If Congress Doesn’t Act by September 30, Millions Could Lose Affordable Coverage

Dear Members,

I know these have been trying times, but now more than ever, we need you to stay active and action-oriented. What you do doesn’t just affect you, it impacts every community member, every family member, every friend, and every neighbor. Your voice matters, and together we can drive the change our community needs. Thank you for standing with us.

URGENT: Your Health Insurance Could Get More Expensive in 2026

FACTS YOU NEED TO KNOW:

Enhanced Premium Tax Credits Lower Costs for Millions

• Thanks to enhanced subsidies passed in recent years, more than 24 million Americans—including those with chronic and rare conditions, pay much less for monthly insurance premiums.

These Credits Are Set to Expire for 2026

• If Congress doesn’t reauthorize them by September 30, 2025, health plans for 2026 will be priced without them.

• This means huge increases in premiums for many families.

Without Action, Premiums Could Rise by 75% to 93%

• That’s hundreds or even thousands of dollars more each year.

• Some people will be forced to drop coverage altogether—especially in states that didn’t expand Medicaid.

Open Enrollment Starts November 1

• If nothing changes by then, families will see higher prices and fewer affordable options.

• This will hit the chronically ill and low-income communities the hardest.

Insurers Need to Finalize Prices by October

• That’s why Congress must act by September 30, waiting longer won’t help. 

 WHO IS MOST AT RISK?

• Patients with chronic or rare conditions (like hemophilia)

• Low- and middle-income families

• Older adults not yet on Medicare

• People in non-Medicaid expansion states

• Self-employed or gig workers relying on ACA marketplace plans

WHAT YOU CAN DO TODAY:

CLICK HERE to Call or Email Your Members of Congress

Tell them to renew the enhanced premium tax credits before Sept. 30 so families don’t lose affordable health care.

Share Your Story

Explain how affordable health insurance helps you or your family. Stories are powerful and help lawmakers understand the real impact.

Spread the Word on Social Media

Post, share, and talk about this issue, use hashtags like #ProtectOurCare #ActBySept30

 DEADLINE: SEPTEMBER 30

Best,
Kim Phelan
CEO
The Coalition for Hemophilia B