Privacy Policy for The Coalition for Hemophilia B

1. Introduction

The Coalition for Hemophilia B ("we", "us", "our") is committed to protecting the privacy of our visitors and users ("you"). This Privacy Policy outlines our practices concerning the collection, use, and disclosure of your information through the use of our website, www.hemob.org (the "Site"). By accessing or using our Site, you agree to the terms of this Privacy Policy.

2. Information Collection

Personal Information: We collect personal information that you voluntarily provide to us, such as your name, email address, postal address, phone number, and other contact details when you sign up for our newsletter, donate, or participate in our activities and programs.

Non-Personal Information: We automatically collect non-personal information about your visit, including your browser type, access times, and the pages you viewed directly before and after accessing the Site. This information is used to understand more about how our Site is used and to improve our services.

3. Use of Information

The information we collect is used in the following ways:

- To provide you with personalized content and access to our services;

- To communicate with you about our programs, services, and events that may be of interest;

- To process donations and applications;

- To comply with legal obligations and to protect against legal liability.

4. Disclosure of Information

We do not sell, trade, or rent your personal information to others. We may share information with third-party service providers who perform services on our behalf based on our instructions. We may also disclose your information if required by law, or if we believe that such action is necessary to comply with a current judicial proceeding, a court order, or legal process served on our website.

5. Data Security

We implement appropriate security measures to protect against unauthorized access to or unauthorized alteration, disclosure, or destruction of data. We restrict access to personal information to our employees, contractors, and agents who need to know that information in order to operate, develop, or improve our services.

6. Children’s Privacy

Our Site is not intended for children under the age of 13. We do not knowingly collect personal information from children under 13. If we become aware that a child under 13 has provided us with personal information, we take steps to remove that information and terminate the child's account.

7. External Links

The Site may contain links to other websites. Please be aware that we are not responsible for the privacy practices of such other sites. We encourage our users to be aware when they leave our Site and to read the privacy statements of each and every website that collects personally identifiable information.

8. Changes to This Privacy Policy

We may update this Privacy Policy from time to time. We will notify you of any changes by posting the new Privacy Policy on this page. You are advised to review this Privacy Policy periodically for any changes.

9. Contact Us

If you have any questions about this Privacy Policy, the practices of this site, or your dealings with this site, please contact us at:

**The Coalition for Hemophilia B**

757 Third Avenue

New York NY 10017

Email: contact@hemob.org

Phone: 212-520-8272

This document was last updated on June 5, 2024

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