Upcoming Events
Gene Therapy Rap Sessions
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming
2025 Dates
5/13/2025
5/29/2025
6/10/2025
7/2/2025
7/15/2025
8/5/2025
8/26/2025
9/16/2025
9/30/2025
10/16/2025
10/27/2025
11/13/2025
11/24/2025
12/9/2025
Let’s Play Nine Golf Fundraiser
Every year we choose a few of our community members to play golf for this worthy cause!
The Town’s 18-hole, par 70, championship course is situated on 121 perfectly manicured acres with narrow fairways, water holes, sand and grass bunkers, putting green, and turn-of-the-century Mansion at Oyster Bay.
You must be fully vaccinated to participate. If your vaccine was in January, we recommended a boost shot especially for those who are immunocompromised.
Date: October 19, 2021
8:30 am Registration/Warm-up
9am Breakfast (outdoors)
10am Tee Time
2pm Cocktail Hour
3pm Awards Luncheon (outdoors) with special presentation by Perry Parker (pro PGA Golfer & teaching pro)
Raffles to follow.
The wonderful and popular game of golf is one of the few sports those living with hemophilia can safely enjoy. Through our golf fundraiser — and your generous donations — we are able to provide golf education and access to children within our hemophilia community so they can experience this fun, social activity and its many healthy benefits. Funds raised also benefit the BCares patient assistance program.
Highlights:
18 Hole Scramble!
Contests! Closet to the Pin, Longest Drive, Hole in One
Dri-FIT Polo Shirt!
Goodie Bags!
Breakfast, Awards Luncheon, and Raffle Prizes!
Meals Outdoors!
Free Parking!
Learn more about the cause you’ll be supporting: Let’s play nine golf scholarship