The B Hub
Resource Library
Welcome to our Resource Library Blog page, where you can discover valuable content tailored to your specific interests and needs. Whether you're seeking information on the latest advancements in hemophilia B treatment or looking for personal stories from individuals with hemophilia B, this is the place to be. With our convenient filter options or by exploring the dedicated hubs, you can easily access articles that resonate with you on a deeper level. Take advantage of this resource and empower yourself with knowledge and insights that are relevant to your unique journey.
The Coalition Calls on Congress to Pass Two Key Bills
The Coalition Calls on Congress to Pass Two Key Bills. Children with Rare Diseases Can't Wait.
The Heart of a Movement
This article, featured through Biomatrix, beautifully captures our mission and the journey of The Coalition for Hemophilia B over the past three and a half decades.
Update on What’s Happening in Government
November 2025 - Update on What’s Happening in Government
Act Now: Keep Health Care Affordable!
Millions of Americans depend on the Affordable Care Act (ACA) for health insurance, over 26 million people, including many living with chronic conditions.
Major Health Policy Changes Ahead
Major Health Policy Changes Ahead:
What the 2025 Budget Reconciliation Act Means for People with Hemophilia B
Patient Coalition Condemns House-Passed H.R. 1 for Stripping Coverage from Millions
Patient Coalition Condemns House-Passed H.R. 1 for Stripping Coverage from Millions
Your Voice is Needed: Protect Medicare, Medicaid, ACA, and SNAP
Devastating Budget Bill Passed in House: We Must Keep Fighting
Devastating Budget Bill Passed in House: We Must Keep Fighting
Devastating Budget Bill Passed in House: We Must Keep Fighting
We stand with The American Society of Hematology (ASH)
Letter to Sec. Kennedy re: the Reinstatement of CDC's Division of Blood Disorders & Public Health Genomics
An Important Message From Our CEO
Critical changes at the CDC’s Division of Blood Disorders and Public Health Genomics affecting our community.
What’s Happening with Insurance Companies
What’s Happening with Insurance Companies—And Why It Affects You
The Greatest Paradox To Growth and Fulfillment
The years between 2006 and 2009 will go down in my history as the most intense and volatile season in my life. I cannot imagine anything, nor dare comprehend a more burning crucible than those burdensome and intense years.
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Reflections on the 2025 Sanofi Patient Advocacy Council
Reflections on the 2025 Sanofi Patient Advocacy Council by Kim Phelan
Pfizer Discontinues Gene Therapy for Hemophilia B
The Coalition for Hemophilia B Responds to Pfizer’s Discontinuation of Gene Therapy for Hemophilia B
