Upcoming Events

Gene Therapy Rap Sessions

For men with hemophilia B over 18.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming

2025 Dates

  • 5/13/2025

  • 5/29/2025

  • 6/10/2025

  • 7/2/2025

  • 7/15/2025

  • 8/5/2025

  • 8/26/2025

  • 9/16/2025

  • 9/30/2025

  • 10/16/2025

  • 10/27/2025

  • 11/13/2025

  • 11/24/2025

  • 12/9/2025

Filtering by: “retreats”

Virtual Men's Fall Retreat
Oct
29
to Oct 31

Virtual Men's Fall Retreat

Men’s Fall Education & Empowerment Retreat - Virtual

Join us as we bring together our community's blood brothers to share issues we are dealing with and to learn from each other. All men will benefit from the enhanced camaraderie. You'll have the extraordinary opportunity of being with others who share your condition and challenges. If you're a father, you can join other dads who have already found this experience to be very valuable, as you learn to better parent your child with hemophilia B. With shared perspectives, you'll gain an incredibly strong network of support.

At our Men's Retreat, you'll join our community with its range of diverse backgrounds and experiences. We come together in a brotherhood, defined by the common denominator of the bleeding disorder that has changed our lives. We nurture old friendships and form new connections, as we share our strength and support each other as part of our network, not only during the retreat but on an ongoing basis. You will feel empowered by the journey and you will stand ready to deal with life’s challenges.

Eligibility: Adults, ages 21 and over, living with hemophilia B, including affected men, as well as fathers of affected children, and spouses of affected individuals.

Dates: October 29-31, 2021

Deadline Dates: October 15, 2021

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