Upcoming Events
Mental Health Mondays in the B-Hub
Join us every week for our ongoing series, featuring practical tools and calming moments designed to help you take care of your mind, body, and soul.
Whether you’re looking for motivation, stress relief, or simply a safe space to breathe and reset, our weekly sessions will help you begin your week on the right note, with compassion, clarity, and community. Join live or watch on replay exclusively in the B Education Hub, and connect with others who truly understand.
Join us every Monday from 1 to 2 PM Eastern
Gene Therapy Rap Sessions
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming
2025 Dates
7/2/2025
7/15/2025
8/5/2025
8/26/2025
9/30/2025
10/16/2025
10/27/2025
11/13/2025
11/24/2025
12/9/2025
Strength in Connection: For those 50 and over
Movement Snacks: Small Bites That Make a Big Difference
Strength in Connection: For those 50 and over
Improve Your Overall Postural Awareness!
For those 50 and over. You deserve support. Let’s thrive—together.
Advocacy in Action
Join Lee Hall, Kim Phelan, Jim Romano, Patrick Collins, and special guests for an informal and interactive gathering to get the latest updates on Medicare, Medicaid, SNAP, and the ACA, and what we can do next.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Annual Symposium 2025
Join us at the 2025 Symposium!
Get ready for a magical experience in Orlando, Florida, from April 10-13 as we celebrate 35 years of dedication to the Hemophilia B community. This milestone is for the incredible individuals like you who make it all possible!
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Support Network
You must be qualified to receive gene therapy to attend.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Strength in Connection - 50 and Over Virtual Series
Expert Speaker: Mike Zolotnisky
Topic: Balancing after 50: Fall Prevention
Gene Therapy Support Network
You must be qualified to receive gene therapy to attend.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.