Advocacy

We’re all in this together.

Advocacy is how this community expresses our “B Voice” in asking our elected officials and other leaders for what we need to live happy, healthy lives. There are several ways you can get involved and express YOUR B voice!

Our B Voice advocacy blog tracks developments related to the Affordable Care Act and speaks out on issues like the Children's Health Insurance Program (CHIP) and charitable premium assistance. You can also register as an advocate and join our advocacy efforts.

Become an Advocate.

We need members of the hemophilia B community to advocate for access to affordable care. This includes participating in email campaigns, visiting state capitals, and/or attending NHF's annual Washington Days event. Please fill out the form below to join our advocacy efforts.

Advocacy News

We want to keep you informed of the issues that underscore why advocacy matters. Check this page periodically for news and information. Consider getting involved by registering as an advocate.