The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
Become a Member!
Membership is free, and if you sign up you will receive our quarterly newsletter, all lotto forms for retreats, and be able to apply for patient & travel assistance grants, plus so much more. Join today!
Portland, ME Family Meeting
April 14. Details on Our Events Page
Birmingham, AL Family Meeting
May 19. Detail on our Events Page
Join Us in Advocacy.
Why advocate for the B community? We have six good reasons. Read more ...
BScene: Hillary Goldrick
Find information on treatment, scholarships, insurance assistance, and more. We also offer online articles as well as several booklets and DVDs that can be sent to you free of charge.
Keep up-to-date with the Coalition and news relevant to the hemophilia community. We also publish quarterly Factor IX News, the only newsletter of its kind!
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 25 years’ experience with hemophilia B. Read the story of our founding!
Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.