We have over 30 years experience in hemophilia B addressing unmet needs in our community. Our approach is hands-on and family-oriented because hemophilia affects the whole family. We are dedicated to fostering a diverse, equitable, and inclusive experience for everyone across our organization, both internally and externally.

Meet our team

Dr. Dave Clark, Chairman

Dave Clark, PhD, has served as chair of the Coalition for over 10 years and has written much of the technical content of our newsletters for over 20 years. As a researcher, he has been involved with factor IX since 1982, when he joined the American Red Cross, Plasma Derivatives.
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Wayne Cook, President

Wayne is a lifetime mentor to the hemophilia B community and has been president of the Coalition for over 10 years. Diagnosed with the condition at age six, he is dedicated to using his experiences to improve the quality of life of all affected by hemophilia B. He urges the community to “get out there, get involved, and enjoy living life to its fullest.”
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Kim Phelan, Chief Operating Officer

Kim is a rare individual whose compassion is matched only by her passion. She has brought her unique knowledge, skills, and experience to the Coalition for Hemophilia B since its inception. While she now serves as the organization’s COO, her leadership role in the community defies any single title or description. Many people know Kim as a teacher, adviser, mentor, sister, and friend. Through her leadership and vision, the Coalition has expanded continuously to empower and educate patients and families to live their best lives.
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