Welcome to the
Boundless B Podcast
Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.
Join us on The Boundless B Podcast: Share your story, inspire our community
Voices of Symposium Part Three
In April 2026, at the Coalition for Hemophilia B's annual symposium just outside the Las Vegas strip, host Kai Sorensen set up a microphone at a folding table in the middle of it all and put out a card that said one thing: tell me your story. Over a few hours, many did.
Voices of Symposium Part Two
In Part 2, host Kai Sorensen sits down with the Coalition's CEO and Executive Director to unpack the "Seen. Believed." campaign and the growing number of women only now getting diagnosed with hemophilia B
Voices of Symposium Part One
In Part 1 of this three-part series, host Kai Sorensen walks the halls of the Coalition for Hemophilia B's 2026 Symposium, capturing the reunions, the quiet courage, and the everyday advocates who make this weekend feel less like a conference and more like a family reunion.
Senator Joe Addabbo on Advocacy, Step Therapy & the Power of One Story
New York State Senator Joseph P. Addabbo, Jr. has been one of the most consistent allies our community has in Albany.
A New Era for Women with Bleeding Disorders
What if the biggest barrier to care isn’t access but the words we use?
The Trail of AIDS (Part 2)
What happens when grief becomes evidence — and evidence becomes a national reckoning?
The Trail of AIDS (Part 1)
What happens when life-saving treatment becomes life-altering — and the systems meant to protect families move too slowly to prevent harm?
Holding Space
Holding Space: Grief, Resilience, and Mental Health in the Bleeding Disorders Community with Dr. Mosi Williams
Stronger Together
Stronger Together: Building Community at Meetings on the Road with Dr. Whitley Grant-Goodman
Finding Peace During the Holidays
Finding Peace During the Holidays: Regulating the Nervous System
From Tornado To Triumph
What do you do when your baby is born covered in bruises, and no one has answers?
Mental Health and Substance Abuse Treatment
When Kate Bazinsky received the call that a young man with Hemophilia had died by suicide after being denied by substance abuse and mental health treatment, she knew something had to change.
Save One Life, Save the World
What does it mean to save a life—not just with medication, but with dignity, opportunity, and hope?
Emergency Advocacy
Emergency Advocacy, System Change, and the Founding of Danny’s Dose with Darlene Shelton
Resilience and Radical Curiosity
What if the secret to resilience wasn’t grit, but awe? In a world of chronic conditions and everyday stress, how can families harness wonder and connection as anchors for strength and healing?
We Are the World: Celebrating Unity Through Music
Episode 11: We Are the World: Celebrating Unity Through Music
From Silence to Strength: Women and Hemophilia B
Episode 10: From Silence to Strength: Women and Hemophilia B