Publications and Resources

Cover page featuring two smiling young girls, one with dark hair and one with light hair, sitting with others in an airport, promoting awareness for hemophilia and rare diseases.

Perspectives of Patients' Report

Care Without Barriers: Progress & Challenges Report

Perspectivas del informe de los pacientes

Equidad en la comunidad con hemofilia B


View the Report
Ver el Informe
Logos of CSL Behring, Pfizer, and Sanofi.

Reading Material.

The B2B book series from Pfizer covers a wide range of topics that speak to the hemophilia B community.

Hemophilia B: Paths to Empowerment. DOWNLOAD
Learn how others impacted by hemophilia B define what it means to be empowered and overcome challenges.

Navigating the Preteen Years DOWNLOAD
This book provides advice and support about hemophilia B during the preteen years.

Hemophilia B: Your Point of View DOWNLOAD
The advice here will help you have a conversation about hemophilia B with your friends, teachers, and possible romantic interests.

Young Adults & Hemophilia B DOWNLOAD
Get more information about dating, moving out, starting a career, and starting a family in this book written for young adults.

A Guide for Mature Adults DOWNLOAD
Learn from experience how to recognize certain situations that may arise for mature adults, with guidance along the way.

Hemophilia B in Early Childhood DOWNLOAD
Raising a child with hemophilia B is uniquely challenging. There is help to prepare for what to expect.

Hemophilia B: Her Voice, Her Life DOWNLOAD
This book supports and encourages women with hemophilia B on their path to empowerment.

Know your numbers; knowledge is power DOWNLOAD
Learn about specific numbers and test values pertinent to living with hemophilia B through all life stages.

Hemophilia B: A Family Perspective DOWNLOAD
This book provides real-life examples and guidance when a family member has hemophilia B.