The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
Summer 2017 Newsletter
click above to read the SUMMER 2017 NEWSLETTER!
Ohio Family Meeting
Meetings on the Road Registration
Saturday, September 16th
SATURDAY, SEPTEMBER 23RD
SATURDAY, SEPTEMBER 23RD
Please sign up for the meeting at the link above before reserving a room. If you would like to reserve a room you can do so at the link below or you can call (734) 996-0600
SATURDAY, OCTOBER 7TH
SATURDAY, NOVEMBER 4TH
SATURDAY, NOVEMBER 4TH
SATURDAY, NOVEMBER 11TH
Please sign up for the meeting at the link above before reserving a room. If you would like to reserve a room you can do so at the link below or you can call (480) 502-3836.
SATURDAY, NOVEMBER 11TH
Save the Dates 2017
Generation IX Application
Featured Video
BScene: Hillary Goldrick
Helpful Resources
Find information on treatment, scholarships, insurance assistance, and more. We also offer online articles as well as several booklets and DVDs that can be sent to you free of charge.
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Important News
Keep up-to-date with the Coalition and news relevant to the hemophilia community. We also publish "Quarterly Factor IX News", the only newsletter of its kind!
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 25 years’ experience in hemophilia B. Find out about our founding story!
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Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.
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Donate
You can further the important mission of the Coalition for Hemophilia B and help provide more programs, resources, and support to the hemophilia community.
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“Even if I am only like a little mouse, taking bites around the edge of the cheese, I feel eventually I am going to make a difference. It is going to take a lot of bites and a fair amount of time, but it will happen. Meanwhile, we’ll keep biting away”