https://www.hemob.org/upcoming-events daily 0.75 2026-04-02 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9a5b83d5-c651-4cb9-95ae-4c0cd2c68c69/Hemo+B+Symposium+Flyer+2026.png https://www.hemob.org/upcoming-events/10-25-2026 monthly 0.5 2026-03-24 https://www.hemob.org/upcoming-events/09-17-2026 monthly 0.5 2026-03-24 https://www.hemob.org/upcoming-events/06-22-2026 monthly 0.5 2026-03-26 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1774376296529-E1K9HRPSMTJX0ADS1H63/Screenshot+2026-02-20+at+12.14.14%E2%80%AFPM.png Upcoming Events - BVoice Advocacy Camp - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/04-11-2026 monthly 0.5 2026-03-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6bf24703-3664-4d71-adf8-dba94ef14029/Virtual+Final+Night+Eevent.png Upcoming Events - Virtual Symposium Final Night - Sher-Locked Escape Quest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/04-10-2026 monthly 0.5 2026-03-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/409dcc6f-f4ed-4f47-b2a0-ac46834fca7b/friday+game+night.jpg Upcoming Events - Virtual Symposium Family Game Night - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/03-24-2026 monthly 0.5 2026-03-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1774015702530-BW4Z7MOTKU0AU13180I2/Screenshot+2026-03-20+at+10.08.07%E2%80%AFAM.png Upcoming Events - Managing Your Money in Tough Times - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/03-16-2026 monthly 0.5 2026-03-05 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7e590f3b-9c53-47db-9a4f-317d38cd0d0a/03-16-2026.png Upcoming Events - Learn About HYMPAVZI™ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-04-2026 monthly 0.5 2026-03-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/28097c90-3c52-428b-a856-ee216f9b073a/CHB+General+Social+Media+Flyers-+Square+1080x1080+%2885%29.jpg Upcoming Events - Gene Path Retreat Weekend - Make it stand out All selected applicants will receive a travel scholarship that includes airfare or mileage, lodging, and meals provided as part of the official event agenda. Gene Path Weekend Retreat Real People. Real Experiences. Real Connection. For men living with Hemophilia B, gene therapy is not simply a medical option, it is a life-altering crossroads. It raises questions about identity, risk, hope, and the future. Gene Path Weekend Retreat was created because no one should walk that road alone. What Is Gene Path Retreat? Gene Path is an immersive, peer-centered weekend experience designed exclusively for men ages 18 and over who are currently on gene therapy or actively considering it. Set in the quiet hills and open sky in Oklahoma's breathtaking Osage Hills, Gene Path brings together men who understand, because they are living it. Over the course of the weekend, participants engage in: Candid, facilitated conversations Shared meals and informal dialogue Small-group reflection Time in nature for perspective and clarity Here, you gain something no clinical brochure can provide: Unfiltered truth from people walking the same path. The Experience Gene Path is built on trust, honesty, and lived experience. The setting allows space to slow down, breathe deeply, and think clearly. Around campfires, on lakeside walks, and in small circles of conversation, men speak openly about: The decision-making process The emotional weight of change What life is truly like on gene therapy The unexpected realities, both challenges and breakthroughs This is where questions are welcomed, especially the ones you have been hesitant to ask. What You Will Find Here Firsthand insight from men living on gene therapy every day A pressure-free environment to ask real questions Honest dialogue without judgment Connection with others who understand your fears and your hopes Community that extends beyond the weekend Gene Path Retreat exists to provide time, space, and brotherhood and to equip participants with emotional support, meaningful health literacy, and the confidence to navigate one of the most transformative decisions of their lives, on their own terms. Because this decision deserves more than information. It deserves understanding. Open to men with Hemophilia B, ages 18 and over, who are currently on gene therapy or actively considering gene therapy. https://www.hemob.org/upcoming-events/02-05-2026 monthly 0.5 2026-02-02 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1770059271691-HZEY8VTUSOOODWBBDAW7/renk.png Upcoming Events - The Weekly Reset: Livestream with Renk - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-16-2026 monthly 0.5 2026-02-19 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bb76a2d6-7d2c-46a9-bb7a-e164c32f91dd/8.jpg Upcoming Events - Dallas, TX - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/03-14-2026 monthly 0.5 2026-02-19 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1770045218198-3OY00P1R8IJTMAR9M87T/7.jpg Upcoming Events - Chicago, IL - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-13-2026 monthly 0.5 2026-02-19 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5f48cea9-c4bf-45ed-89ad-d0789e89b951/10.jpg Upcoming Events - Kansas City, MO - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-06-2026 monthly 0.5 2026-03-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/aa22a112-ab20-4065-9332-4e94d5603dc3/baltimore.jpg Upcoming Events - Meetings on the Road - Baltimore, MD - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-12-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates May 12 June 9 July 7 August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/12-08-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman https://www.hemob.org/upcoming-events/11-10-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates November 10 December 8 https://www.hemob.org/upcoming-events/10-13-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates October 13 November 10 December 8 https://www.hemob.org/upcoming-events/09-08-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/08-04-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/07-07-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates July 7 August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/06-09-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates June 9 July 7 August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/04-14-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates April 14 May 12 June 9 July 7 August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/03-10-2026 monthly 0.5 2026-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men 18 and over with Hemophilia B. Partners and care partners invited! March 10th only. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates March 10 - Partners and care partners invited! April 14 May 12 June 9 July 7 August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/02-10-2026 monthly 0.5 2026-01-28 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out You must be a man with hemophilia B to attend. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman Upcoming Dates February 10 March 10 April 14 May 12 June 9 July 7 August 4 September 8 October 13 November 10 December 8 https://www.hemob.org/upcoming-events/01-13-2026 monthly 0.5 2026-01-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out You must be a man with hemophilia B to attend. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Host: Bobby Wiseman https://www.hemob.org/upcoming-events/01-22-2026 monthly 0.5 2026-03-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e046c912-ff0e-42e3-92ad-31a3f6045c55/career+building+workshop.jpg Upcoming Events - Career Building Workshop - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/02-26-2026 monthly 0.5 2026-03-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9621cf19-129c-4e6b-be17-8c3d05af00aa/Men%27s+Retreat+%284%29.jpg Upcoming Events - Men's Empowerment in Action Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/visit-with-santa monthly 0.5 2025-11-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1763396184751-8E21H3HR14IY7JIRTFEK/Santa+-+EN.jpg Upcoming Events - Visit with Santa - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d2e999a7-19ca-4401-8b67-8c52ce71ceb6/Santa+-+SP.jpg Upcoming Events - Visit with Santa - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/11-19-2025 monthly 0.5 2025-11-10 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9e02fd17-b8ea-48bf-8477-181e6c9da15c/robert+teenevent.jpg Upcoming Events - B-Leaders Teen Virtual Event - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-25-2025 monthly 0.5 2025-09-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/421926bc-e261-4e24-b9c1-c6d56817f3be/CHB+Virtual+Events-4.jpg Upcoming Events - Roots &amp; Resilience: An Autumn Wellness Workshop - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-01-2025 monthly 0.5 2025-09-05 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/97e654e9-2719-4f95-92f2-e07c97090340/October+1+2025-2.png Upcoming Events - Let’s Talk About a New Subcutaneous Prophylaxis Treatment for Hemophilia With and Without Inhibitors - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-09-2025 monthly 0.5 2025-11-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b0545a22-4a1c-445e-a8e8-42929ab1582f/September+9+2025.jpg Upcoming Events - Learn About HYMPAVZI™ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/11-05-2025 monthly 0.5 2025-11-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/28c8a977-66db-420c-905d-b4af9439931b/November+5+2025.jpg Upcoming Events - Learn About HYMPAVZI™ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gen-ix-leadership-project monthly 0.5 2025-10-06 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/066ddda0-ade9-4e51-9972-b680f09b1c42/GenIX+2025.png Upcoming Events - Gen IX Leadership Project - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-13-2025 monthly 0.5 2025-07-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d6b23a87-3946-425c-97dc-8e60ddcf0d74/San+Diego%2C+CA.jpg Upcoming Events - Meetings on the Road - San Diego, CA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-09-2025 monthly 0.5 2025-10-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/af7caf3a-7b3e-4be6-a2ae-f1a2f95a9c0d/SM+and+website+image+gala26.jpg Upcoming Events - Eternal Spirit Awards Gala - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/11-04-2025 monthly 0.5 2025-11-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a79ed2e1-8bd1-4b2b-bb60-4f7e36897cc0/latino+november+4.png Upcoming Events - Foro Latino De Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-23-2025 monthly 0.5 2025-06-10 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1749568261377-83TUERT8FEGU1P2N7LSG/Product+landscape+9.23.25.jpg Upcoming Events - Hemophilia B Product Landscape with Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/12-03-2025 monthly 0.5 2025-05-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ae6aa8e8-8c39-4d13-8287-3c75d15d05c1/Product+landscape+Dec+3+2025+flyer.jpg Upcoming Events - Hemophilia B Product Landscape with Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/07-09-2025 monthly 0.5 2025-08-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1747920035135-O9NP61ULJNO4H32GKRZW/Hympavzi+%282%29.jpg Upcoming Events - Learn About HYMPAVZI™ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/11-18-2025 monthly 0.5 2025-12-30 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4f271034-5565-402c-a64c-5418d7b92080/survive+and+thrive+flyer.jpg Upcoming Events - Survive and Thrive: Mental Health and Wellness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-25-2025 monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1747748750272-Q3XQ66PF9ZVFZYTLMFV0/pittsburgh.jpg Upcoming Events - Meetings on the Road - Pittsburgh, PA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/08-16-2025 monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2f131119-6ebe-45d1-87e5-438e257bc8ea/Charlotte+NC.jpg Upcoming Events - Meetings on the Road - Charlotte, NC - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-06-2025 monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6607ffe7-fc20-4279-97ab-925ee0bd3173/Milwaukee+WI.jpg Upcoming Events - Meetings on the Road - Milwaukee, WI - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-27-2025 monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ce43a848-2c41-4341-aaea-137a203a0b46/Minneapolis%2C+MN.jpg Upcoming Events - Meetings on the Road - Minneapolis, MN - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-04-2025 monthly 0.5 2025-09-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ae093121-2c53-4b2c-bac4-b1acb81a196e/manchester%2C+NH.jpg Upcoming Events - Meetings on the Road - Manchester, NH - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-18-2025 monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1748012764793-WL41XHSIA6DQ4VKZGNZY/Phoenix%2C+AZ.jpg Upcoming Events - Meetings on the Road - Phoenix, AZ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-15-2025 monthly 0.5 2025-05-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c5588d11-4be6-4d1b-9546-400ae190e243/mental+health+workshop.jpg Upcoming Events - Mental Health Action Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-06-2025 monthly 0.5 2025-05-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/acf8003f-57de-4813-b453-4aff5bcdc38e/Hympavzi+%281%29.jpg Upcoming Events - Learn About HYMPAVZI™ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-11-2025 monthly 0.5 2025-05-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f55e3dbf-96b9-4d5d-8986-41971f6e6746/Hympavzi-2.jpg Upcoming Events - Learn About HYMPAVZI™ - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-19-2025 monthly 0.5 2025-08-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b1dee1d4-485c-48ac-bf31-7704d3c26a60/advocacy+in+action+9.jpg Upcoming Events - Advocacy in Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-10-2025 monthly 0.5 2025-10-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/fba09b71-fe69-45bf-a0d9-978518380b8f/September+10+2025-4.jpg Upcoming Events - Advocacy in Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-21-2025 monthly 0.5 2025-10-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/21d524ba-dfdf-4f22-96ba-805a5f6d36f4/October+21+2025.jpg Upcoming Events - Advocacy in Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-08-2025 monthly 0.5 2025-05-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9694575d-1ae4-44cc-beb5-999f79bbeefd/2025+parenting.jpg Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-23-2025 monthly 0.5 2025-10-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c1c00f60-1ca3-4e83-a22d-310c59228da0/2025+parenting.jpg Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-01-2025 monthly 0.5 