Resilience and Radical Curiosity: How Families Can Grow Through Awe

Parenting a child with hemophilia B comes with unique challenges—but you don’t have to navigate them alone. Join us for an engaging and supportive discussion, co-hosted by two experienced parents and an expert speaker, where you’ll find a safe space to ask questions, share concerns, and connect with others who understand.

Together, we’ll explore topics like managing the emotional impact of a diagnosis, effective communication with providers and educators, strategies to ease anxiety, and ways to build a lasting support system. Whether you're new to the journey or preparing for the next stage, this session will leave you informed, empowered, and supported.

Come as you are—because no parent should have to figure it all out alone.

Expert Speaker: Tiffani P, CHB HOST & Speaker, Meaghan Carty, CSL Behring

Resilience and Radical Curiosity: How Families Can Grow Through Awe with Deborah Farmer Kris

What if resilience isn’t about grit, but about awe? Parenting expert and author Deborah Farmer Kris will lead this workshop on the power of awe and curiosity to strengthen families navigating the challenges of chronic conditions. Through practical strategies and heartfelt reflections, participants will explore how everyday wonder can reduce stress, foster connection, and support both children and caregivers.

Expert Speaker - Deborah Farmer Kris

Deborah Farmer Kris is a child development expert and the author of "Raising Awe-Seekers: How the Science of Wonder Helps Our Kids Thrive,” the I See You board book series, and the All the Time picture book series.

Her bylines include CNN, PBS KIDS, NPR’s Mindshift, The Washington Post, the Boston Globe Magazine, and Oprah Daily. Deborah is currently an expert advisor for the PBS KIDS show, “Carl the Collector,” and spent 20+ years as a K-12 educator. Mostly, she loves sharing nuggets of practical wisdom that can make the parenting journey a little easier.

Community Host - Ashley Zebley

Ashley Zebley is a woman diagnosed with hemophilia B. Her lifelong connection to the community began with her father, who lived with severe hemophilia B, and continued with her own diagnosis and lived experiences of bleeding challenges and multiple surgeries. Now raising three daughters, Ashley is passionate about education, advocacy, and supporting the next generation. Active with the Coalition for Hemophilia B and women’s programs nationwide, she shares her story to raise awareness, strengthen families, and help caregivers navigate life with hemophilia.