hall Kickoff with Elec Simon
9:15 – 10:15 AM
Morning Keynote: Dr. Mina Nguyen-Driver
10:30 – 11:30 AM
Product Landscape Panel with Dr. David Clark
11:45 AM – 12:30 PM
Morning Breakout Sessions
12:45 – 1:00 PM
Annual Group Photo
1:00 – 2:00 PM
Boxed Lunch
2:00 – 4:30 PM
Exhibit Hall Open
2:30 – 3:30 PM
Exhibit Hall Ice Cream Social
4:30 – 5:30 PM
Infusion with Nurse Hope (Sponsored by The Hart Family)
4:30 – 5:30 PM
Afternoon Breakout Sessions
7:00 – 10:00 PM
Golden Gala Dinner
"All That Glitters – A Celebration of Our Gold Standard Community"
7:00 – 9:00 PM (Virtual)
Final Night Event
Sunday, April 12
7:30 – 8:30 AM
Breakfast
Breakout Session Tracks
Patient Advocacy & Public Policy
Advances in Hemophilia B Care
Women’s Health, Diagnosis & Advocacy
Living Well with Hemophilia B
Community Track: Sesiones en Español
Featured MCs
Elec Simon
Renae Baker
Featured Speakers
Dr. David Clark
Dr. Christopher Walsh
Dr. Jill Johnson
Dr. Mina Nguyen-Driver
Dr. Amber Federizo
Brian O’Mahony, FACSLM
Wendy Wollner
Lee Kim
Renk Koçtürk
WAYS TO ATTEND
There are four ways to attend the Symposium:
Airfare Travel Grant*
Driving Travel Grant*
2026 Golden Ticket Winner (awarded at 2025 Meetings on the Road)
Non-Grant Attendee (covering own costs)
*Priority for travel grants is given to first-time attendees and driving grant applications, to ensure the greatest number of families can participate.
Travel grant applications for 2026 are now closed.
Please check back for 2027 opportunities.
Watch below to hear from attendees about their experience and the impact that the Symposium has had on their lives.