2025-04-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bfae8c2e-d19d-4ea9-a584-c618ef000913/CHB+Virtual+Events+%2847%29.jpg Upcoming Events - B-Leaders Teen Virtual Event - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-29-2025 monthly 0.5 2025-04-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ccd88bba-485f-4fbe-8dd2-0b310da59bc9/Mens+Tulsa.png Upcoming Events - Men's Tulsa Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/07-16-2025 monthly 0.5 2025-07-11 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8ef7fc56-4013-4394-922a-abb2c72663b0/beats.jpg Upcoming Events - The Beats - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-18-2025 monthly 0.5 2025-12-05 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1745337536982-0ZXG5JPBO4LNH7VIZ85C/Mens+Georgia.png Upcoming Events - Men's Georgia Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-26-2025 monthly 0.5 2026-03-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/658467cf-621c-403d-8b72-299e9d2d8d73/womens+Georgia.png Upcoming Events - Women’s Georgia Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/05-20-2025 monthly 0.5 2025-05-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4f032133-b8c4-41d3-8d29-9ba0dad50115/Dr+clark+navigating+product+landscape-3.jpg Upcoming Events - Hemophilia B Product Landscape with Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-03-2025 monthly 0.5 2025-06-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cc2072f8-9c55-4f67-a576-da16dcf920a2/survive+and+thrive+june+3.jpg Upcoming Events - Survive and Thrive: Mental Health and Wellness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/07-08-2025 monthly 0.5 2025-06-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7509fcce-f11a-408c-8452-fc5edd3e56b3/Strength+in+connection+7.8.25.jpg Upcoming Events - Strength in Connection: For those 50 and over - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-23-2025 monthly 0.5 2025-06-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/91b42bda-889c-4414-a255-4710dc331175/Strength+in+Connection+no+sponsor+June+23.jpg.jpg Upcoming Events - Strength in Connection: For those 50 and over - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/10-14-2025 monthly 0.5 2025-09-05 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/930c30ea-18ca-4a9a-88c6-d9fe16e69568/CHB+Virtual+Events-2.jpg Upcoming Events - Strength in Connection: For those 50 and over - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/03-18-2025 monthly 0.5 2025-02-11 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f986021a-28ed-4559-b191-02bfc92efc09/2025+-3.jpg Upcoming Events - Ready for Anything: Emergency Preparedness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/03-11-2025 monthly 0.5 2025-03-18 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/40c62ac0-445e-40e8-9293-cd5033c56a9f/Dr+clark+navigating+product+landscape.jpg Upcoming Events - Hemophilia B Product Landscape with Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/07-22-2025 monthly 0.5 2025-07-10 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0d958835-a79b-4c0a-ac77-ff1c8579d5da/July+22+2025.jpg Upcoming Events - Living with Hemophilia B: From Challenges to Hopeful Futures - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/07-24-2025 monthly 0.5 2025-07-10 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/02c21d92-48cb-433f-b34a-03d2a92bf0cd/Product+landscape+Juuly+24+2025+flyer.jpg Upcoming Events - Hemophilia B Product Landscape with Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/519718e3-6ce9-4160-bf62-7450a6f78159/Jonathan+Roberts%2C+MD.png Upcoming Events - Hemophilia B Product Landscape with Dr. David Clark - Make it stand out Dr. Jonathan C. Roberts, MD https://www.hemob.org/upcoming-events/02-25-2025 monthly 0.5 2025-06-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/43aefee2-ae3b-4678-888b-212d7b00c5da/February+25th+2025-3.jpg Upcoming Events - Foro Latino De Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-17-2025 monthly 0.5 2025-07-01 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/de182ccf-aa77-407b-b21c-c986d6f1b02e/CHB+Virtual+Events+%2860%29.jpg Upcoming Events - Foro Latino De Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-04-29 monthly 0.5 2026-01-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out With Phat Nguyen For men with hemophilia B over 18. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/gene-therapy-03-25 monthly 0.5 2025-03-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1740425596244-WPLRKU6HP10NNC4D5VAH/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out With Bobby Wiseman For men with hemophilia B over 18. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. Bobby Wiseman is a passionate advocate and leader in the bleeding disorders community, bringing both personal and professional experience to his work. A person with hemophilia A and a gene therapy recipient, Bobby understands firsthand the challenges and opportunities that come with treatment advancements. His background spans nonprofit leadership, healthcare advocacy, and community engagement, with a focus on supporting at-risk populations. As the founder of Potential of Ability, Inc., he has dedicated his career to empowering others, and his work with the National Hemophilia Foundation has strengthened programs nationwide. Currently, as Managing Director of Rising Beyond, LLC, he continues to drive strategic initiatives for social change. Bobby’s lived experience, combined with his expertise in advocacy and patient support, makes him an inspiring voice for this peer group. https://www.hemob.org/upcoming-events/gene-therapy-03-06 monthly 0.5 2025-02-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0dc4c50f-b44c-4fc9-a68f-fb9ea6b947ad/BLANK+INFO.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men with hemophilia B over 18. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/gene-therapy-02-20 monthly 0.5 2025-02-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/62ea0e11-e507-4187-836c-98ce27161dbb/2025+gene+therapy+rap.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men with hemophilia B over 18. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/gene-therapy-02-11 monthly 0.5 2025-02-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e16a757c-c8d3-48e9-9509-4d10625159f2/Feb+11th+Bobby.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men with hemophilia B over 18. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. Bobby Wiseman is a passionate advocate and leader in the bleeding disorders community, bringing both personal and professional experience to his work. A person with hemophilia A and a gene therapy recipient, Bobby understands firsthand the challenges and opportunities that come with treatment advancements. His background spans nonprofit leadership, healthcare advocacy, and community engagement, with a focus on supporting at-risk populations. As the founder of Potential of Ability, Inc., he has dedicated his career to empowering others, and his work with the National Hemophilia Foundation has strengthened programs nationwide. Currently, as Managing Director of Rising Beyond, LLC, he continues to drive strategic initiatives for social change. Bobby’s lived experience, combined with his expertise in advocacy and patient support, makes him an inspiring voice for this peer group. https://www.hemob.org/upcoming-events/advancing-inhibitor-care monthly 0.5 2025-02-10 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4bec6285-d71e-4e35-b806-3d6d21787d2c/Screenshot+2025-02-10+at+12.27.28%E2%80%AFPM.png Upcoming Events - Advancing Inhibitor Care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/02-18-2025 monthly 0.5 2025-02-11 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f986021a-28ed-4559-b191-02bfc92efc09/2025+-3.jpg Upcoming Events - Ready for Anything: Emergency Preparedness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/02-04-2025 monthly 0.5 2025-04-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1cf06512-f012-4c58-a5af-9179e10f9497/Teen+Landon.jpg Upcoming Events - B-Leaders Teen Virtual Event - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/06-24-2025 monthly 0.5 2025-06-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d6d55c6f-9dad-4bbf-bffd-d20f30c4c990/danny+june+24.jpg Upcoming Events - B-Leaders Teen Virtual Event - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/santa-spanish monthly 0.5 2024-12-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1b2d791e-cf95-4eab-bf7a-8d34a57bdfa8/Santa+-+sp-2.jpg Upcoming Events - <span class="sqsrte-text-color--accent">Visit with Santa</span> - Spanish - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/santa monthly 0.5 2024-12-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1734372015712-B6LNHDAUGVZQISD96GWJ/Santa-eng.jpg Upcoming Events - <span class="sqsrte-text-color--accent">Visit with Santa</span> - Make it stand out A Magical Visit with Santa Claus! Get ready for a holiday experience full of wonder and joy! Santa Claus himself is taking a break from his busy preparations to join us for a very special meet and greet. Santa will join us on December 18th for a Zoom call from the North Pole. What’s in Store: Santa will read his favorite holiday classic, ’Twas the Night Before Christmas', bringing the story to life with his jolly spirit. Every child will have the chance to ask Santa a question or share something special—whether it’s a Christmas wish, a favorite memory, or an important message for the big day! A magical moment with Santa that’s sure to create cherished memories for children of all ages. Dress in your holiday best, bring your excitement, and join us for this once-in-a-season opportunity to share the magic of Christmas with Santa himself! This is one event you won’t want to miss—Santa can’t wait to meet you! https://www.hemob.org/upcoming-events/gene-therapy-01-23 monthly 0.5 2025-01-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1733778210927-3OD9C4OLVN4HKOESHUT6/Gene+Therapy+Flyer+-+January+23+2025+CHAD+.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out For men with hemophilia B over 18. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/caregiver-info-sessions-01-30 monthly 0.5 2025-01-28 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b0411437-f422-4338-99b9-c2d1cabc7819/For+winter+2024+newsletter-2.png Upcoming Events - Considerations in Gene Therapy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/caregiver-info-sessions-12-04 monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1732218131639-VLSSNFT20W250TEJLN4N/Gene+Therapy+Family+December+4th+%281%29.jpg Upcoming Events - Gene Therapy Family Info Session - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-12-11 monthly 0.5 2024-12-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/efa3fe70-7c62-4883-bea4-666073a562af/Madison+-+December+11%2C+2024.png Upcoming Events - Gene Therapy Support Network - Make it stand out You must be qualified to receive gene therapy to attend. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/foro-latino-de-hemofilia monthly 0.5 2025-02-05 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b943ecdd-84fd-4e6f-a715-afb2937d9dad/foro-amanda-flyer.jpg Upcoming Events - Foro Latino De Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/symposium-2025 monthly 0.5 2025-02-19 https://www.hemob.org/upcoming-events/familyfun2024 monthly 0.5 2024-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d0c11d79-3745-4678-b4fb-9d728bcebe7a/family+fun.jpg Upcoming Events - Family Kahoot &amp; Trivia Night - Make it stand out Join us as our community gathers to play Kahoot and trivia and share laughs! https://www.hemob.org/upcoming-events/caregiver-info-sessions-11-14 monthly 0.5 2024-11-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1729633340749-6O9BPALAEZUQ4UHUP4FH/Gene+Therapy+Family.jpg Upcoming Events - Gene Therapy Family Info Session - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-11-16 monthly 0.5 2024-11-15 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8bd15018-3087-4d77-988a-d29fe0fd4e03/Gene+Therapy+Brian+O%27Mahony.jpg Upcoming Events - Gene Therapy Support Network - Make it stand out You must be qualified to receive gene therapy to attend. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/gene-therapy-november5 monthly 0.5 2024-11-02 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e5ea6320-441a-40cb-90f6-f2541cf8e886/Chad+-+November+5+.png Upcoming Events - Gene Therapy Support Network - Make it stand out If you’re considering gene therapy or are already involved, we invite you to join our private group discussion with a member of our hemophilia B community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! https://www.hemob.org/upcoming-events/gene-therapy-october23 monthly 0.5 2024-10-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c48d8230-e3aa-4585-816b-010a4f370734/Aiden+-+October+23+%281%29.png Upcoming Events - Gene Therapy Support Network - Make it stand out If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/gingerbread-2024 monthly 0.5 2024-10-31 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f4226342-bae1-46dc-a9a9-8eef7e971ec4/Gingerbread+House+%282%29.png Upcoming Events - Gingerbread House Decorating + Trivia Night - Make it stand out It’s that time of year again! Join us as our community gathers to decorate gingerbread houses, share laughs, and enjoy a few fun games together. Let’s make sweet memories, one frosting swirl at a time! First 50 families to register will receive a Gingerbread house. The deadline apply is December 1! https://www.hemob.org/upcoming-events/12-13-2025 monthly 0.5 2025-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a356fe94-bf24-4500-8a6e-87152ebec42e/Gingerbread+House+%282%29.jpg Upcoming Events - Gingerbread House Decorating + Trivia Night - Make it stand out It’s that time of year again! Join us as our community gathers to decorate gingerbread houses, share laughs, and enjoy a few fun games together. Let’s make sweet memories, one frosting swirl at a time! Date: Saturday, December 6th at 4pm ET/ 1pm PT The first 50 families to register will receive a gingerbread house kit. Register by November 24th to receive your kit! https://www.hemob.org/upcoming-events/gene-therapy-october17 monthly 0.5 2024-10-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/adc6b887-13bb-479c-9fdc-87be2073e5e6/Michael+-+October+17.png Upcoming Events - Gene Therapy Support Network - Make it stand out If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/womans-virtual-december2024 monthly 0.5 2024-11-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4d18f68a-9273-4a3c-a356-6bb1269d0f70/IMG_6932.jpg Upcoming Events - Virtual Woman’s Education &amp; Empowerment Program - Make it stand out Online