Hemophilia B News

Winter 2023

  • Turning A No to A Yes - The Art of Advocacy

  • Dana’s Living Her Life With No Regrets

  • The Squeeze Is On The Health Care Middlemen

Recent Publications

Past Publications

Fall 2023

  • Finding Community Through Parenting

  • Gene Therapy Journey

  • Event Recaps

Otoño 2023: En Español

  • Encontrar comunidad a través de la crianza de los hijos

    Viaje de terapia génica

    Recapitulación de eventos

Summer 2023

  • Current Products for Hemophilia B

  • The World Of Work

Verano 2023: En Español

  • Productos actuales para Hemofilia B

  • El mundo del trabajo

Spring 2023

  • Symposium 2023 Recap

  • Navigating Live: A Journey of Diagnosis, Care, and Personal Growth

Primavera 2023: En Español

  • Simposio 2023 Resumen

    Navegando en vivo: un viaje de diagnóstico, cuidado y crecimiento personal

Winter 2022

  • Emerging Therapies

  • Scholarship Applications Now Open

Invierno 2022: En Español

  • Terapias Emergentes

  • Solicitudes de becas ya abiertas

Fall 2022

  • Save the Date: 2023 Symposium

  • Historic FDA Approval

  • Emerging Therapies

Otoño 2022: En Español

  • Guarde la fecha: Simposio 2023

  • Aprobación histórica de la FDA

  • Terapias emergentes

Summer 2022

  • An evening of celebration

  • Empowerment and Retreats

Verano 2022: En Español

  • Empoderamiento y Retiros Una tarde de celebración

Spring 2022

  • Symposium

  • Emerging Therapies

Primavera 2022: En Español

  • Simposio

  • Terapias emergentes

Winter 2021

Hemophilia B News Winter 2021

  • Making decisions under stress

  • New Hemophilia B classifications for women

Invierno 2021: En Español

  • RECORDANDO A VAL BIAS

Fall 2021

Otoño 2021: En Español

  • The Beats Goes On!

  • Behind the Hemophilia B Diagnosis

  • The Beats Continuan

  • El Arte de Pivotar

Winter 2021

  • Meet Two Sets of Twins

  • Advocacy Update

Verano 2021: En Español

  • Conozca a Dos Conjuntos de Gemelos

  • Actualización de Defensa

Spring 2021

  • Living your best life

  • Health news about Hemophilia B

Primavera 2021: En Español

  • Logrando una Mejor Vide

  • Noticias de salud sobre la hemofilia

Community news.

Featured
CHB Action Alert for Copay Accumulator
CHB Action Alert for Copay Accumulator
Turning a No to a Yes—The Art of Advocacy
Turning a No to a Yes—The Art of Advocacy
Dana’s Living Her Life with No Regrets - Embracing Life with Hemophilia B and Finding Joy in Family Adventures
Dana’s Living Her Life with No Regrets - Embracing Life with Hemophilia B and Finding Joy in Family Adventures
Ask Jen: How do I travel with medications for hemophilia?
Ask Jen: How do I travel with medications for hemophilia?
Sew Connected! From Hemophilia Advocate to Fashion Innovator
Sew Connected! From Hemophilia Advocate to Fashion Innovator
Ask Jen: How do I get my doctor to take me seriously?
Ask Jen: How do I get my doctor to take me seriously?
Hemophilia Landscape Updates - February 2024
Hemophilia Landscape Updates - February 2024
Intradermal Injection Can Cause Inhibitor Development
Intradermal Injection Can Cause Inhibitor Development
Hemophilia Emerging Therapies - January 2024
Hemophilia Emerging Therapies - January 2024
Current Products for Hemophilia B Treatment
Current Products for Hemophilia B Treatment

Archive.