Upcoming Events
Men's Education & Empowerment Seminar - Las Vegas
The Hemophilia B Men’s Education & Empowerment Seminars are an outstanding success for men with hemophilia B, fathers of children with hemophilia, and spouses! This is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support.
The Beats
Join us for an extraordinary event that harmonizes the healing power of music with the unique talents of our hemophilia B community at The Beats, a specially crafted program tailored for those who have found solace and joy in music. Backed by scientific evidence of music's therapeutic benefits, coupled with a recent survey revealing a shared inclination towards music among our members, The Beats aims to nurture and empower individuals using music as a form of self-expression. This exceptional initiative provides a platform for our community to learn from seasoned professionals and each other, fostering skill development, boosting confidence, and creating lasting connections.
Join us for a symphony of support, growth, and friendship. Apply HERE today! Applications are due March 27, 2024.
Men's Education & Empowerment Seminar - Orlando
The Hemophilia B Men’s Education & Empowerment Seminars are an outstanding success for men with hemophilia B, fathers of children with hemophilia, and spouses! This is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support.
B Hub Movie Night
We’re so excited to be screening @BelieveLimited’s latest documentary for our next B Hub Movie Night. Join us for Redefining Impossible: Elite Athletes with Hemophilia, on World Hemophilia Day, April 17th!
Foro Latino de Hemofilia B
Ricardo Ramirez is a husband, father, grandfather… and ultramarathon runner with severe hemophilia B. In this casual question and answer session, you’ll learn more about his personal hemophilia B journey, but also how he manages to do ultra-marathons, including completing BADWATER 135 in Death Valley in 2022. His current goal is 900 miles in 12 months – a goal he set last November on his birthday! Join us and find out how many miles he’s covered so far and why “900”.
Register HERE today!
Parenting Support: Newborn to Empty Nest
For parents and caregivers, whether familiar with hemophilia B or not, the diagnosis of a child is traumatic, raising many questions. Co-hosted by two experienced parents and a guest expert speaker, this series provides a safe space for sharing concerns and seeking options.
Register HERE today!
Ready for Anything: Emergency Preparedness
Ready for Anything: Emergency Preparedness
Emergency preparation is essential for our community to safeguard our health and well-being. We will explore the vital steps, strategies, and materials needed to prepare for natural disasters across the United States. From storms and heat waves to earthquakes and tornadoes, we'll tackle the unique challenges and considerations that individuals with Hemophilia B and their loved ones may encounter during emergencies.
Session 2: Preparing for the Unexpected
Join us as we learn techniques for navigating challenges like pandemics, food shortages, natural disasters, and a wide range of disruptions to daily life. Let’s start to prepare for when traditional services may be unavailable, ensuring continuity in emergencies. This session offers a balanced approach to preparedness, exploring the use of valuable tools like go bags, ham radios, and access to government resources. Learn how to establish contingency plans for family members across different states, and lay the foundations now for community support and mutual aid during times of uncertainty.
Register HERE today!
Her Care, Her Choice
Sexual Health and Women with Bleeding Disorders
Women’s health is more than reproductive health. In this presentation, you will learn about the female anatomy and sexual function, along with bleeding disorders and specific complications that may arise. Sexual education is pertinent to those who may not yet be sexually active, those who are currently sexually active, and those who may have been active in the past.
The B Hub Movie Night
Join us for The B Hub's Movie Night March Musical Edition and be a part of selecting our live-stream feature film!
RSVP and cast your vote for the film you want to see light up our screen – it's your chance to shape a night of cinematic magic and musical wonder.
Ready for Anything: Emergency Preparedness
Ready for Anything: Emergency Preparedness
Emergency preparation is essential for our community to safeguard our health and well-being. We will explore the vital steps, strategies, and materials needed to prepare for natural disasters across the United States. From storms and heat waves to earthquakes and tornadoes, we'll tackle the unique challenges and considerations that individuals with Hemophilia B and their loved ones may encounter during emergencies.
Session 1: Safeguarding Our Health in Times of Uncertainty
Join us as we explore the scenarios that may disrupt the lives of medical patients. In today's world, many of us are overly reliant on infrastructure and technology, leaving us unprepared for potential disruptions. Gain insights into tailored preparedness strategies to foster resilience during uncertain times. This session aims to raise awareness, focusing on staying vigilant and taking initial steps to prepare our families for potential challenges. Join us as we promote reflection, sharing, and proactive readiness for an unpredictable future.
Register HERE today!
Strength in Connection - 50 and Over Virtual Series
Join us to explore the importance of building and maintaining muscular strength as you age. With a daily stretch routine, consistent training, and effective recovery methods, you'll discover the joy of movement and unlock your full potential for a healthier, more active lifestyle.
Register HERE today!
Noche de Juegos Virtuales
¡Están invitados a la noche de juegos en enero! ¡Únase a nosotros el jueves 18 de enero a las 7 p. m. para juegos, rifas y vales de comida mientras prueba sus habilidades de trivia con Kahoot! ¡No puedo esperar a verte!
Virtual Game Night
You are invited for game night in January! Join us on Thursday, January 11 at 7pm for games, raffles, and food vouchers while testing your trivia skills with Kahoot! Can’t wait to see you!
Teen Virtual Event with JC
Register today at this link.
Come hang out with other teens for an incredible night of fun! Attendees will be entered in a raffle and will receive food vouchers!
Survive & Thrive: Virtual Mental Health Series
You’re invited to our Survive & Thrive: Virtual Mental Health Series! As we work together, we will look at how all the intricate parts of your life affect your health and well-being as a whole person to create a happy healthy lifestyle with special guests, raffles, and food vouchers!
