The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century

The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.


Become a Member!

Membership is free. Complete our membership form and you will receive our quarterly newsletter and an official welcome kit. You'll also be able to apply for patient & travel assistance grants and so much more. And if you want a T-shirt, just tell us your size. Join today!


Pittsburgh Family Meeting

Saturday September 22. More Details on our Events page.


Register NOW for October & November Meetings on the Road

Charlotte NC, October 6. Read more.
Albuquerque NM, October 6. Read more.
Richmond VA, November 10. Read more.
Denver CO: November 10. Read more.
 


Gen IX Advocacy

September 20-23 in Michigan Woods, ages 20+ Applications due August 3. 


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Easy Listening to stay Happy & Healthy

Apply Now for Travel Grant to Our 2019 Annual Symposium

Deadline is September 15, 2018, to request a travel grant for airfare and three nights' hotel. The 2019 symposium will be held Thursday March 14 - Sunday March 17 at the Renaissance Orlando at SeaWorld. Download the application here.

Click picture for travel grant form

Watch our Events page for news about Symposium 2019


Winter 2018 Newsletter

Past issues available in our archives



Join Us in Advocacy

Why advocate for the B community? We have six good reasons.

Speak Out on Current Issues ... Read More.


Featured Video

BScene:  Hillary Goldrick


Helpful Resources
Information on treatment, scholarships, insurance assistance, and more. We also offer several booklets and DVDs that can be sent to you free of charge.
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Important News
Keep up-to-date with relevant news for the hemophilia community. We  publish quarterly Factor IX News, the only newsletter of its kind!
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Interact
Contact the Coalition and follow us on social media to connect with us and other members of the hemophilia B community.
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Programs
With a family-oriented and hands-on approach, we interact daily with the hemophilia community online and  through educational symposiums, family meetings, support groups, and retreats. 
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 27 years’ experience with hemophilia B. Read the story of our founding!
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Mission
We seek to educate, ensure access to the highest standard of care, and empower people with hemophilia, and their families, to advocate on their own behalf.
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Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.
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Donate
You can further the important mission of the Coalition for Hemophilia B and help provide more programs, resources, and support to the hemophilia community.
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Even if I am only like a little mouse, taking bites around the edge of the cheese, I feel eventually I am going to make a difference. It is going to take a lot of bites and a fair amount of time, but it will happen. Meanwhile, we’ll keep biting away.
— John Taylor, founder