Zoom Event The Hemophilia B Women's Education and Empowerment Program provides vital support and resources to women with hemophilia B, mothers of children with hemophilia B, and their spouses. Together, we’re fostering empowerment and education for all in our community! Apply by November 8th to receive an event box! https://www.hemob.org/upcoming-events/caregiver-info-sessions monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1725863473252-DJDSMBLH937W419RFBOM/gene+therapy+for+families.jpeg Upcoming Events - Gene Therapy Family Info Session - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen-september-24-9h59p monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f7acc5a7-99cd-49f5-a248-fc97a09c61b9/jayden+oct+2.jpeg Upcoming Events - October B-Leaders Teen Event: Virtual Event - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/meet-greet-oct-24 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a600884d-d6f0-4d71-904d-22660ebac23c/meet+and+greet.jpeg Upcoming Events - Parents Meet &amp; Greet with Kim Phelan - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/meet-greet-oct-1 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a600884d-d6f0-4d71-904d-22660ebac23c/meet+and+greet.jpeg Upcoming Events - Parents Meet &amp; Greet with Kim Phelan - Make it stand out Parents and caregivers, this one’s for you! Join our COO Kim Phelan October 1 or October 24 for a meet and greet. We are welcoming those with children 0-17, as well as those with adult children. New members and lifelong members alike are encouraged to take part in our games & raffles and connect with our community. Kim can’t wait to chat, answer your questions and have fun at this upbeat and engaging event. Will we see you there? https://www.hemob.org/upcoming-events/gene-therapy-aug-27-24 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1723810342896-NAAHCK8BNMVADOJXXXS8/Gene+Therapy+Aug.jpeg Upcoming Events - Gene Therapy Support Network - Make it stand out Have questions about gene therapy? Want to know the real deal? Bobby Wiseman hosts our next Gene Therapy Support Network August 27. If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming. https://www.hemob.org/upcoming-events/resume-writing-workshop-with-dr-april-willis-virtual-event-registration monthly 0.5 2024-11-07 https://www.hemob.org/upcoming-events/teen-september-24 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1721834154680-RO008DUL22V5WVU3TIFL/teen+sept+5.jpg Upcoming Events - September B-Leaders Teen Event: Virtual Event&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/foro-latino-de-hemofilia-b monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a67546f7-9c0d-48ac-b276-2126088709a2/foro+aug.png Upcoming Events - Foro Latino De Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-support-network-2-35kjc-7l2f7 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9c136473-8ea2-409b-8aee-999895112ead/genetherapy+3+and+4+final+%281%29.jpg Upcoming Events - Gene Therapy Networking Group - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-support-network-2-35kjc monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9c136473-8ea2-409b-8aee-999895112ead/genetherapy+3+and+4+final+%281%29.jpg Upcoming Events - Gene Therapy Networking Group - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-sanantonio-tx-2025 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d9f7edf0-37ed-4d34-9eb1-59f79fb26997/may+17+tx.png Upcoming Events - Family Meetings on the Road - San Antonio, TX - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-stlouis-mo-2025 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1720678408358-E9E9QYBOC6TPD9IW4H0V/may+3+mo.png Upcoming Events - Family Meetings on the Road - St. Louis, MO - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-richmond-va-2025 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e71bac4f-9a52-43b4-8b47-40070dfb672d/feb+8+va.png Upcoming Events - Family Meetings on the Road - Richmond, VA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-birmingham-al-2025 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6060514b-2fef-47ec-9b9e-6b27cae8c740/feb+1+al.png Upcoming Events - Family Meetings on the Road -Birmingham, AL - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/sprout-school monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1718640665950-WDKUU3QWWZETZ81DWTMJ/Sprout+School+Flyer.png Upcoming Events - Sprout School: Gardening 101 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/june-movie-night-summer-edition monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ca6b6d51-f005-4f47-bc85-16da4b378924/June+Movie+Night.jpg Upcoming Events - June Movie Night - Summer Edition - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-anaheim-ca-2024 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ba69bbbc-1209-415f-8bb0-60ec9bb3fa58/nov+9+ca.png Upcoming Events - Family Meetings on the Road - Anaheim, CA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-chicago-il-2024 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/da8f8492-b9d5-4b08-bd7d-5243c3f75b3e/oct+26+il.png Upcoming Events - Family Meetings on the Road - Chicago, IL - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-denver-co-2024 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d918f8cc-5a8f-4977-ac9d-6237bda5d442/oct+19+co.png Upcoming Events - Family Meetings on the Road - Denver, CO - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/family-meetings-on-the-road-columbus-oh-2024 monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2328f107-fc24-40a6-ad62-b060017d3095/oct+12+oh.png Upcoming Events - Family Meetings on the Road - Columbus, OH - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gettin-in-the-game-2024 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/309ce445-3723-4b10-952b-23c97446c4ed/HEMOPHILIA+HEALTH.jpg Upcoming Events - Gettin' in the Game Junior National Championship Presented by CSL Behring - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/foro-latino-de-hemofilia-b-junio monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/fe9d9d0f-005b-45ef-800b-a994de0f793a/CHB+Events+%285%29.png Upcoming Events - Foro Latino de Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e33f10cb-40c3-49e4-b290-9057acfeed87/Aura+B+headshot.jpeg Upcoming Events - Foro Latino de Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-support-network-2 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6014e132-358e-44ba-8584-f7d34402f055/GeneTherapyNetwork.jpg Upcoming Events - Gene Therapy Network - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gene-therapy-support-network-1 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/45718ee5-c3db-4c91-becc-93db9487029c/CHB+Events+%283%29.png Upcoming Events - Gene Therapy Support Network - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/eternal-spirit-gala-date monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1715374633288-JB61L2MH3D8WT3RNA6YL/440933187_839531244883650_6940649522578220315_n.jpg Upcoming Events - Eternal Spirit Awards Gala - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/may-b-hub-movie-night monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1715371430795-XMHTS76ZNMALMWEJMTEW/CHB+Events+%282%29.png Upcoming Events - The B Hub Movie Night - May - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/09-26-2024 monthly 0.5 2025-03-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e8b448ae-8d66-41e3-ad53-ab7976b9470f/Womens+2.jpeg Upcoming Events - Women’s Education &amp; Empowerment Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2024-mens-seminar-las-vegas monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/90ec0913-967c-44cb-8553-9ac9a34194a8/Men%27s+Retreat+Vegas+NEW.jpg Upcoming Events - Men's Education &amp; Empowerment Program - Las Vegas - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2024-mens-seminar-orlando monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d2f7ade1-f065-40e0-9f25-212b1630cadc/Mens+Orlando+2.jpeg Upcoming Events - Men's Education &amp; Empowerment Program - Orlando - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/foro-latino-de-hemofilia-b-april monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/baef33f6-cc3b-4d92-9eb0-8d43b5ccd455/esp.png Upcoming Events - Foro Latino de Hemofilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/b-hub-movie-night-april monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b88a51dc-1ad9-459f-a91c-13b61d71e81a/CHB+Events+%281%29.png Upcoming Events - B Hub Movie Night - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/the-b-hub-movie-night monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8ddb8083-f459-443e-8e97-1fb15daa17cf/MarMovie.png Upcoming Events - The B Hub Movie Night - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/strength-in-connection-series-november monthly 0.5 2024-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2d3d1b1f-c51d-46d6-9aa4-bd08bb380c4d/November+20+%281%29.jpg Upcoming Events - Strength in Connection - 50 and Over Virtual Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/her-care-her-choice-august monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1708105178405-ZZJ42SXHH84QGUUQQABD/Her+Care%2C+Her+Choice+Women+%26+Hemophilia+B+A+Three-Part+Series+%281%29.png Upcoming Events - Her Care, Her Choice - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/her-care-her-choice-june monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1708105178405-ZZJ42SXHH84QGUUQQABD/Her+Care%2C+Her+Choice+Women+%26+Hemophilia+B+A+Three-Part+Series+%281%29.png Upcoming Events - Her Care, Her Choice - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/her-care-her-choice-march monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1709238784669-XKDT8JUN0LLAEE7E44MV/women21.jpeg Upcoming Events - Her Care, Her Choice - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f1841d3f-ebae-496f-8b14-5318b5ff4c4d/Amber+Federizo+Headshot.jpg Upcoming Events - Her Care, Her Choice - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/newborn-to-empty-nest-november monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1730570298072-30D4J28HGBFFQUYV73X7/parenting+support+November+6.jpg Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/newborn-to-empty-nest-september monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d023ba30-5fe8-4b14-9be8-f5af9490951a/IMG_0362.jpeg Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/newborn-to-empty-nest-july monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ae86ccb2-764b-4033-999a-c4fa915332cd/CHB+Events.png Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/newborn-to-empty-nest-april monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f5f6e79f-85a2-4fc6-b822-91290f65c4dd/ParentingSupportSeriesFlyer.jpg Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/99bac27e-afba-480b-bd2f-29e135bf64e6/Ben+Shuldiner+Pic+Formal+-+Ben+Shuldiner.jpg Upcoming Events - Parenting Support: Newborn to Empty Nest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/strength-in-connection-series-october monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1709246729227-XTHYSKQEI3LAIQ48YH1K/50plus.jpeg Upcoming Events - Strength in Connection - 50 and Over Virtual Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/strength-in-connection-series-may monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1709246671714-V8N4N23SVGLOUHSCBPCO/50plus.jpeg Upcoming Events - Strength in Connection - 50 and Over Virtual Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4e1ee3f7-f5b4-4c58-a996-761a61b7f1a8/CHB+Events+%282%29.jpg Upcoming Events - Strength in Connection - 50 and Over Virtual Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/strength-in-connection-series-february monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1708535435562-I4O95IEDOJTKEPKSK2V8/CHB+Events+%281%29.jpg Upcoming Events - Strength in Connection - 50 and Over Virtual Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/valentines-movie-night monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1707158525147-UB4UCDUDR5RXBB8XNOOP/VAL.jpeg Upcoming Events - Valentine’s Movie Night - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/ready-for-anything-emergency-preparedness-part-2 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1707165843663-4WU89CFDE93OSMYL26UB/CHB+Events.jpg Upcoming Events - Ready for Anything: Emergency Preparedness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/ready-for-anything-emergency-preparedness monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1707165785483-955L6SNJ3BFX7W0NO9ZK/CHB+Events.jpg Upcoming Events - Ready for Anything: Emergency Preparedness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/her-care-her-choice-october monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6744d8a2-40c6-42d5-b235-50b6053d1604/CHB+Virtual+Events.jpg Upcoming Events - Her Care, Her Choice with Roshni Kulkarni, MD - Make it stand out Oct 3 Expert Speaker: Roshni Kulkarni, MD Dr. Roshni Kulkarni, currently Professor Emerita of Pediatrics and Human Development at Michigan State University, has an exceptional career. She previously directed the Center for Bleeding and Clotting Disorders and Pediatric Hematology/Oncology (PHO) and served as Director of the Division of Blood Disorders at the CDC in Atlanta, GA. Dr. Kulkarni, a graduate of Osmania Medical College, Hyderabad, India, completed her residency and fellowship at Children's Hospital of Michigan, Detroit, MI. She is a founding member of the Foundation for Women and Girls with Blood Disorders and contributes to CDC and National Hemophilia Foundation committees. Her contributions include securing federal grants for outreach and telemedicine/telegenetics clinics and serving as a reviewer for esteemed journals. Dr. Kulkarni's accolades include the Hemophilia Foundation of Michigan's "Fairy Godmother to Women with Hemophilia," the American Journal of Hematology's "Women Leaders in Hematology," NHF's "Physician of the Year," MSU's "Distinguished Faculty," and the Federal Drug Administration and CDC "Distinguished Service" awards. Topic: Recognizing and Representing Women with Bleeding Disorders In our upcoming discussion on the diagnosis and care of women and girls with bleeding disorders, Dr. Kulkarni will underscore the importance of early diagnosis. She will emphasize the use of genotyping and factor levels, and the complexities that arise when symptom severity does not align with factor levels. During this presentation we will learn more about: Under-Recognition of Symptoms: Discover why women with mild or moderate hemophilia often delay seeking care for symptoms like heavy menstrual bleeding or postpartum hemorrhage, and how these symptoms are frequently downplayed in favor of