The B Hub
Resource Library
Welcome to our Resource Library Blog page, where you can discover valuable content tailored to your specific interests and needs. Whether you're seeking information on the latest advancements in hemophilia B treatment or looking for personal stories from individuals with hemophilia B, this is the place to be. With our convenient filter options or by exploring the dedicated hubs, you can easily access articles that resonate with you on a deeper level. Take advantage of this resource and empower yourself with knowledge and insights that are relevant to your unique journey.
New MASAC Guidelines Document #296 on Iron Deficiency
People with an inherited bleeding disorder have a higher risk of low iron because of blood loss from bleeding. When low iron is not treated, it can turn into iron deficiency anemia over time.
Update on Be Biopharma’s BE-101 Trial
Be Biopharma has ended its Phase 1/2 BeCoMe-9 study of BE-101, an investigational cell therapy for hemophilia B.
FDA Approves Expanded Use of Pfizer’s HYMPAVZI®
U.S. FDA Approves Pfizer’s HYMPAVZI for the Treatment of Two Additional Hemophilia A or B Patient Populations with Significant Medical Need
In the News: New treatment for Hemophilia B brings hope to patients
New treatment for Hemophilia B brings hope to patients
Sustained Clinical Benefit of AAV Gene Therapy in Severe Hemophilia B
Adeno-associated virus (AAV)–mediated gene therapy has emerged as a promising treatment for hemophilia B.
An Update on HEMGENIX® (etranacogene dezaparvovec-drlb) Availability
An Update on HEMGENIX® (etranacogene dezaparvovec-drlb) Availability
The Coalition for Hemophilia B Update on Marstacimab (Hympavzi®)
Update on adverse event involving marstacimab rebalancing agent
The Coalition for Hemophilia B Statement on Marstacimab (Hympavzi®)
Severe adverse event involving marstacimab rebalancing agent
Pfizer Discontinues Gene Therapy for Hemophilia B
The Coalition for Hemophilia B Responds to Pfizer’s Discontinuation of Gene Therapy for Hemophilia B
Hemlibra for Hemophilia B!?
Hemlibra is not indicated for the treatment of hemophilia B, but recent studies show that it might actually be beneficial for a few hemophilia B patients.
Prophylaxis for Mild or Moderate Hemophilia B
Prophylaxis for mild or moderate hemophilia B is becoming more common.
Controversy over ISTH Hemophilia Treatment Guidelines
A controversy over a set of clinical treatment guidelines has been raging for over a year now, but you probably haven’t heard about it.
Hemophilia Landscape Emerging Therapies
Dr. Clark on treatments for hemophilia B patients.
Intradermal Injection Can Cause Inhibitor Development
Most B inhibitor patients probably did not acquire their inhibitors by ID contact, but it’s possible and needs more study.
Is Inhibitor Development Affected by the Product Used?
Hemophilia B suffers from having too few patients as subjects for research. Because of that, some of the knowledge about hemophilia B is extrapolated from studies of hemophilia A.