Who We Are
Our Mission.
The Coalition for Hemophilia B, Inc., strives to make quality of life the focal point of treatment for people with hemophilia B and their families through education, empowerment, advocacy, and outreach.
For 30 years we have pursued our mission through a family-oriented approach—because hemophilia is a disease that affects the whole family. Our programs bring patients with hemophilia B together from all over the USA, connecting them with their common bond and empowering them to gain support, lifetime friends, and the knowledge needed to make important life decisions and to act as advocates on their own behalf. Hemophilia B doesn’t discriminate. The Coalition for Hemophilia B is a national non profit that is dedicated to fostering a diverse, equitable, and inclusive experience for everyone across our organization, both internally and externally. Our team members have decades of experience in hemophilia B and interact daily with the hemophilia community via phone, email, social media, and the web.
Together foster a community for those with hemophilia b.
Community.
We were founded to tackle unmet needs in the hemophilia community, and we interact daily with community members by phone, email, social media, and the web.
Resources.
We offer educational, community-building, and assistive resources for every demographic group including men, women, couples and youth.
Education.
Our initiatives include our annual educational Symposium, regional Meetings on the Road, retreats, and scholarship opportunities.
Experiences.
Our extremely popular events bring families together to share experiences when living with hemophilia and create opportunities for mutual support and mentorships.
OUR COMMITMENT TO INCLUSIVITY
The Coalition for Hemophilia B, Inc. (CHB) is a national non profit committed to creating a welcoming and inclusive environment for our entire community.
In accordance with applicable federal and state laws and organization policies and practices, CHB does not discriminate on the basis of race, color, national origin, religion, gender or gender identity, sexual orientation, disability, age, genetic or medical status, ancestry, marital status, citizenship, or status as a veteran. The Coalition also prohibits sexual harassment. This policy covers employees, employee applicants, members, volunteers, vendors, contractors, and participants in programs and activities. Alleged violations of this policy should be reported to a senior staff member or to a member of our Board of Directors so appropriate action may be taken.