others' needs. Strategies for Improved Outreach and Diagnosis: Learn effective approaches to ensure early diagnosis, appropriate treatment, and the prevention of complications for women and girls with bleeding disorders. Representation in Registries: Understand the importance of including women and girls in registries, especially those without access to specialized treatment centers, and how this can enhance diagnosis and treatment outcomes. By understanding these key issues, we'll all be better prepared to self-advocate and support the women and girls in our lives who are affected by bleeding disorders. https://www.hemob.org/upcoming-events/her-care-her-choice-may monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/40fc45e2-4229-421b-bdf7-6d433b69e9e3/Her+Care%2C+Her+Choice+Women+%26+Hemophilia+B+A+Three-Part+Series+%282%291.png Upcoming Events - Her Care, Her Choice - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/perspective-of-patients monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/32631934-9618-4a08-b1bd-e22780562f73/pop3.jpeg Upcoming Events - Perspective of Patients - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/her-care-her-choice monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4ab2d9f1-6e68-409d-b362-098a8798d213/Her+Care%2C+Her+Choice+Women+%26+Hemophilia+B+A+Three-Part+Series.jpeg Upcoming Events - Her Care, Her Choice - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/the-beats-1 monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5a5c1ecb-032a-4c7d-9dc0-8527d5ce5f2b/Beats+2024.jpeg Upcoming Events - The Beats - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/noche-de-juegos-virtuales monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0d0dce4a-c0ee-4d04-b45f-ebcf892df5e2/1%3A18+Spanish+Kahoot.jpg Upcoming Events - Noche de Juegos Virtuales - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/wj5rbgxke2zsyc4gujqqys0b57u00f monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c0c8cb80-4366-49df-8456-5a7b60c6acbb/1%3A11+Eglish+Kahoot.jpg Upcoming Events - Virtual Game Night - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2024-symposium monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1ce4b550-c423-4975-a728-3c621e431e0e/Symposium+Apps+Updated.jpeg Upcoming Events - 2024 Symposium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/p6fkjw58e4858sddxiifynl97bwii7 monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5dac7518-872d-468f-8ff9-8db1eba815dd/career.jpeg Upcoming Events - Virtual Career &amp; Financial Workshops - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/tween-event-virtual-kahoot monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9220e33b-7a1e-42f6-be22-4468607de4c8/Tween+Event.jpeg Upcoming Events - Tween Event: Virtual Kahoot - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/hemophilia-b-product-landscape-virtual-meetings monthly 0.5 2025-02-11 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1699459360900-62E0Q01LRD09F0Y7BMVL/Emerging+Therapies.jpeg Upcoming Events - Hemophilia B Product Landscape Virtual Meetings - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/mind-body-self-care-maintenance-virtual-meetings monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1700071671805-4OVPRAT0XDP2KJTQZ4XO/2023+Virtual+Events.jpeg Upcoming Events - Survive &amp; Thrive: Virtual Mental Health Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gingerbread-house-decorating-trivia-night monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1801376d-0d79-4065-aedc-0431d363e78f/MOR+FAQ+%28Instagram+Post+%28Square%29%29+%284.25+%C3%97+5.5+in%29-1.jpg Upcoming Events - Gingerbread House Decorating + Trivia Night - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen-virtual-event-with-muhammad monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c3c5d2ed-e53a-4e90-808b-704343f6a032/4.jpg Upcoming Events - Teen Virtual Event with Muhammad - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen-virtual-event-with-jc monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1701435911858-8CQMAY5OM1UB98VGTQCT/2023+Virtual+Events.jpeg Upcoming Events - Teen Virtual Event with JC - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gen-ix-fall-experience monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a19d08f9-126d-4769-a959-7ee630d424f8/Leadership+Posts.jpeg Upcoming Events - 2023 Generation IX Fall Experience - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2023-eternal-spirit-awards-gala-1 monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/50a41464-fc88-4515-9ff6-32b19b7d6ca8/gala+invite.jpeg Upcoming Events - 2023 Eternal Spirit Awards Gala - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2023-mens-retreats monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/92cf2921-2088-4157-8886-fc74301c6108/Men%27s+Retreat.jpeg Upcoming Events - 2023 Men's Retreats - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/da43y0pjz6mim9yp9naaw4ootf8i7w monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/58be4681-d74a-4fa9-ac17-f8c7e0af8f97/Men%27s+Retreat.jpeg Upcoming Events - 2023 Couples Retreat: In This Together - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2023-womens-virtual-retreat monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7276075f-a6b5-4b88-8731-442345d0130a/Virtual+Women%27s+Retreat.jpeg Upcoming Events - 2023 Women's Virtual Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2023-womens-retreat monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3b0bd0f0-74d9-4580-899f-e4e5ba3dc9b8/womens+in+person+retreat+2023.jpeg Upcoming Events - 2023 Women's In-Person Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/new-parents-and-hemophilia-b-support-meetings monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ae5e3b24-4ecc-42e3-8a0f-a75d13fc5c1d/parents+dates.jpg Upcoming Events - New Parents and Hemophilia B Support Meetings - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/aging-with-hemophilia-b-50-and-over-virtual-meeting-series monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/db06524b-675d-4ad9-8f8d-7b01f77d6753/50%2B+with+date.jpg Upcoming Events - Aging with Hemophilia B: 50 and Over Virtual Meeting Series - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/meetings-on-the-road-2023 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/00a922e6-51f3-403b-9439-afb9e5924e4e/MOR+FAQ+%28Instagram+Post+%28Square%29%29.jpeg Upcoming Events - Meetings on the Road - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/spring-into-wellness-2023 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/03fd8bf3-b780-4aca-bd88-ea3163bb3d2b/Wellness+Flyer+%281%29.jpeg Upcoming Events - Spring Into Wellness - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/hwxecqz053g3327xr72ixdmzspkgqo monthly 0.5 2023-02-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/08904b81-e9b9-4753-a026-7e8a95a61577/unnamed.jpg Upcoming Events - Tween Night! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/beats-2023 monthly 0.5 2025-03-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dcbf08c1-bc50-4cda-b70f-bc08781a753d/2.jpg Upcoming Events - The Beats - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teddy-bear-cupcake-decorating monthly 0.5 2023-01-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/306a61f4-67e1-4d60-a568-4ca8c0a25aec/National+Cupcake+Day+Sale+Facebook+Post-1.png Upcoming Events - Teddy Bear Cupcake Decorating - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen-event-with-alex-blxn8 monthly 0.5 2023-02-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/553715d3-7ace-44ab-89cb-118c40e9c9c3/TEEN+EVENT.jpeg Upcoming Events - Teen Event with Bailee - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/new-year-to-thrive-small-group-coaching-sessions monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/10caf20c-9cd5-483c-b78a-2f959a8379f0/Small+Group+Coaching+Flyer+Hemo+B+%28Instagram+Post+%28Square%29%29.jpeg Upcoming Events - New Year to THRIVE! Small Group Coaching Sessions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/yre6ep626umsygdcssrtb4uzea5m1t-bnmsy monthly 0.5 2022-11-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ad5adcf3-ef62-4d0e-906b-7cc7bad552af/TEEN+EVENT.jpeg Upcoming Events - Teen Event with Gabriella - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/yre6ep626umsygdcssrtb4uzea5m1t monthly 0.5 2022-11-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/aa7474c8-2b1e-42fd-92d8-cdd1630acc5e/2.jpg Upcoming Events - Teen Event with JC - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/generation-ix-advocacy-experience monthly 0.5 2022-12-05 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/781c54f2-cb15-421e-b262-d526f9e6ef27/2023+Gen+IX+Advocacy+Promo+Print+Ad+%281%29-1.png Upcoming Events - Generation IX Advocacy Experience - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/emerging-therapies-101-1 monthly 0.5 2022-11-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/48b57368-fa02-411e-9972-0b8cc4119f67/Emerging+Therapies+and+Aging+with+Hemophilia.jpeg Upcoming Events - Emerging Therapies 101 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/50-and-over-gathering-with-wayne-carl-and-chad monthly 0.5 2022-11-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b6063364-32ae-4d31-ab85-4a4bdd63e524/IMG_2894.jpg Upcoming Events - 50 and over gathering with Wayne, Carl and Chad - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/nick monthly 0.5 2022-11-16 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d8a64c1e-9d86-413c-b4e4-a809e6207a20/TEEN+EVENT.jpeg Upcoming Events - Teen Program with Nick - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/aaron monthly 0.5 2022-10-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0a26dce4-bb2e-4ae8-beca-dffda5a7c963/TEEN+EVENT.jpeg Upcoming Events - Teen Program with Aaron - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gabby monthly 0.5 2022-10-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9bf1bf3d-51dc-4f0d-b9e4-c725bd7bfd15/TEEN+EVENT.png Upcoming Events - Teen Program with Gabby - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gh-contest monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1664487274720-BWXP5YDLLZN64UIJJYMW/2022+gb.png Upcoming Events - Gingerbread House Contest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/annual-symposium-2023 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/36e76df3-624e-40c9-8fc5-95f02802af84/Symposium+2023 Upcoming Events - Annual Symposium 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/meetings-on-the-road-2ggsh monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d9f613df-915b-44dc-9f51-4a446facd2a8/BALLOONS+1.14.png Upcoming Events - Meetings on the Road - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gen-ix-leadership monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2603c979-e03a-4a4f-90dc-d14ed244ac82/-Jibin+Gen+IX+Flyer+%283%29.png Upcoming Events - Generation IX - Leadership Experience - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7437062e-feba-47e4-9f14-d408f783d47d/Print+bleed-+Gen+IX+Flyer+%283%29_merged.png Upcoming Events - Generation IX - Leadership Experience - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/womens-winter-2022 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3ff98829-222f-4ac2-9d80-904483526e11/Copy+of+Copy+of+Events+One-Pager+%28Instagram+Post%29+%288.5+x+11+in%29+%28Instagram+Post%29.png Upcoming Events - Virtual Women's Winter Retreat 2022 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/james monthly 0.5 2022-09-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4bb2399e-0ede-406e-bc6c-20c241782540/TEEN+EVENT.png Upcoming Events - Teen Program with James - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/mens-fall-retreat-2022 monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dfced827-867c-4bee-b28c-58aef45f34a9/2022+Men%27s+Fall+Retreat.png Upcoming Events - Men's Fall Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gen-ix-mentorship monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0b44fa0a-d88a-48a4-b17a-75316721fefd/2022+gen+ix+mentorship+print+ad+dates+%281%29.jpeg Upcoming Events - Gen IX Mentorship Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/wellness monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/22b6d809-27bf-4f42-8f47-6929554a72a4/Wellness+Flyers+%281%29.png Upcoming Events - Wellness Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen-program-1 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/eacab03d-b40d-4620-a0ba-f991aaab1a0e/SEE+WHAT+THIS+TEEN+HAS+IN+STORE+FOR+YOU%21+%282%29.png Upcoming Events - Teen Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/womens-retreat monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/93e3791e-7183-4c81-94dd-6b8f0b6aa836/2+%281%29.png Upcoming Events - Women's Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/mens-retreat monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/716033cc-68e1-4c28-8ef5-380734fda03a/Men%27s+Retreat+June+2022+%281%29.png Upcoming Events - Men's Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/creative-careers monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0e0fc3e5-f415-4755-b70f-c98da92afdfc/CreativeTips_Graphic_duration+%281%29.png Upcoming Events - Creative Tips &amp; Hemo Hacks - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/genix-adv-2022 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/378ab69f-fa36-432b-9da6-4524e08fe6d6/Gen+IX+Advocacy Upcoming Events - Gen IX Project Advocacy Experience - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen-program monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1646404941573-HAASV70UR69KT3ZCZ7GX/SEE+WHAT+THIS+TEEN+HAS+IN+STORE+FOR+YOU%21+%282%29.png Upcoming Events - Teen Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/the-beats monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c6043572-21c9-4622-8058-9a6df921a94c/2022+Beats+Music+Program+cover.png Upcoming Events - The Beats - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/emerging-therapies-101 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d647287f-5c9a-4d08-a385-d1cb2d62dd51/Screen+Shot+2022-01-20+at+11.02.08+AM.png Upcoming Events - Emerging Therapies 101 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/lets-play-ix-golf-outing monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b880becd-f56f-45b8-b33e-7b9e28e017d1/IMG_7818.jpg Upcoming Events - Let's Play IX Golf Outing - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/cc-decorating monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/fbf955d1-a5e1-4305-ad61-bcf1f1bb2eb0/image+%287%29.jpg Upcoming Events - Love Bug Cupcake Decorating - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/eternal-spirit-gala monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1d1a3d36-ffc1-435e-a2f4-983445f13d8c/Eternal+Spirit+Gala+Thursday+March+31+2022+%281%29+%281%29.png Upcoming Events - Eternal Spirit Gala - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2022-symposium monthly 0.5 2022-02-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a620cb1c-1286-436b-b891-053a48125fbe/image+%283%29.jpg Upcoming Events - 2022 Annual Hybrid Symposium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/partner-retreat monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bffb4a53-3151-4ce4-b72a-d0801af85c65/IMG_9351.jpg Upcoming Events - In This Together - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/vmor monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0de2c8ba-fa89-488f-a927-142fc974dc9a/mor22+%281%29-9+%281%29.jpg Upcoming Events - Virtual Meetings on the Road - Register Now - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/gh-contest-21 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5f6276b0-fd4c-444c-bca7-38bfb159917b/Red+Snowflakes+Holiday+Flyer+%281%29.png Upcoming Events - Gingerbread House Contest - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/teen monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/aa656417-3d6e-4742-832c-c2542c3f73d2/image-asset.png Upcoming Events - Teen Possible Event - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/mental-health-first-aid monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bfe1c0d5-b967-4427-9d88-7eb378d8ee7f/mental+health+first+aid+%28Instagram+Post%29+%281%29.jpeg Upcoming Events - Mental Health First Aid - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/emerging-therapies-101-the-dawn-of-a-new-day monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d744b49d-bf09-4736-9de2-902ceaede07b/image-asset.jpeg Upcoming Events - New Therapies 101 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/lets-play-nine-golf-outing monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1631835565463-YKG09AHS98EJFGZB2499/unsplash-image-m0iXio5FF7M.jpg Upcoming Events - Let’s Play Nine Golf Fundraiser - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/mens-winter-retreat monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1633209800140-OQ5H8U99LIDCE3T9LI6Z/7.png Upcoming Events - Virtual Men's Winter Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/womens-fall-retreat monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1633209667212-FAYENQ1GMTPC7CZR3XBP/6.png Upcoming Events - Virtual Women's Fall Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/mens-fall-retreat monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1633208918278-UMSQ4LDY1UJJZI2PUNC2/5.png Upcoming Events - Virtual Men's Fall Retreat - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/upcoming-events/2021-hybrid-symposium monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626651251655-3XXTKH9KB3VTS1DQE80H/HEMO_WEB_B_TOGETHER.jpg Upcoming Events - 2021 Virtual Symposium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1625535166678-FXCZQDOFUUWZV1IEZ0SI/Donate-Page_large-group.png Upcoming Events - 2021 Virtual Symposium - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library daily 0.75 2026-04-02 https://www.hemob.org/resource-library/06-2025 monthly 0.5 2026-04-02 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/df680c05-d0e6-4a90-b133-41176414f1e2/Screenshot+2026-04-02+at+11.18.28%E2%80%AFAM.png Resource Library - Sustained Clinical Benefit of AAV Gene Therapy in Severe Hemophilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/03-17-2026 monthly 0.5 2026-04-02 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c727d694-6bb6-4193-851f-bfb455cdf68b/hemgenix.jpg Resource Library - An Update on HEMGENIX® (etranacogene dezaparvovec-drlb) Availability - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/-new-insights-on-care-for-women-and-girls-with-bleeding-disorders monthly 0.5 2026-02-19 https://www.hemob.org/resource-library/01-21-2026 monthly 0.5 2026-01-28 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e4cb731f-f8ae-418d-9d82-942dfa400875/605158504_1299426338894136_2177999690213081678_n.jpg Resource Library - The Coalition for Hemophilia B Update on Marstacimab (Hympavzi®) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/01-15-2026 monthly 0.5 2026-01-15 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d6e55d91-55a3-4d8d-8a5f-4a82dac464e1/ny+senate.jpg Resource Library - Senator Honors The Coalition for Hemophilia B for 35 Years of Service - Make it stand out Kim Phelan, CEO of The Coalition for Hemophilia B (left) with New York State Senator Joseph P. Addabbo, Jr. https://www.hemob.org/resource-library/01-13-2026 monthly 0.5 2026-01-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cd742dea-f27e-4100-8374-b4d4bf703b37/James+Romano+Bio+%281%29.png Resource Library - New Jersey Joins Growing List of States Passing Copayment Accumulator Bans - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/12-23-2025 monthly 0.5 2026-01-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e4cb731f-f8ae-418d-9d82-942dfa400875/605158504_1299426338894136_2177999690213081678_n.jpg Resource Library - The Coalition for Hemophilia B Statement on Marstacimab (Hympavzi®) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/11-21-2025 monthly 0.5 2025-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1746107973510-9SC09K52JB2X9TEDF6JR/A+MESSAGE+FROM+KIM+PHELAN-4.png Resource Library - The Coalition Calls on Congress to Pass Two Key Bills - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-heart-of-a-movement monthly 0.5 2025-11-18 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ac12a117-0080-45aa-9f87-c5862fc27f4b/Hemo+B+Symposium+Flyers+2023+%288.5+%C3%97+5.5+in%29.jpg Resource Library - The Heart of a Movement - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a404cd56-8107-4675-8eec-cc2fa47c68ad/Screenshot+2025-11-17+at+10.11.10%E2%80%AFAM.png Resource Library - The Heart of a Movement - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/11-04-2025 monthly 0.5 2025-11-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cd742dea-f27e-4100-8374-b4d4bf703b37/James+Romano+Bio+%281%29.png Resource Library - Update on What’s Happening in Government - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/10-31-2025 monthly 0.5 2025-11-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1746107973510-9SC09K52JB2X9TEDF6JR/A+MESSAGE+FROM+KIM+PHELAN-4.png Resource Library - Act Now: Keep Health Care Affordable! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183867944-8ZYOPFEX466DZ5MC06PN/F4288452-5A35-4061-8812-E027EF876CEF.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183868531-VXU91NLW81X9OQWTFQ11/E4EE6CF1-AE26-4104-85CF-E258645EC131.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183869662-13U67EW8UGYUNT8ZEGF0/D6C5C2F6-0D9E-4455-B034-48A3CBDC35F4.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183870468-KK5OWTUA6F6CDAZD6XNF/64F8ECB7-8B50-42FD-8C97-245E5EEDC977.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183871689-98FWNW1EMM2XW3YO0U03/IMG_2184.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183872380-6Z9LS9H83XC1WZIAUJOA/4CFCD6C2-C258-44A2-B735-00403B62B3D8.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183873795-L8A0PSMI6YWM1PW7C0CL/44A2DE3D-DCA0-42FA-ABF6-733AB0607A56.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183874561-AUDXVULH9DJUP6THBYD1/3F5BE1D1-B7C9-4E0F-974A-2C1A4573B09F.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183875270-SNC2AZVR3X4H2AEDW781/2A6EB5D4-8DFD-4263-9C89-52AF957E8C0A.JPG Resource Library - Act Now: Keep Health Care Affordable! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1762183875923-DJHP0I167J4GX2NSKOXU/0250E545-3141-4FA6-8466-FC7AEE103555.JPG Resource Library - Act Now: Keep Health Care Affordable! https://www.hemob.org/resource-library/july-28-2025 monthly 0.5 2025-10-31 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1753801237156-JSGM86B3K2KTL7BKF87A/Lee+Hall.png Resource Library - Major Health Policy Changes Ahead - Make it stand out Lee Hall https://www.hemob.org/resource-library/landscape-spring-2025 monthly 0.5 2025-07-28 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b1dae397-4041-404d-81d0-311eb4c0f046/Dr.+Clark+bio.png Resource Library - Hemophilia Landscape Updates - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/june6 monthly 0.5 2025-06-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1ef38c59-02a8-4d10-92b5-983c54d68cdf/Screenshot+2025-06-09+at+3.38.56%E2%80%AFPM.png Resource Library - Patient Coalition Condemns House-Passed H.R. 1 for Stripping Coverage from Millions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/june3 monthly 0.5 2025-06-02 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1746107973510-9SC09K52JB2X9TEDF6JR/A+MESSAGE+FROM+KIM+PHELAN-4.png Resource Library - Your Voice is Needed: Protect Medicare, Medicaid, ACA, and SNAP - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/budgetbill monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1746107973510-9SC09K52JB2X9TEDF6JR/A+MESSAGE+FROM+KIM+PHELAN-4.png Resource Library - Devastating Budget Bill Passed in House: We Must Keep Fighting - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/roadmap monthly 0.5 2025-05-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1746107973510-9SC09K52JB2X9TEDF6JR/A+MESSAGE+FROM+KIM+PHELAN-4.png Resource Library - Roadmap for Advocacy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/cdc-critical-changes-ash monthly 0.5 2025-04-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6dc2da3d-2ebe-43fd-ac85-7a3b8455458b/A+MESSAGE+FROM+KIM+PHELAN-2.png Resource Library - We stand with The American Society of Hematology (ASH) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/cdc-critical-changes monthly 0.5 2025-05-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6dc2da3d-2ebe-43fd-ac85-7a3b8455458b/A+MESSAGE+FROM+KIM+PHELAN-2.png Resource Library - An Important Message From Our CEO - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/qfitlia monthly 0.5 2025-12-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dfb9a894-b4ce-4f5e-a23d-04cf161aed0e/Screenshot+2025-03-29+at+1.03.54%E2%80%AFPM.png Resource Library - Qfitlia approved as the first therapy in the US to treat hemophilia A or B with or without inhibitors - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/insurance-companies monthly 0.5 2025-03-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1738877390345-T5GVI1PHXXD92LPIR7RM/Screen+Shot+2025-02-06+at+3.29.32+PM.png Resource Library - What’s Happening with Insurance Companies - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/meet-connor monthly 0.5 2025-03-25 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4f86efc2-d375-47e3-b9af-14e96ffc13cd/Screen+Shot+2025-02-06+at+10.34.48+AM.png Resource Library - Meet Connor - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f6acd2ce-f0b4-4a3a-a90b-677310e72f63/Screen+Shot+2025-02-06+at+10.34.59+AM.png Resource Library - Meet Connor - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ff65dedd-3375-42ee-9671-aae658992e55/Screen+Shot+2025-02-06+at+10.36.13+AM.png Resource Library - Meet Connor - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d0d3ba5c-0797-410d-b3d0-402825324bb3/Screen+Shot+2025-02-06+at+10.36.23+AM.png Resource Library - Meet Connor - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-greatest-paradox-to-growth-and-fulfillment monthly 0.5 2025-03-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ca36ce7f-ed80-4dc1-9908-fd0dab30e1d0/Screen+Shot+2025-03-10+at+5.42.22+PM.png Resource Library - The Greatest Paradox To Growth and Fulfillment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/52378cea-f604-47ea-bd11-7a79fa517bab/Screen+Shot+2025-03-10+at+5.42.12+PM.png Resource Library - The Greatest Paradox To Growth and Fulfillment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/medicaid-cuts-could-impact-bleeding-disorder-care-take-action-now monthly 0.5 2025-03-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1738877390345-T5GVI1PHXXD92LPIR7RM/Screen+Shot+2025-02-06+at+3.29.32+PM.png Resource Library - Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/sanofi-advocacy-event monthly 0.5 2025-02-25 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/29280218-aab3-4193-9c80-b3a5888c9b97/Screenshot+2025-02-25+at+10.39.24%E2%80%AFAM.png Resource Library - Reflections on the 2025 Sanofi Patient Advocacy Council - Make it stand out Pictured left to right: Jeff Schaffnit, Phil Gattone, Kim Phelan, Dawn Rotellini, Jane Cavanaugh Smith, and Dan Kelsey https://www.hemob.org/resource-library/pfizer-discontinues-gene-therapy-for-hemophilia-b monthly 0.5 2025-02-24 https://www.hemob.org/resource-library/here-comes-the-fun monthly 0.5 2026-02-19 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8cb5103d-da72-4ad1-8fd2-bc95f62e1d4e/Screen+Shot+2025-01-26+at+1.16.15+PM.png Resource Library - Marie Ferrell - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dd9ade4a-bea4-45e7-9db6-2ff16723d92e/Screen+Shot+2025-01-26+at+1.16.28+PM.png Resource Library - Marie Ferrell - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5d5a0eb9-9d05-4641-be81-29d80c1d8822/Screen+Shot+2025-01-26+at+1.16.41+PM.png Resource Library - Marie Ferrell - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c7c468cb-5523-46a6-9cb7-7c67eaaa497b/Screen+Shot+2025-01-26+at+1.16.52+PM.png Resource Library - Marie Ferrell - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/meet-daniel monthly 0.5 2025-06-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5d534ee1-032f-4487-91e2-59cf5af4e9fd/Daniel+Howard+-+School.jpg Resource Library - Meet Daniel!&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6d47c7a1-3173-40a6-a7bd-2d96a00a5c2c/Daniel+Howard+-+Baseball+Award.jpg Resource Library - Meet Daniel!&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6c3f928b-6cd8-47c3-a87b-c43ca57590cb/IMG_6067.jpeg Resource Library - Meet Daniel!