Click HERE to register today!
2023 Women's Virtual Retreat
Apply today at this link.
Women with hemophilia B have been historically under diagnosed, under-treated, and disregarded by the medical profession based on the false belief that women do not develop bleeding disorders. Women bleeders, and women who parent and care for those with hemophilia B, typically have little time to take care of themselves. Since 2014, this three-day program has provided rare and much- needed education, support, and inspiration to help women live with hemophilia B based on their relationship to it—as patients, mothers of children with the condition, and spouses of someone who has the disorder.
This program creates a safe space for women to find their voice, learn from top- notch experts, build skills to communicate and advocate for themselves and their families, and practice self-care. Participants learn about current and emerging treatments and strategies for managing hemophilia B. They explore wellness, nutrition, exercise, intimacy, mental health, health care management, treatment adherence, and finances. Women come away with strategies to help them live better lives, and they develop bonds of sisterhood that extend well beyond the program.
New Parents and Hemophilia B Support Meetings
As a parent of a young child, newborn to age 4, we invite you to grab a cup of tea or coffee and join new parents, connect with experienced parents who have been there, and build your strong village of support. Includes rap session, hot topics, raffles, food voucher, and a really cool game!
Meeting Dates: 6/29/23, 9/21/23, 10/12/23, 11/16/23.
All meetings will take place from 7-8:30pm EST.
Virtual Career & Financial Workshops
Our very own Dr. April Willis will provide small-group professional coaching in a webinar format! Look no further for the tips, tricks, and guidance that you need to elevate your career. If you can't attend a session, submit your questions ahead of time and watch the recording for the answers. We can't wait to see you in our Zoom sessions as we strategize for your most successful year yet! 7pm-8:30 pm EST!
Click HERE to register today!
Aging with Hemophilia B: 50 and Over Virtual Meeting Series
Topics Include:
• Health issues for those over 50, including spouses needs
• Medicare and insurance
• Staying young, staying fit, and healthy exercise options
• Retirement preparation
• Mental health, stress relief, and mindfulness
• Caring for caregivers and relationship advice
Expert speakers, community games, raffles, rap sessions, and social time
Teen Virtual Event with Muhammad
Register today at this link.
Come hang out with other teens for an incredible night of fun! Attendees will be entered in a raffle and will receive food vouchers!
2023 Generation IX Fall Experience
Apply TODAY at this link.
Applications are due by August 31st!
2023 Men's Retreats
The Hemophilia B Men’s Retreats are an outstanding success for men with hemophilia B, fathers of children with hemophilia, and spouses! This is a unique three-day experience, during which men are given a safe space to share their journey with others and gain support.All men attending benefit from the enhanced camaraderie and learn strategies for managing hemophilia B through all life stages. Attendees continue to stay on the cusp of innovation through the education and resources provided. They are empowered by the journey they take together, provide each other with support not only during the retreat but on an ongoing basis, and stand ready to deal with life’s challenges!
This year’s remaining retreat dates and locations are as follows: October 19 to October 22 (Tennessee).
Applications for the Oct 19-24th Men’s Retreat are CLOSED.
2023 Couples Retreat: In This Together
Successfully weathering the challenges and crises hemophilia B can create requires that couples build strong communication and decision-making skills in their partnerships. In this time of treatment choices of new and emerging therapies, it is critically important for patients and caregivers to have access to knowledge and information.
Our interactive workshops will be led by top experts and assisted by long-term couples in the community who act as mentors. Workshops are designed to empower participants and provide a range of relationship strategies with special focus to ensuring that both partners have a deep understanding of all aspects of hemophilia B, its treatment, and the ways in which it can impact a relationship and overall well being. The program will feature topics of interest to couples such as finance, communication, and community building.
Applications for this year’s Partners/Couples retreat have closed.
2023 Women's In-Person Retreat
Women with hemophilia B have been historically under-diagnosed, under-treated, and disregarded by the medical profession based on the false belief that women do not develop bleeding disorders. Women bleeders, and women who parent and care for those with hemophilia B, typically have little time to take care of themselves. Since 2014, this three-day program has provided rare and much- needed education, support, and inspiration to help women live with hemophilia B based on their relationship to it—as patients, mothers of children with the condition, and spouses of someone who has the disorder.
This program creates a safe space for women to find their voice, learn from top- notch experts, build skills to communicate and advocate for themselves and their families, and practice self-care. Participants learn about current and emerging treatments and strategies for managing hemophilia B. They explore wellness, nutrition, exercise, intimacy, mental health, health care management, treatment adherence, and finances. Women come away with strategies to help them live better lives, and they develop bonds of sisterhood that extend well beyond the program.
Applications for this year’s Women’s In-Person Retreat have closed. Please consider joining us for our 2023 Virtual Women’s Retreat.
2023 Eternal Spirit Awards Gala
We are thrilled to announce the date of our highly anticipated 2023 Eternal Spirit Awards Gala, where we will be honoring two remarkable individuals, Donnie Akers Jr. JD, and Mark Skinner JD. At this very special event, we wholeheartedly believe in embracing our extended family of patients and their loved ones.
The inclusion of families is made possible through the kind-hearted donations of seats we receive. We warmly invite you to apply for attendance, knowing that we will cover your airfare, hotel accommodations, as well as transportation to and from the airport.
We eagerly anticipate an unforgettable evening, where we will come together to honor our esteemed honorees and share this joyous occasion with cherished guests like yourself.
Applications for this year’s Gala have closed.
The Beats
🎶 Calling all musicians ages 13+ for an incredible experience with the Beats in Nashville, TN, this summer! All skill levels are welcome to apply! *Ages 13-14 need to be accompanied by at least one parent.