The Coalition for Hemophilia B strives to make quality of life the focal point of treatment for individuals with Hemophilia B in the 21st century
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
Become a Member!
Membership is free. Complete our membership form and you will receive our quarterly newsletter and an official welcome kit. You'll also be able to apply for patient & travel assistance grants and so much more. And if you want a T-shirt, just tell us your size. Join today!
Pittsburgh Family Meeting
Saturday September 22. More Details on our Events page.
Register NOW for October & November Meetings on the Road
Charlotte NC, October 6. Read more.
Albuquerque NM, October 6. Read more.
Richmond VA, November 10. Read more.
Denver CO: November 10. Read more.
Gen IX Advocacy
September 20-23 in Michigan Woods, ages 20+ Applications due August 3.
Recommended Podcast
Apply Now for Travel Grant to Our 2019 Annual Symposium
Deadline is September 15, 2018, to request a travel grant for airfare and three nights' hotel. The 2019 symposium will be held Thursday March 14 - Sunday March 17 at the Renaissance Orlando at SeaWorld. Download the application here.
Click picture for travel grant form
Watch our Events page for news about Symposium 2019
Spring 2018 Newsletter
Past issues available in our archives
Join Us in Advocacy
Why advocate for the B community? We have six good reasons.
Speak Out on Current Issues ... Read More.
Featured Video
BScene: Hillary Goldrick
Helpful Resources
Information on treatment, scholarships, insurance assistance, and more. We also offer several booklets and DVDs that can be sent to you free of charge.
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Important News
Keep up-to-date with relevant news for the hemophilia community. We publish quarterly Factor IX News, the only newsletter of its kind!
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Expert Team
Guided by a board of researchers, doctors, lawyers, parents, and patients, our team has over 27 years’ experience with hemophilia B. Read the story of our founding!
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Important Facts and FAQs
Learn more about hemophilia B: the condition, its transmission, treatment options, and more.
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Donate
You can further the important mission of the Coalition for Hemophilia B and help provide more programs, resources, and support to the hemophilia community.
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“Even if I am only like a little mouse, taking bites around the edge of the cheese, I feel eventually I am going to make a difference. It is going to take a lot of bites and a fair amount of time, but it will happen. Meanwhile, we’ll keep biting away.”