&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/izzy-is-finding-her-voice-both-on-and-off-stage monthly 0.5 2025-02-10 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/919b90d6-d0e1-4ed5-9311-687d4b7a9423/Screen+Shot+2025-02-06+at+1.55.41+PM.png Resource Library - Izzy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6dee6ff8-589a-4dfe-a0a1-fb3ab7915ab4/Screen+Shot+2025-02-06+at+1.55.29+PM.png Resource Library - Izzy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ecb2db11-7b0b-46f9-ad9b-61788219a97b/Screen+Shot+2025-02-06+at+1.55.18+PM.png Resource Library - Izzy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/football-pharmacy-and-fighting-the-good-fights monthly 0.5 2025-02-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cae9bb84-79fd-4125-9541-e5a8cd1959e1/Screen+Shot+2025-02-04+at+11.47.24+AM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3ed7dbbf-5761-4306-bf4a-a5df285d12f8/Screen+Shot+2025-02-05+at+6.43.31+PM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/667977e0-b3c6-4aca-837f-8a0858b5064a/Screen+Shot+2025-02-04+at+11.54.47+AM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6234bdd7-f774-4c0f-9c27-e0c91c55a2bd/Screen+Shot+2025-02-04+at+11.54.54+AM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f6ed978c-7d07-438a-ac00-6713f1016de0/Screen+Shot+2025-02-04+at+11.58.54+AM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f9c43930-6f94-4c35-9d33-f70c3c6f26dc/Screen+Shot+2025-02-04+at+11.55.07+AM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/86672148-e128-4d5b-8469-22fcacaab112/Screen+Shot+2025-02-04+at+11.58.40+AM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6996335a-23e1-4779-93c7-f1063e1e12cf/Screen+Shot+2025-02-05+at+6.43.19+PM.png Resource Library - Captain Bill Patsakos - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/cyberbullying-and-social-media monthly 0.5 2025-03-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8ad88df5-3e7b-4934-a9a5-5a7868e3ca09/Screen+Shot+2025-02-06+at+3.42.19+PM.png Resource Library - Cyberbullying and Social Media - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/163ba39e-76ca-4f43-8632-9ada8d7e281b/Screen+Shot+2025-02-06+at+3.42.09+PM.png Resource Library - Cyberbullying and Social Media - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/beats2024 monthly 0.5 2025-02-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/db42f8c8-f835-4d9e-a0df-f0b4416ddbf8/Screen+Shot+2025-02-06+at+11.15.24+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/aa1f1d07-8cd4-409d-b1f1-8adf5b672604/Screen+Shot+2025-02-06+at+11.15.46+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/12e8f4b4-50be-47eb-8ac9-88c7d9754b00/Screen+Shot+2025-02-06+at+11.15.59+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5b82e495-5d66-40f2-b88f-7a3a93923675/Screen+Shot+2025-02-06+at+11.17.32+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/94cbbe9e-0b13-4d01-a152-19d3ccc11227/Screen+Shot+2025-02-06+at+11.15.34+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6d39695b-8c2f-47a4-980e-41c24c48aeac/Screen+Shot+2025-02-06+at+11.01.16+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c388a03b-4afa-49c5-a54d-319f4bdcc4f5/Screen+Shot+2025-02-06+at+11.01.27+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a95a450f-bd1d-4fb0-b237-c75b34140161/Screen+Shot+2025-02-06+at+11.01.36+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/33484073-f15b-4f3a-a779-2ffed2640e14/Screen+Shot+2025-02-06+at+11.14.54+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/49edc811-b7fd-4a37-b5ef-180356910c37/Screen+Shot+2025-02-06+at+11.14.42+AM.png Resource Library - The Beats Program - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-world-of-work monthly 0.5 2025-02-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dcef77d0-c1a3-42ee-a354-bc2fd9bd42bc/Screen+Shot+2025-02-03+at+3.56.29+PM.png Resource Library - THE WORLD OF WORK - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/new-hemophilia-b-classifications-for-women monthly 0.5 2025-02-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9180836d-b572-4284-8a11-c49f11be61c5/Screen+Shot+2025-02-03+at+3.00.42+PM.png Resource Library - Hemophilia B Classifications for Women - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/htc-funding monthly 0.5 2025-02-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1738627164762-T5GC9DK63M2F3CPZ70WF/CHB+Virtual+Events+%2833%29.jpg Resource Library - Federal Funding and Hemophilia Treatment Centers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/ashleyzebley monthly 0.5 2025-02-01 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/86265423-9dd9-48bc-b12d-b980885e72d6/Screen+Shot+2025-01-26+at+1.42.45+PM.png Resource Library - Ashley Zebley - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d71d6c41-5800-492f-b523-a5a83ebd3185/Screen+Shot+2025-01-26+at+1.43.05+PM.png Resource Library - Ashley Zebley - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d99cfca2-2e20-4e7c-800a-e814c7d8267a/Screen+Shot+2025-01-26+at+1.43.17+PM.png Resource Library - Ashley Zebley - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/heidi monthly 0.5 2025-02-01 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/08d073d5-d82f-4437-a79b-20a6a2f3579d/Screen+Shot+2025-01-26+at+12.16.25+PM.png Resource Library - Heidi - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f427af4c-f4c5-4fe2-99b4-9a0cfa0f1ae3/Screen+Shot+2025-01-26+at+12.16.36+PM.png Resource Library - Heidi - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0df31327-ba9d-4774-bc95-4073fc6d341c/Screen+Shot+2025-01-26+at+12.16.57+PM.png Resource Library - Heidi - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/pediatric-vouchers monthly 0.5 2025-02-01 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1731094534454-XKDQGFSMUZFRFUVX0YMG/James+Romano+Bio+%282%29.png Resource Library - Rare Pediatric Disease &amp; Priority Review Vouchers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/73a5cdc7-a6c4-4be8-aa7d-171a4eeb394f/Screen+Shot+2025-01-26+at+2.24.12+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/798a7501-b52e-4397-8c7c-320cbf7fa2f1/Screen+Shot+2025-01-26+at+2.24.25+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Dr. Dave and Linda married for 27 years and going strong! They love traveling, hiking and spending time in nature. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/67560ae3-582a-4709-9cf4-97234b1ddc39/Screen+Shot+2025-01-26+at+2.27.00+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Dr. Dave with Bill Drohan’s daughters, Kathleen, Colleen and Maureen, giving out the William N. Drohan Scholarships at the Eternal Spirit Award Dinner https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/322cc2d0-5a13-4403-96a2-1ed75c5868f2/Screen+Shot+2025-01-26+at+2.28.27+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/32f817cb-e627-455e-b0de-9cd8550c4c3e/Screen+Shot+2025-01-26+at+2.29.26+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f0b723e1-1a99-4914-aaf1-26087cfa3b41/Screen+Shot+2025-01-26+at+2.30.31+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Dr. Dave had a blast working with Patrick Lynch at the Science Fair. He loves working with various organizations and is always eager to help! https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d7c9fca4-adf2-41e9-83fa-941d0c0bc7f5/Screen+Shot+2025-01-26+at+2.31.42+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a01815c4-3e6d-4e82-adad-298505d11232/Screen+Shot+2025-01-26+at+2.33.10+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/be9545f8-ee35-42a4-9e9f-00676f9187e5/Screen+Shot+2025-01-26+at+2.33.54+PM.png Resource Library - Getting to Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemlibra-for-hemophilia-b monthly 0.5 2025-02-06 https://www.hemob.org/resource-library/prophylaxis-for-mild-or-moderate-hemophilia-bnbsp monthly 0.5 2025-02-04 https://www.hemob.org/resource-library/cognitive-and-behavioral-outcomes-in-children-with-hemophilia monthly 0.5 2025-01-27 https://www.hemob.org/resource-library/awareness-and-diagnosis-of-heavy-menstrual-bleeding-among-physicians-and-patients monthly 0.5 2025-01-25 https://www.hemob.org/resource-library/hemophilia-carriers-have-qol-comparable-to-women-with-vwd-and-other-bleeding-disorders monthly 0.5 2025-01-27 https://www.hemob.org/resource-library/women-with-hemophilia-have-more-depression-anxiety-and-fatigue-than-men monthly 0.5 2025-01-27 https://www.hemob.org/resource-library/distribution-of-alprolix-in-the-blood-vessel-wall monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/history-of-hemophilia-in-women monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/characteristics-of-hemophilia-in-women monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/bone-mineral-density-and-hemophilia monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/ehlers-danlos-factor-ix-and-vitamin-c monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/epilepsy-and-intracranial-hemorrhage monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/impact-of-natural-variation-in-clotting-factor-levels-on-bleeding-in-hemophilia monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/cancer-in-people-with-hemophilia-and-hiv-infection monthly 0.5 2025-01-24 https://www.hemob.org/resource-library/isth-guidelines monthly 0.5 2025-01-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0f882de6-f4a1-46bf-9ce5-2b299b4c27cd/Dr.+David+clark.png Resource Library - Controversy over ISTH Hemophilia Treatment Guidelines - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/plasma-hero monthly 0.5 2025-01-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ebea1281-8087-458c-bb0c-87ef1a17bac8/Nemo+Delgado+1.jpeg Resource Library - Our plasma hero - Make it stand out Nemo Delgado https://www.hemob.org/resource-library/pfizer-advocacy-meeting monthly 0.5 2025-01-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cd742dea-f27e-4100-8374-b4d4bf703b37/James+Romano+Bio+%281%29.png Resource Library - Pfizer Advocacy Meeting - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-emerging-therapies monthly 0.5 2025-01-22 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b1dae397-4041-404d-81d0-311eb4c0f046/Dr.+Clark+bio.png Resource Library - Hemophilia Landscape Emerging Therapies - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/open-enrollment-2025 monthly 0.5 2024-12-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d9578c38-ad25-4d16-a32f-dae206ce5d2d/advocacy.png Resource Library - 2025 Open Enrollment Notification - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/jennifer-hastie monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6aec56b6-69fa-4d3f-aa3c-b9600b0f48c4/jh+daughters.jpg Resource Library - Jennifer Hastie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/eb34692b-d2fb-4e1b-b847-611be1a06d87/jh+boggy+creek.jpg Resource Library - Jennifer Hastie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/living-with-hemophilia-b-anna-maries-story-of-resilience-and-learning monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c3e17c0d-c672-4c21-aae0-2c4db6932533/IMG_20240106_102610782.jpg Resource Library - Anna-Marie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2646ebb8-b2c1-4b34-bd7d-bd5b503760e5/IMG_20240611_200035.jpg Resource Library - Anna-Marie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9d0f0f99-7021-4188-b15e-ee23d9b95ed8/IMG_20240430_211831.jpg Resource Library - Anna-Marie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7bfe0680-b345-4ed6-aa00-fb19ff0a3c0d/IMG_20240430_211851.jpg Resource Library - Anna-Marie - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-factor-levels-in-hemophilia-b-carriers monthly 0.5 2024-11-15 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/289a6e17-db3c-4f39-9737-177226225c0f/Dr.+Clark+Factor+Levels+in+Hemophilia+B+Carriers%C2%A0.png Resource Library - Factor Levels in Hemophilia B Carriers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/kim-phelan-speaks-on-panel monthly 0.5 2025-01-24 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d9578c38-ad25-4d16-a32f-dae206ce5d2d/advocacy.png Resource Library - Kim Phelan Speaks at Congressional Briefing on Gene Therapies - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e308f27a-3d35-46fb-ba5c-f4a493038225/IMG_2576.jpeg Resource Library - Kim Phelan Speaks at Congressional Briefing on Gene Therapies - Make it stand out Kim Phelan, fourth from left. https://www.hemob.org/resource-library/drclark-scramblases monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0216e44d-e296-43e1-a08c-d50ed29de5b6/Dr.+Clark+Scramblases.png Resource Library - Scramblases - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e0552cab-02da-4486-8eb4-1ee9333c0898/Screenshot+2024-11-08+at+7.36.43%E2%80%AFPM.png Resource Library - Scramblases - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-iron-overload-in-hemophilia-joint-damage monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d436f225-eecd-4372-80db-58d8bbfaedc8/Dr.+Clark+Iron+Overload+in+Hemophilia+Joint+Damage.png Resource Library - Iron Overload in Hemophilia Joint Damage - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-intradermal-injection-can-cause-inhibitor-development monthly 0.5 2024-11-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/137a4da3-93a4-48d7-97a2-97272413cb44/Dr.+Clark+Intradermal+Injection+Can+Cause+Inhibitor+Development.png Resource Library - Intradermal Injection Can Cause Inhibitor Development - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-inhibitors-product-used monthly 0.5 2024-11-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/40ee6bb1-f42e-4e25-a10e-b69ec2fc198a/Dr.+Clark+Inhibitor+Development.png Resource Library - Is Inhibitor Development Affected by the Product Used? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-hemophilia-carrier-screening monthly 0.5 2024-11-15 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/61e7d0ab-90e0-4a25-9c69-e50d086a4b6b/Dr.+Clark+Hemophilia+Carrier+Screening.png Resource Library - Hemophilia Carrier Screening - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-what-treatments-are-received-by-patients-with-inhibitors monthly 0.5 2024-11-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cb7bd8a8-1bb4-4f9e-97a1-86c1dedf4f08/Dr.+Clark+What+treatments+are+received+by+patients+with+inhibitors.png Resource Library - What treatments are received by patients with inhibitors? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-inhibitors-in-hemophilia-a-and-b-might-occur-by-different-mechanisms monthly 0.5 2024-11-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dc6b72f9-ff89-44db-9cd9-d8a75246d029/Dr.+Clark+Inhibitors+in+Hemophilia+A+and+B+Might+Occur+by+Different+Mechanisms.png Resource Library - Inhibitors in Hemophilia A and B Might Occur by Different Mechanisms - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/historic-milestone-the-coalition-for-hemophilia-b-supports-inaugural-congressional-briefing-on-women-with-bleeding-disorders monthly 0.5 2025-01-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cd742dea-f27e-4100-8374-b4d4bf703b37/James+Romano+Bio+%281%29.png Resource Library - Historic Milestone: The Coalition for Hemophilia B Supports Inaugural Congressional Briefing on Women with Bleeding Disorders - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-association-of-joint-status-and-pain-with-depression-anxiety-and-stress monthly 0.5 2025-01-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bcacc7fd-1ffc-44fa-97a3-0b7422cc4ac3/Dr.