Women and Girls With Bleeding Disorders

Key Findings From the World Federation of Haemophilia National Member Organization Survey on Women and Girls With Bleeding Disorders

🔬 New Insights on Care for Women and Girls with Bleeding Disorders

A recent publication in Haemophilia highlights key findings from a global survey conducted by the World Federation of Hemophilia (WFH). This survey looked at how care and services are provided for women and girls with bleeding disorders — and the results point to ongoing challenges around awareness, access to care, and data collection.

📊 Key takeaways:
• Women and girls often face socioeconomic and cultural barriers to diagnosis and treatment.
• Awareness about bleeding disorders in patients and healthcare providers varies widely across countries.
• Nearly half of organizations struggle with consistent data collection to support advocacy and program development.

➡️ The study underscores the need for expanded access to care, better education, and targeted outreach to ensure that women and girls with inherited bleeding disorders receive the support and recognition they deserve.