Jerry’s voice is clear: visibility matters. In sharing his experience with hemophilia B, he reminds us why personal stories are essential to driving understanding, connection, and change.
For more than 30 years, Dr. David Clark has been a cornerstone of the hemophilia B community. His research, advocacy, and dedication continue to drive progress, and remind us what compassionate leadership looks like.
Cuando todo parecía abrumador, Danelie encontró luz en la comunidad de hemofilia B. Escucha cómo la comunidad, la compasión y la defensa sacaron adelante a su familia.
Donnie Akers Jr., J.D., has spent years advocating for the bleeding disorders community. In this video, he shares the unique challenges we face, and why overcoming them requires unity, action, and unwavering support for one another.
When Carl speaks, people listen. His story reveals the quiet strength behind every challenge and the courage it takes to keep showing up, not just for himself, but for the whole community.
Meet Cyndi, Mike, Ryan, Andrew, and Alex, a family who’ve faced hemophilia B head-on and emerged with stories of courage, love, and advocacy. Their experiences remind us what it means to belong, to endure, and to rise together.
Meet Jacqui Maddix, part of our incredible community, sharing her journey, strength, and the impact of being part of the Coalition for Hemophilia B.
Meet Mandy and Ryan Aberegg, part of our incredible community, sharing their journey, strength, and the impact of being part of the Coalition for Hemophilia B.
Hemophilia Stories That Inspire
Meet Ashley Zebley, part of our incredible community, sharing her journey, strength, and the impact of being part of the Coalition for Hemophilia B.
Hemophilia Stories That Inspire
Meet Matt Marlatt, part of our incredible community, sharing his journey, strength, and the impact of being part of the Coalition for Hemophilia B.