+Clark+Association+of+Joint+Status+and+Pain+with+Depression%2C+Anxiety+and+Stress+.png Resource Library - Joint Health, Pain, and Mental Well-Being - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-does-prophylaxis-help-prevent-joint-damage monthly 0.5 2024-11-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/599a474e-2fe3-456d-9588-b5078f6717e7/Dr.+Clark+Does+Prophylaxis+Help+Prevent+Joint+Damage.png Resource Library - Does Prophylaxis Help Prevent Joint Damage?&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-jointbleedsmild monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a052ff19-b9bb-482f-9db2-ffac39af5a25/Dr.+Clark+joint+bleeds+mild+hemophilia.png Resource Library - Joint Bleeds in Mild Hemophilia&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclarktreadmill monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0152550b-9d75-4bf4-9193-e30945f0cceb/Dr.+Clark+arthropathy.png Resource Library - Force-Sensing Treadmill to Detect Arthropathy&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-youngcarriers monthly 0.5 2024-11-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6c249fd5-5742-44df-ae16-36046b89040a/Dr.+Clark+carriers.png Resource Library - Bleeding in Young Hemophilia Carriers&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-mentalhealth monthly 0.5 2025-01-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/568ef152-db17-4641-9867-07847e7d4791/Dr.+Clark+mental+health.png Resource Library - Mental Health of Hemophilia Carriers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/drclark-postpartumhemorrage monthly 0.5 2024-11-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/46b4aadb-7ea4-41ad-af67-8f96ab110b82/Dr.+Clark+postpartum+hemmorage.jpg Resource Library - Postpartum Hemorrhage in Women with Bleeding Disorders&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/theresa-mitchell monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/12d32459-4509-4c78-91ee-b582f3945937/Mark+%26+Theresa+Mitchell+at+Hemophilia+gala.JPG Resource Library - Theresa Mitchell - Make it stand out Theresa and her husband Mark https://www.hemob.org/resource-library/supporting-health-equity-and-chronic-disease-care-through-key-cms-letters monthly 0.5 2025-01-27 https://www.hemob.org/resource-library/jointpain monthly 0.5 2024-11-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1724954505507-DSXKC94F45K2A0A7QNKR/Dr.+David+clark+%281600+x+900+px%29+%283%29.png Resource Library - Bones and Joints and Pain, Oh My! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/qualityoflifestudy monthly 0.5 2024-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1724956822917-CHRFCHWQ27HD24S34Q18/Dr.+David+clark+a+vs+b.png Resource Library - No Difference in Quality of Life Between Hemophilia A and B. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a8e1d51a-a6f7-41ac-90f8-a4a71e637d4f/Dr.+Clark.jpg Resource Library - No Difference in Quality of Life Between Hemophilia A and B. - Make it stand out Dr. David Clark https://www.hemob.org/resource-library/thrombin monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f84483ba-5a62-4c41-881d-13b25cab3803/Dr.+David+clark+thrombin.png Resource Library - Thrombin Generation as an Indication of Hemophilia Severity - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/painandmedication monthly 0.5 2025-01-27 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1724957906532-PO3MIQACXU5M253UQ16B/Dr.+David+clark+pain.png Resource Library - Pain, Depression, and Anxiety Drugs in Hemophilia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a8e1d51a-a6f7-41ac-90f8-a4a71e637d4f/Dr.+Clark.jpg Resource Library - Pain, Depression, and Anxiety Drugs in Hemophilia - Make it stand out Dr. David Clark https://www.hemob.org/resource-library/results-from-my-life-our-future monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1724957951730-YG3V471D6X9MP3ES3HEC/Dr.+David+my+life+our+future.png Resource Library - Results from My Life, Our Future - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a8e1d51a-a6f7-41ac-90f8-a4a71e637d4f/Dr.+Clark.jpg Resource Library - Results from My Life, Our Future - Make it stand out Dr. David Clark https://www.hemob.org/resource-library/diagnosis-of-ptsd monthly 0.5 2025-03-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/970fd208-942a-425f-8ba0-d3a9893d6121/PTSD.png Resource Library - Increasing PTSD Awareness&nbsp; - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/alternative-funding-mechanisms-cta monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c20e50a9-2d03-4d86-a5aa-a7597133ddb2/TakeAction.png Resource Library - Alternative Funding Mechanisms - A Call to Action - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/ask-jen-how-fluctuating-factor-levels monthly 0.5 2024-11-14 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/89e469cb-4bf0-426f-bde7-d8e80ba679e6/Ask+Jen+Factor+Levels+%282%29.jpg Resource Library - Ask Jen: How Common Are Fluctuating Factor Levels in Women? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/ask-jen-how-do-i-find-community monthly 0.5 2024-11-14 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/fa10cbfd-eedd-4e8d-8128-acba96fc2690/Ask+Jen+Connect.jpg Resource Library - I Feel Isolated with Hemophilia in My Small Town—How Can I Connect with Others? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/current-products-for-hemophilia-b-treatment-may-2024 monthly 0.5 2024-11-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1611ebc4-bccb-4e72-940c-c549eeddde9e/Dr.+Clark+Product+landscape.jpg Resource Library - Current Products for Hemophilia B Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8adfb055-f0a5-49ae-b69b-c71a57858923/ProductLandscape524Table1.1.png Resource Library - Current Products for Hemophilia B Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b2b6dd49-9717-4563-bf05-db1e25c1d6c2/ProductLandscape524Table2.png Resource Library - Current Products for Hemophilia B Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ce8ef723-aad3-4d68-9c63-a938bb44d921/ProductLandscape524Table3.png Resource Library - Current Products for Hemophilia B Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6125e7b0-898e-4cfb-b0f0-41f636f5b87c/ProductLandscape524Table4.png Resource Library - Current Products for Hemophilia B Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/392f58e8-13dc-42ea-9f0a-d62e0613e7a0/ProductLandscape524Table5.png Resource Library - Current Products for Hemophilia B Treatment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hhs-enacts-new-rule-to-enhance-disability-discrimination-protections monthly 0.5 2024-11-14 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1e29ed9e-c143-4b1e-87c9-8cda1e5ec293/HHS.jpg Resource Library - HHS Enacts New Rule to Enhance Disability Discrimination Protections - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/chb-action-alert monthly 0.5 2024-11-07 https://www.hemob.org/resource-library/turning-a-no-to-a-yesthe-art-of-advocacy monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1731094534454-XKDQGFSMUZFRFUVX0YMG/James+Romano+Bio+%282%29.png Resource Library - Turning a No to a Yes—The Art of Advocacy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/danas-living-her-life-with-no-regrets monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f1e1502e-8352-46c1-992a-026ef0f4f9ee/Dana1.jpg Resource Library - Dana - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6f11b968-aa2c-49a2-8839-fedc997576d5/Dana2.jpg Resource Library - Dana - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c8b963f2-4b23-40b2-a96d-f7e5d09ea7ae/Dana3.jpg Resource Library - Dana - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/97332586-cdde-4b40-82c0-6253319fe1eb/Dana4.jpg Resource Library - Dana - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/ask-jen-how-do-i-travel-with-medications monthly 0.5 2024-12-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a230993b-41ea-4df3-a1cc-dae9124dd74f/Ask+Jen+travel.png Resource Library - Ask Jen: How do you travel with medications for hemophilia? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/sew-connected monthly 0.5 2024-11-09 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/05048217-0b74-4cf9-a6d1-6a78e4cf8098/ChristianHarris1.jpg Resource Library - Sew Connected! From Hemophilia Advocate to Fashion Innovator - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0e763e5b-5a16-4efb-8cd7-d6670d753551/ChristianHarris8.jpg Resource Library - Sew Connected! From Hemophilia Advocate to Fashion Innovator - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/77203171-7ff8-4059-a37c-a228255583cd/ChristianHarris5.jpg Resource Library - Sew Connected! From Hemophilia Advocate to Fashion Innovator - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c07f8f1d-be66-4aa9-b725-b8314510ef83/ChristianHarris2.jpg Resource Library - Sew Connected! From Hemophilia Advocate to Fashion Innovator - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/143929b0-9b99-4688-aa91-2518757e765d/ChristianHarris6.jpg Resource Library - Sew Connected! From Hemophilia Advocate to Fashion Innovator - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f0fb628f-e070-44d1-919b-0cc10b73c8e9/ChristianHarris3.jpg Resource Library - Sew Connected! From Hemophilia Advocate to Fashion Innovator - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/pharmacy-benefit-managers-the-squeeze-is-on-the-health-care-middlemen monthly 0.5 2024-11-09 https://www.hemob.org/resource-library/ask-jen-how-do-i-get-my-doctor-to-take-me-seriously monthly 0.5 2024-11-14 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1730905756694-RYJE6SU8M6GSR0LTU6UY/Ask+Jen+serious.png Resource Library - Ask Jen: How do you get your doctor to take you seriously? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemophilia-emerging-therapies-january-2024 monthly 0.5 2024-02-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9c476856-8ccb-4fc4-bab9-5ac8f4086625/Emerging+Therapies.jpg Resource Library - Hemophilia Emerging Therapies - January 2024 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/tampa-general-hospital-first-in-florida-to-administer-hemgenix-for-hemophilia-b monthly 0.5 2024-11-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b7bb48fc-eaf2-4543-b74f-55ad9891ebd1/Medical+News.jpg Resource Library - Tampa General Hospital First in Florida to Administer Hemgenix for Hemophilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/coalition-for-hemophilia-b-applauds-administration-for-dropping-challenge-to-copay-assistance-case monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6633e2fc-aec4-4cb1-bd32-04b4b499d849/AffordableMedicalCare.jpg Resource Library - Coalition for Hemophilia B Applauds Administration for Dropping Challenge to Copay Assistance Case - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/symposium-2023-powerful-connections-and-unforgettable-moments monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2e6c1568-198f-481c-8353-ad67988debf6/Screenshot+2024-01-12+at+12.05.07%E2%80%AFPM.png Resource Library - Symposium 2023: Powerful Connections and Unforgettable Moments - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hfa-symposium monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bade2d09-02c7-45d2-b101-79ccac0d02ba/Screenshot+2024-01-12+at+12.15.12%E2%80%AFPM.png Resource Library - HFA Symposium 2023 Recap - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/nords-40th-rare-impact-award-gala monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/32d4936f-5b04-4465-8b24-dc5ab2a6f62f/Screenshot+2024-01-12+at+12.23.11%E2%80%AFPM.png Resource Library - NORD’S 40th Rare Impact Award Gala - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/will-the-medicaid-program-catch-up-with-innovation monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1704749232835-X2YTUP8PX2TXL12J0ZM4/medicaid_benefits.jpg Resource Library - Will the Medicaid Program Catch Up with Innovation? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/mining-for-gold-in-the-what-ifs-an-interview-with-kristin-shelton monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0ea09f75-c0d1-4f5d-888e-556056dac002/Screenshot+2024-01-08+at+4.12.36%E2%80%AFPM.png Resource Library - Kristin Shelton - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/navigating-life-a-journey-of-diagnosis-care-and-personal-growth monthly 0.5 2025-03-06 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/78821d74-d740-4e0a-a93d-749d435004fb/Screenshot+2024-01-08+at+4.09.54%E2%80%AFPM.png Resource Library - Christine Bond - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/fix-eds-and-clotting-research-history monthly 0.5 2024-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1731112958475-T1Q9YZH0TZUXEBNNUYNJ/Dr.