2026 Symposium Surveys
On behalf of The Coalition for Hemophilia B, we want to thank you for attending the 2026 Annual Symposium
Your Feedback Matters
Your voice helps shape the future of Symposium. Every response gives us valuable insight into what’s working, what can improve, and how we can better serve our community. We truly value the time you take to share your experience.
Feedback Raffle – How It Works
Complete the Overall Event Survey and any Session Surveys for sessions you attended
Each survey submission = 1 raffle entry
The more feedback you submit, the more chances you have to win
One win per person
One $50 gift card winner drawn each week in May
Name and email are optional for feedback, but required to enter the raffle
Thank you for helping us improve and grow!
Overall Event Survey
CLICK HERE
Session Surveys
April 9th - Thursday
50+ Community Welcome Presented by the Coalition Karen Boyd, LMSW and David Rushlow, LMSW - Take Survey
Bienvenida Para Familias Latinas Patrocinado por Pfizer - Take Survey
Breakfast Presentation - Steps to Gene Therapy Treatment - Take Survey
Building a Garden of Eden? No Instruction Manual Required - Survey Link
Caregivers & Family Welcome Presented by the Coalition - Survey Link
A Seat at the Table: The Power of Your Voice - Survey Link
Healing Hands Couples Workshop - Survey Link
Inhibitors Community Welcome Sponsored by HEMA Biologics - Survey Link
Lunch Presentation Cracking the Code: Your Mission to Informed Hemophilia B CareSponsored by Sanofi - Survey Link
Men’s Gathering Sponsored by Medexus Pharma - Survey Link
Nervous System Reset Sound Bath - Survey Link
Women’s Gathering Sponsored by Medexus Pharma - Survey Link
April 10th - Friday
A Hemophilia B Gene Therapy Conversation - Survey Link
A View from the Hill: How Protected Is Our Community Today? - Survey Link
Acceso y Equidad en el Tratamiento de la Hemofilia B:Survey Link
AI Made Easy: Practical AI for Real Life and Real Work:Survey Link
Beach Volleyball withKevin Harris: Survey Link
Breakfast Presentation IDELVION- Celebrating 10 Years!Sponsored by CSL: Survey Link
Clot Quest: Play Your Way Through The Clotting Cascade Sponsored by Sanofi: Survey Link
Creating an Environment of Psychological Safety: Survey Link
Cuando La Vida Da Una Sorpresa: Herramientas Para Cambios Que No Viste Venir: Survey Link
Dinner Presentation: Making the Most of HTC Visits: Real Stories and Self-Advocacy TipsSponsored by Sanofi - Survey Link
Genetics of Hemophilia B with Jill Johnsen, MD - Survey Link
Gentle Yoga with Singing Bowls - Survey Link
Iron Deficiency: Prevention and Resolution as a Metric of Therapy Success - Survey Link
Storytelling That Sticks - Survey Link
Hemophilia Update 2026: Do You Want a Cure?:Survey Link
Your health. Your path. Your power -Survey Link
Learn More About Pfizer’s Commitment to the Hemophilia Community and Its Treatment OptionswithBrad Schoenfeld Sponsored by Pfizer Survey Link
Life Didn't Ask with First Patricia Lozano, LPC - Survey Link
Lunch Presentation, Say Hello to an Option for Adults and Adolescents Who Have Hemophilia B and Hemophilia with InhibitorsSponsored by Novo Nordisk - Survey Link
Mantener la Calma es Bueno para tu Salud: Cómo el Enojo y el Estrés Pueden Afectar tu Cuerpo: Survey Link
Navigating Treatment Choice in the Era of Novel Therapies and Gene Therapy withBrian O Mahony, FACSLM: Survey Link
Publishing Your First Book or Blog: Turning Your Hemophilia Journey into Impact: Survey Link
Speak Up: A Guided Community Conversationwith Lee Hall: Survey Link
Team Us! Karen Boyd, LMSW and David Rushlow, LMSW: Survey Link
Wonderful World of Metamorphosis withLee Kim and Dana Attar: Survey Link
Your Life, Your Rights: Navigating Work, Insurance, and Independence with Donnie Akers, Jr., JD: Survey Link
April 11, Saturday
Breakfast Presentation: Join Us for an Educational Session on HYMPAVZI (marstacimab-hncq) Sponsored by Pfizer with Doris V. Quon, MD, PhD: Survey Link
Build Your Metabolic ParfaitwithVanessa Harris, MNT: Survey Link
Helping Others, Healing Ourselves: The Mental Health Benefits of Altruismwith Debbie De La Riva, LPC: Survey Link
Infuse with Hope & The Power of KinesiologySponsored by the Montana HART Boys Hope Woodcock-Ross RN, BSN and Douglas Stringham MS, LAT, ATC:
Survey Link
Product and Treatments Landscape Panel Moderator: David Clark, PhD, Bryan Anthony, PhD, Carlos Estevez, MD, CMD, MSKatie Tuckwell, PhD, BSC: Survey Link
When AI Becomes the Therapist: What Parents and Adults Should Know About the Benefits and Risks with Mina Nguyen-Driver, PsyD: Survey Link
La Vida No Pidió Permiso:Survey Link
Menstrual Pain is Not Normal: Dismissal, Advocacy, and the Power of Empathy with Alexis Halloran: Survey Link
Mueve tu cuerpo. Tu casa, tus reglas, Miguel Rosales: Survey Link
Provider Connections After Medical TraumawithG Shellye Horowitz, MA, PPS: Survey Link
Saturday Kickoff with Elec Simon: Survey Link
Stroke and Head Injury: What the Bleeding Disorders Community Needs to Know Sponsored by CVS SpecialtywithRuth Martinez, MSN, RN-BC: Survey Link
Tai Chi and Qigong withRick Starks: Survey Link
Legal Q&A with Donnie Akers: Survey Link