The B Education Hub

Community Hub & Resource Library

We’re happy you’re here!

Through a comprehensive range of resources and support, CHB is committed to enhancing health literacy, promoting mental and physical well-being, and ensuring a holistic approach to care for the Hemophilia B community.

Education is our best tool, and together, we can make a tremendous difference in the lives of our community members. The need for up-to-date information and increased awareness of the new possibilities and opportunities is palpable, and we are here to partner with you!

Featured
Devastating Budget Bill Passed in House: We Must Keep Fighting
Advocacy
Devastating Budget Bill Passed in House: We Must Keep Fighting
Advocacy
Advocacy
Roadmap for Advocacy
Advocacy
Roadmap for Advocacy
Advocacy
Advocacy
We stand with The American Society of Hematology (ASH)
Advocacy
We stand with The American Society of Hematology (ASH)
Advocacy
Advocacy
An Important Message From Our CEO
Advocacy
An Important Message From Our CEO
Advocacy
Advocacy
Qfitlia approved as the first therapy in the US to treat hemophilia A or B with or without inhibitors
Treatment
Qfitlia approved as the first therapy in the US to treat hemophilia A or B with or without inhibitors
Treatment
Treatment
What’s Happening with Insurance Companies
Advocacy
What’s Happening with Insurance Companies
Advocacy
Advocacy
Meet Connor
Meet Connor
The Greatest Paradox To Growth and Fulfillment
Mental Health
The Greatest Paradox To Growth and Fulfillment
Mental Health
Mental Health
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Advocacy
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Advocacy
Advocacy
Reflections on the 2025 Sanofi Patient Advocacy Council
Advocacy, Stories
Reflections on the 2025 Sanofi Patient Advocacy Council
Advocacy, Stories
Advocacy, Stories
Pfizer Discontinues Gene Therapy for Hemophilia B
Treatment, Gene Therapy
Pfizer Discontinues Gene Therapy for Hemophilia B
Treatment, Gene Therapy
Treatment, Gene Therapy
Marie Ferrell
Women
Marie Ferrell
Women
Women
Izzy
Women
Izzy
Women
Women
Captain Bill Patsakos
Stories
Captain Bill Patsakos
Stories
Stories
Cyberbullying and Social Media
Mental Health
Cyberbullying and Social Media
Mental Health
Mental Health
The Beats Program
Beats
The Beats Program
Beats
Beats
THE WORLD OF WORK
Advocacy
THE WORLD OF WORK
Advocacy
Advocacy
Hemophilia B Classifications for Women
Women
Hemophilia B Classifications for Women
Women
Women
Federal Funding and Hemophilia Treatment Centers
Advocacy
Federal Funding and Hemophilia Treatment Centers
Advocacy
Advocacy
Ashley Zebley
Women
Ashley Zebley
Women
Women
Heidi
Women
Heidi
Women
Women
Rare Pediatric Disease & Priority Review Vouchers
Advocacy, Stories
Rare Pediatric Disease & Priority Review Vouchers
Advocacy, Stories
Advocacy, Stories
Getting to Know Dr. David Clark
Getting to Know Dr. David Clark
Hemlibra for Hemophilia B!?
Treatment
Hemlibra for Hemophilia B!?
Treatment
Treatment
Prophylaxis for Mild or Moderate Hemophilia B 
Treatment
Prophylaxis for Mild or Moderate Hemophilia B 
Treatment
Treatment
Cognitive & Behavioral Outcomes
Mental Health
Cognitive & Behavioral Outcomes
Mental Health
Mental Health
Heavy Menstrual Bleeding
Women
Heavy Menstrual Bleeding
Women
Women
Quality of Life
Women, Mental Health
Quality of Life
Women, Mental Health
Women, Mental Health
Depression, Anxiety, and Fatigue
Women, Mental Health
Depression, Anxiety, and Fatigue
Women, Mental Health
Women, Mental Health
Distribution of Alprolix in the Blood Vessel Wall
Treatment
Distribution of Alprolix in the Blood Vessel Wall
Treatment
Treatment

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Explore the Hemo B Glossary

The Hemophilia B Glossary of Terms is a comprehensive resource designed to enhance understanding and communication for patients, families, and healthcare professionals.

Popular Communities

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Parenting Networks

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A young woman with a backpack smiling in the foreground, with a family in the background standing on a coastal cliff. The ocean and rock formations are visible in the distance.
Cover of "Hemophilia B News" Fall 2023 issue from The Coalition for Hemophilia B, featuring a DNA helix with a person inside and mentions of women’s, men’s, and partners’ retreats. Headlines include "My Gene Therapy Journey" and topics on community, personal reflections, and achievements.

Newsletters & Publications

Stay informed and connected with Hemophilia B News, where you'll find the latest updates, essential resources, and inspiring stories from within the community.