From Tornado To Triumph
Mandy Aberegg on Raising Resiliant Kids with Hemophilia B
Available on Spotify and Apple Podcasts
What do you do when your baby is born covered in bruises, and no one has answers?
In this episode, Mandy Aberegg shares her powerful journey as a mother of two children with Hemophilia B—and how she turned fear into fierce advocacy. Her story will leave you inspired, informed, and ready to take that next brave step forward.
Episode Overview
When Mandy Aberegg’s first child was born, she had no idea she was a spontaneous carrier of Hemophilia B. What followed was a whirlwind of misdiagnoses, medical fear, and hard-earned lessons in advocacy. In this heart-opening conversation, Mandy shares the emotional and practical journey of parenting two kids with bleeding disorders, learning to stand up to doctors, and finding community through the Coalition for Hemophilia B. Her story is a testament to resilience, maternal strength, and the power of speaking out.
Meet the Guest
Mandy Aberegg is a devoted mother, fierce advocate, and respected voice in the Hemophilia B community. After a surprise diagnosis in her first child and later in her daughter, Mandy transformed fear into empowerment—learning how to stand up to healthcare providers, advocate for her family, and connect others to the community and resources that changed her life. Today, she’s a proud parent, mentor, and shining example of resilience.
Resources & Links
Coalition for Hemophilia B: https://www.hemob.org
Balancing Life’s Issues: https://balancinglifesissues.com/podcast-bli/