Voices of Symposium Part Two

Seen

Available on Spotify and Apple Podcasts

What does it mean to finally be seen — as a woman, as a mother, after decades of being told you couldn't possibly have this disease? And what does it mean for a child growing up now, in a community where a scraped knee doesn't have to mean fear?

In Part 2, host Kai Sorensen sits down with the Coalition's CEO and Executive Director to unpack the "Seen. Believed." campaign and the growing number of women only now getting diagnosed with hemophilia B — including one mother whose full, twenty-five-year journey to diagnosis gets its own spotlight in Part 3. From there, the episode turns to the next generation: a hands-on lesson in self-infusion, a first-time family finding community for the first time, and a joyfully chaotic closing stretch with the kids who are growing up with more options than any generation before them.