
Publications and Resources
Perspectives of Patients' Report
Care Without Barriers: Progress & Challenges Report
Perspectivas del informe de los pacientes
Equidad en la comunidad con hemofilia B
Reading Material.
Hemophilia B: Paths to Empowerment. DOWNLOAD
Learn how others impacted by hemophilia B define what it means to be empowered and overcome challenges.
Navigating the Preteen Years DOWNLOAD
This book provides advice and support about hemophilia B during the preteen years.
Hemophilia B: Your Point of View DOWNLOAD
The advice here will help you have a conversation about hemophilia B with your friends, teachers, and possible romantic interests.
Young Adults & Hemophilia B DOWNLOAD
Get more information about dating, moving out, starting a career, and starting a family in this book written for young adults.
A Guide for Mature Adults DOWNLOAD
Learn from experience how to recognize certain situations that may arise for mature adults, with guidance along the way.
Hemophilia B in Early Childhood DOWNLOAD
Raising a child with hemophilia B is uniquely challenging. There is help to prepare for what to expect.
Hemophilia B: Her Voice, Her Life DOWNLOAD
This book supports and encourages women with hemophilia B on their path to empowerment.
Know your numbers; knowledge is power DOWNLOAD
Learn about specific numbers and test values pertinent to living with hemophilia B through all life stages.
Hemophilia B: A Family Perspective DOWNLOAD
This book provides real-life examples and guidance when a family member has hemophilia B.