The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
Become a Member!
Membership is free, and if you sign up you will receive our quarterly newsletter, all scholarship forms for retreats, and be able to apply for patient & travel assistance grants, plus so much more. Join today!
Pittsburgh Family Meeting
Saturday September 22. Register online NOW. Details on our Events page.
Join Us in Advocacy
Why advocate for the B community?
We have six good reasons.
Speak Out on Current Issues ... Read More.
Save the Date: 2019 Annual Symposium
Thursday March 14 - Sunday March 17
Renaissance Orlando at SeaWorld
More details will be announced soon on our Events Page
Featured Video
BScene: Hillary Goldrick
Helpful Resources
Find information on treatment, scholarships, insurance assistance, and more. We also offer online articles as well as several booklets and DVDs that can be sent to you free of charge.
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Important News
Keep up-to-date with the Coalition and news relevant to the hemophilia community. We also publish quarterly Factor IX News, the only newsletter of its kind!
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 25 years’ experience with hemophilia B. Read the story of our founding!
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Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.
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Donate
You can further the important mission of the Coalition for Hemophilia B and help provide more programs, resources, and support to the hemophilia community.
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“Even if I am only like a little mouse, taking bites around the edge of the cheese, I feel eventually I am going to make a difference. It is going to take a lot of bites and a fair amount of time, but it will happen. Meanwhile, we’ll keep biting away.”