Healthcare Advocacy

Healthcare Advocacy: Navigating Policy, Misinformation, and the Power of Storytelling with Alison Betty of alignco

Available on Spotify and Apple Podcasts

In this powerful episode of Boundless B, host Kai M Sorensen speaks with Alison Betty, longtime public policy expert and co-founder of alignco, about the critical role of advocacy in healthcare—particularly for individuals impacted by Hemophilia B.

They explore how healthcare policy is shaped, why misinformation is a growing challenge for patients and providers alike, and how storytelling can cut through the noise to drive real change. Alison stresses that everyone has a story worth telling, and that even small efforts—like calling your representatives—can make a big difference.

Whether you're navigating Medicare, Medicaid, the ACA or private insurance, this episode offers guidance, inspiration, and a call to action for anyone ready to engage in meaningful patient advocacy and community engagement.

This episode is made in partnership with Balancing Life’s Issues.

Additional Resources:

alignco || Alison Betty

Call your Rep, U.S. Capitol Switchboard: 202-224-3121

The Coalition for Hemophilia B

Balancing Life's Issues

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The Power of Patient Stories with Erik Paulsen