"Partnership with Purpose" text, Coalition for Hemophilia B logo, and CSL Behring logo on a white background.

Gene therapy for hemophilia B is an innovative treatment approach that aims to correct the genetic defect causing the disorder. In hemophilia B, individuals have a deficiency in clotting factor IX, a protein crucial for blood clotting. Gene therapy delivers a functioning copy of the faulty gene directly to the liver cells using a modified virus, allowing the body to produce its own factor IX. This treatment can significantly reduce or even eliminate the need for regular factor replacement therapy, offering improved quality of life and fewer bleeding episodes for people with hemophilia B.

Gene Therapy Rap Sessions

For men with hemophilia B over 18.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming

2025 Dates

  • 5/13/2025

  • 5/29/2025

  • 6/10/2025

  • 7/2/2025

  • 7/15/2025

  • 8/5/2025

  • 8/26/2025

  • 9/16/2025

  • 9/30/2025

  • 10/16/2025

  • 10/27/2025

  • 11/13/2025

  • 11/24/2025

  • 12/9/2025

Gene Therapy News

Videos

Resources for Gene Therapy

Join together and learn the proper
ways to infuse.

Have legal questions? Attorney
Donnie Akers has answers.

Learn how others like you are
dealing with Hemophilia B.

Hemophilia B Educational Videos