The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century

The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.

Register for Our March 2018 Events.
Join us in advocacy.
help us raise bleeding disorder awareness!

11th Eternal Spirit Award Dinner

March 1, Terrace on the park, NYC, Supporting our education programs

2018 William N. Drohan Scholarship

Deadline extended to February 23. Download the application.

Portland, ME Family Meeting

April 14: Details on our events page

Our first Meeting on the Road for 2018. More announcements soon...

Our first Meeting on the Road for 2018. More announcements soon...

12th Annual Symposium 

March 23 – March 25
Golf Fundraiser on March 22
Sawgrass Marriott Golf Resort, Fl

Winter 2018 Newsletter

Download our Latest issue and
Get Past newsletters in our archives

Featured Video

BScene:  Hillary Goldrick

Helpful Resources
Find information on treatment, scholarships, insurance assistance, and more. We also offer online articles as well as several booklets and DVDs that can be sent to you free of charge.
More Info

Important News
Keep up-to-date with the Coalition and news relevant to the hemophilia community. We also publish quarterly Factor IX News, the only newsletter of its kind!
More Info


Contact the Coalition, follow us on social media, and view our YouTube channel to connect with us and other members of the hemophilia B community.
More Info

With a family-oriented and hands-on approach, we interact daily with the hemophilia community, offer educational symposiums, family meetings, support groups, retreats, and much more. 
More Info

Expert Team
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 25 years’ experience with hemophilia B. Read the story of our founding!
More Info

We seek to educate, ensure access to the highest standard of care, and empower people with hemophilia, and their families, to advocate on their own behalf.
More Info

Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.
More Info

You can further the important mission of the Coalition for Hemophilia B and help provide more programs, resources, and support to the hemophilia community.
More Info

Even if I am only like a little mouse, taking bites around the edge of the cheese, I feel eventually I am going to make a difference. It is going to take a lot of bites and a fair amount of time, but it will happen. Meanwhile, we’ll keep biting away.
— John Taylor, founder