The B Hub
Resource Library
Welcome to our Resource Library Blog page, where you can discover valuable content tailored to your specific interests and needs. Whether you're seeking information on the latest advancements in hemophilia B treatment or looking for personal stories from individuals with hemophilia B, this is the place to be. With our convenient filter options or by exploring the dedicated hubs, you can easily access articles that resonate with you on a deeper level. Take advantage of this resource and empower yourself with knowledge and insights that are relevant to your unique journey.
Your Voice is Needed: Protect Medicare, Medicaid, ACA, and SNAP
Devastating Budget Bill Passed in House: We Must Keep Fighting
Devastating Budget Bill Passed in House: We Must Keep Fighting
Devastating Budget Bill Passed in House: We Must Keep Fighting
We stand with The American Society of Hematology (ASH)
Letter to Sec. Kennedy re: the Reinstatement of CDC's Division of Blood Disorders & Public Health Genomics
An Important Message From Our CEO
Critical changes at the CDC’s Division of Blood Disorders and Public Health Genomics affecting our community.
What’s Happening with Insurance Companies
What’s Happening with Insurance Companies—And Why It Affects You
The Greatest Paradox To Growth and Fulfillment
The years between 2006 and 2009 will go down in my history as the most intense and volatile season in my life. I cannot imagine anything, nor dare comprehend a more burning crucible than those burdensome and intense years.
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Reflections on the 2025 Sanofi Patient Advocacy Council
Reflections on the 2025 Sanofi Patient Advocacy Council by Kim Phelan
Pfizer Discontinues Gene Therapy for Hemophilia B
The Coalition for Hemophilia B Responds to Pfizer’s Discontinuation of Gene Therapy for Hemophilia B
The Beats Program
Elevating Each Other Through Music: The Growth and Power of Human Connection
THE WORLD OF WORK
If you have been working but are finding it increasingly hard to do your job, especially if your physical condition changes, you may wish to consider a number of tools which may help.
Hemophilia B Classifications for Women
Now that we are recognizing women can also have hemophilia, it is important to define diagnostic criteria that apply to them.
Federal Funding and Hemophilia Treatment Centers
We know that many of you are concerned about the future of federal funding for Hemophilia Treatment Centers (HTCs) given the uncertainty surrounding recent policy changes.