CHIP Funding at Issue

The Children's Health Insurance Program (CHIP) is a federally funded program that provides health insurance for children of uninsured families who do not qualify for Medicaid. Many families affected by hemophilia rely on this program for their children’s health care. Recently, funding for the program expired and Congress has failed to renew it. Emergency short-term funding was passed in late December but without new long-term funding, the program will end soon.

We urge you to contact your representatives in Congress on this critical issue. When you contact them, please help us create awareness by sharing your personal hemophilia story, and include a mention of the uniqueness of hemophilia B.

The Hemophilia Federation of America, another national organization, has set up a page to facilitate contacting legislators on this issue. It includes telephone, email and Twitter options – just choose the one you are most comfortable with. You can reach the page by clicking HERE.

Join Us at Washington Days! March 7-9

The National Hemophilia Foundation will host the annual Washington Days program from March 7-9, 2018 on Capitol Hill. This is our opportunity to make sure that the voice of the hemophilia community, including the hemophilia B community, will be heard by our elected representatives.

For more information and to register, please visit NHF's Washington Days page.

Please let us know that you have registered so that we can expect to see you and prepare some special information for you. Send us a message at