+Clark+FIX%2C+EDS+and+Clotting+Research+History.png Resource Library - FIX, Ehlers-Danlos Syndrome and Clotting Research History - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/577f6101-42d8-4768-a202-28cf77bb26f4/Screenshot+2024-01-08+at+3.45.43%E2%80%AFPM.png Resource Library - FIX, Ehlers-Danlos Syndrome and Clotting Research History - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/four-questions-and-eight-things-to-consider-before-committing-to-a-gene-therapy-trial monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3d52f68f-2036-41b2-8102-130c99db7941/Screenshot+2024-01-08+at+3.33.46%E2%80%AFPM.png Resource Library - Four Questions and Nine Things To Consider Before Committing to a Gene Therapy Trial - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemophilia-emerging-therapies-december-2023 monthly 0.5 2024-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3e93bf2e-925f-4257-a3fd-234bbee811f6/Novo+Nordisk+Logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b73d3def-05f9-46ad-bae7-a563d50834f0/Centessa+Logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6ed7b850-84d8-4284-8a36-78a6f48818d9/Pfizer-logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6ed7b850-84d8-4284-8a36-78a6f48818d9/Pfizer-logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/241f0903-2159-4d6a-871d-91746e2672ad/Sanofi+Logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b1e6e7be-2146-44bf-9ef9-964aeae91626/Be+Biopharma+Logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/44746b77-b77d-437d-8bf5-e119dab939bf/CSL+Logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5405e381-9374-4fb9-99c0-de54d4089379/Freeline+logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6ed7b850-84d8-4284-8a36-78a6f48818d9/Pfizer-logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/79c5074d-fc7c-487b-af3e-e2b89967684c/St+Jude+Logo.jpg Resource Library - Hemophilia Emerging Therapies - December 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/novo-nordisk-announces-shortage-of-8-mg-vial-size-of-novoseven-rt monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a6a6bdcb-155a-4438-98eb-97045d4e91fb/download.png Resource Library - Novo Nordisk Announces Shortage of 8 mg Vial Size of NovoSeven® RT - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/katy-haigood-is-coming-out-on-top-and-soaring-to-new-heights monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0a84c674-a8a6-46bd-9c81-24c1b2716b6d/Katy%27s+Family.jpg Resource Library - Katy Haigood - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemophilia-landscape-updates-december-2023 monthly 0.5 2024-01-29 https://www.hemob.org/resource-library/thoughts-from-an-old-car-nut monthly 0.5 2024-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8eea2bd5-2ff6-4787-bc5e-b14cebc4dc5d/Dave+Berkemann.jpg Resource Library - Thoughts From an Old Car Nut - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f42d9e27-9993-43e5-9337-034b197b3d45/DaveBerkemann.jpg Resource Library - Thoughts From an Old Car Nut - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/my-gene-therapy-journey monthly 0.5 2024-11-12 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1275537b-20b1-4737-bb86-f98d4cdcdd44/BrianOMahoney.jpg Resource Library - My Gene Therapy Journey - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d11272e6-7f78-4d17-9529-d9c43b8fec09/OMahoney_Articles.jpg Resource Library - My Gene Therapy Journey - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/what-i-wish-i-had-known monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dff5e604-fb90-4235-ba07-67a72593251c/PamWilliams.jpg Resource Library - Pam Williams - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ec1b2cc8-b58a-4799-9054-5d6ec67c9cee/PamWilliams_Family.jpg Resource Library - Pam Williams - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/39ca16cf-a46a-41e2-825f-6d0045373f67/PamWIlliamsGroup.jpg Resource Library - Pam Williams - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-art-of-pivoting-adjusting-to-an-unpredictable-world-sgfde monthly 0.5 2025-03-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0395e0e0-0a56-4dfb-8071-4c468b5b267d/Barkdull+1.jpg Resource Library - The Art of Pivoting: Adjusting to an Unpredictable World - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/behind-the-hemophilia-b-diagnosis-bjht7 monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/53165b85-37bb-4c23-9324-25b65b04ee50/tiffani+p.JPG Resource Library - Tiffani - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/teen-nothing-is-stopping-nick-k3dyw monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/62f2f2c7-81ba-4179-9644-711fecd39998/958EC7B3-A94F-4774-8BA3-A7E677C2299B+%281%29.jpeg Resource Library - TEEN: Nothing is Stopping Nick! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/317a1087-7eac-4779-b663-bb5a863750e7/IMG_1231+%281%29.jpeg Resource Library - TEEN: Nothing is Stopping Nick! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/58788044-155e-4e5f-a599-06743fccf04b/Cropped+Photo+to+Use+-+Nick.jpeg Resource Library - TEEN: Nothing is Stopping Nick! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/lisa-h monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2c7d969f-3c36-4638-860d-1425b68d4e0e/Lisa+and+James.jpeg Resource Library - Lisa H. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3757fdc7-9f0a-4339-a86e-4f06410eccf8/James+1.jpg Resource Library - Lisa H. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-beats-music-program-changes-live-5t26n monthly 0.5 2024-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/80f67654-021c-4edf-b2a2-62d4853e9823/Screen+Shot+2022-09-16+at+12.13.28+PM.png Resource Library - The Beats Music Program Changes Live - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemophilia-care-improves-in-cambodia-ppbmm monthly 0.5 2024-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5b12eaa3-b734-4630-a26d-bb11b0cb3512/Cambodia-header.jpeg Resource Library - Hemophilia Care Improves in Cambodia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-power-of-self-advocacy-for-women-bleeders-ja5tt monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c8056e92-805c-41f3-9452-aacc07e26f49/image_6487327_%282%29%5B1%5D.JPG Resource Library - Lauren Phillips - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9ae2ed0c-73c9-46f6-a0ee-63959fd02833/image_6487327_%281%29%5B1%5D.jpg Resource Library - Lauren Phillips - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bb04e5a0-569e-4d1e-87c1-47843a97513b/image_6483441_%282%29%5B1%5D.jpg Resource Library - Lauren Phillips - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/first-gene-therapy-for-hemophilia-b-is-approved-by-the-fda-eg853 monthly 0.5 2024-01-23 https://www.hemob.org/resource-library/wfh-gene-therapy-registry-now-live-m2yk9 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/38b94eba-770c-4dbb-a617-c923f5d26654/Screenshot+2023-01-27+214000.png Resource Library - World Federation of Hemophilia Gene Therapy Registry: now live! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/bridging-the-gap-between-diagnosing-and-treating-women-tpasx-gMi8d monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9dbbf829-fdfa-42d1-b767-9fc2840b31f3/Screen+Shot+2023-01-04+at+4.35.31+PM.png Resource Library - Stormy Woods Johnson - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemophilia-treatment-centers monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b98a4c98-e6c4-4c6f-8284-b2aa83b8336a/Screenshot+2023-08-21+at+7.49.41+AM.png Resource Library - Hemophilia Treatment Centers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-special-challenges-of-having-twins-with-hemophilia-one-moms-story-lfyfw monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a7b16b87-9e26-40cd-96d6-e6c3c661299f/A1EFC26D-F824-45C1-A385-C05DE40DFE96.jpeg Resource Library - The Special Challenges of Having Twins with Hemophilia: One Mom’s Story (Copy) - Make it stand out Kole and Karter https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e83da949-40a2-4853-aec1-b6636c1e6c8d/876BA0C4-6E4D-49C4-B3B5-001CF88F0002.jpeg Resource Library - The Special Challenges of Having Twins with Hemophilia: One Mom’s Story (Copy) - Make it stand out Kassidee, Karter, Stetson, Kole and Shealynn https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a5fe4202-4c23-441d-8492-7bd4d3a1271b/USE.jpeg Resource Library - The Special Challenges of Having Twins with Hemophilia: One Mom’s Story (Copy) - Make it stand out Worrisome times in the hospital https://www.hemob.org/resource-library/the-opportunity-of-my-life-getting-to-know-dr-david-clark-jn8sp monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659445787-SVHRPBGA8A5626L4QCS0/clark_linda.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Dr. Dave and Linda married for 27 years and going strong! They love traveling, hiking and spending time in nature. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660156285-D0R7R0BJG64C86JMJGW1/clark_7.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660059609-YI7IUIXXS32NEESW3BX9/clark_drohan.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660017248-E3Z4CFW3UN58H6C3S761/clark_8.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659957270-6I1YLUJC1T2CW09PJ3SC/clark_9.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659731124-28ZCERH49K1EG3L7D5EC/clark_11.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659703394-XDM67VVHVLI4DAFZEE0T/clark_10.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/finding-a-patienthealthcare-advocate monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/353f9dcb-f0b9-4a4b-92ec-3e94c894acc5/advocate.jpeg Resource Library - Empowering Your Healthcare Journey: Connect with Independent Patient Advocates - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/csl-behring-to-discontinue-mononine-7c496 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626464457017-SZH6GGYOH8FP0MYOZDGQ/discontinue.png Resource Library - CSL Behring to Discontinue Mononine - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/a-lifeline-of-hope-introducing-988-suicide-prevention-hotline monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/aacc961f-338f-4fdf-954b-09edf1f397b9/Screenshot+2023-08-14+at+9.40.32+AM.png Resource Library - A Lifeline of Hope: Introducing 988 Suicide Prevention Hotline - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/some-important-things-to-know-about-the-debt-ceiling-bill monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/40a30144-2b98-413a-8af5-3b2c565c5683/Screenshot+2023-08-14+at+9.48.29+AM.png Resource Library - Important Things to Know About the Debt Ceiling Bill - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/dismantling-gender-bias-to-ensure-equitable-hemophilia-treatment-in-women-and-girls monthly 0.5 2025-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/10bb8717-7302-4564-8ed8-7e791264e00d/istock-1223661711.jpg Resource Library - Dismantling Gender Bias to Ensure Equitable Hemophilia Treatment in Women and Girls - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/what-the-data-shows-on-copay-accumulator-adjustment-programs monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/67787f8d-443d-4c40-9b4c-ad5e97912a31/image002.png Resource Library - What the Data Shows on Copay Accumulator Adjustment Programs - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/eebece41-fac9-420d-ba86-1f23f95cd48b/image003.png Resource Library - What the Data Shows on Copay Accumulator Adjustment Programs - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/discover-vital-community-services-with-united-way-211 monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/28491619-5599-4298-b63e-485804606ad5/Screenshot+2023-08-14+at+9.37.50+AM.png Resource Library - Discover Vital Community Services with United Way 211 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/advocating-for-shared-decision-making-in-hemophilia-b-care monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/295ea4d0-ae3c-43ef-a91b-138bac2d1fd7/Screenshot+2023-08-14+at+9.29.53+AM.png Resource Library - Advocating for Shared Decision-Making in Hemophilia B Care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/xzar2cl3c2ai26y4abxdaza2skfxrx-xwrex monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/654df9e1-ce25-4566-a75b-51fcb46e5522/pr2.jpeg Resource Library - Gene Therapy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/emerging-therapies-spring-2023 monthly 0.5 2025-01-29 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/32f65c1a-d180-473d-b46b-ab12320495c0/Screenshot+2024-01-08+at+3.58.21%E2%80%AFPM.png Resource Library - Emerging Therapies - Spring 2023 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-beat-goes-on-hcjnc monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f31db485-22ca-4570-b4f5-49da7b3297d3/beats.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3c7e42f7-ffc4-475d-85e9-1f96de7e9358/beats+1.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1063edda-4fd8-4df2-8942-99736dd82d29/beats+2.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b8b6223a-5aa9-4e36-a147-d71fa86c7502/beats+3.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5cda22c6-4f9d-4777-af1f-6c34ab257123/beats+4.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/new-wfh-gene-therapy-registry-aims-to-fill-knowledge-gap-on-hemophilia-treatment monthly 0.5 2023-04-14 https://www.hemob.org/resource-library/new-plasma-caucus-in-the-house monthly 0.5 2023-10-24 https://www.hemob.org/resource-library/making-decisions-under-stress monthly 0.5 2025-03-13 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c8a3f4b0-faaf-4cd1-839b-89849bed47c3/Screen+Shot+2023-01-04+at+3.50.18+PM.png Resource Library - Making Decisions Under Stress - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/gene-therapy-historical-approval monthly 0.5 2023-08-16 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/fd69a8ad-a6a6-4ffd-8126-9c2539506a0c/Screen+Shot+2023-01-04+at+10.21.05+AM.png Resource Library - Gene Therapy Historical Approval - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/us-food-and-drug-administration-approves-csls-hemgenix-etranacogenedezaparvovec-drlb-the-first-gene-therapy-for-hemophilia-b monthly 0.5 2025-01-29 https://www.hemob.org/resource-library/hemophilia-care-improves-in-cambodia monthly 0.5 2023-08-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5b12eaa3-b734-4630-a26d-bb11b0cb3512/Cambodia-header.jpeg Resource Library - Hemophilia Care Improves in Cambodia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/mental-health-first-aid-training-for-the-hemophilia-b-community monthly 0.5 2023-08-17 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/bf4b8a3c-bbbc-415b-8f18-7eda22632cfe/photo-1623057000049-e220f79c7051.jpeg Resource Library - Mental Health First Aid: Training for the Hemophilia B Community - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/raising-a-child-with-hemophilia monthly 0.5 2023-08-16 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/74e979e4-1929-4c28-ab8d-ac32e2d4ca65/kenny-eliason-uaQpinemVoo-unsplash.jpg Resource Library - Raising A Child with Hemophilia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-beats-music-program-changes-live monthly 0.5 2023-08-16 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/80f67654-021c-4edf-b2a2-62d4853e9823/Screen+Shot+2022-09-16+at+12.13.28+PM.png Resource Library - The Beats Music Program Changes Live - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/symposium-2022-first-annual-hybrid-symposium monthly 0.5 2024-01-18 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d8790615-b24d-4dfa-bc3a-f2aead8af648/SYMPOSIUM+2022%3A+FIRST+ANNUAL+HYBRID+SYMPOSIUM%21 Resource Library - Symposium 2022: First Annual Hybrid Symposium! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/coalition-for-hemophilia-b-at-the-hemophilia-alliance-gene-therapy-town-hall-meeting monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/08441e03-930d-4722-9d8c-a4b4c60e4fdb/B%2BVoice%2B%26%2BPartner%2BProgram-edited.png Resource Library - Coalition for Hemophilia B at the Hemophilia Alliance Gene Therapy Town Hall Meeting - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/cost-of-aca-plans monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/52895440-8e1d-455a-8d2b-abd2912641ce/Untitled-1.png Resource Library - Cost of ACA Plans May Increase for Those at Higher Income - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/symposium-2022-first-annual-hybrid-symposium-zznmx monthly 0.5 2024-01-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d8790615-b24d-4dfa-bc3a-f2aead8af648/SYMPOSIUM+2022%3A+FIRST+ANNUAL+HYBRID+SYMPOSIUM%21 Resource Library - Symposium 2022: First Annual Hybrid Symposium! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/uniqure-announces-fda-acceptance-of-biologics-license monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b063f6f7-56a3-4b63-8dc0-2a683b0d6a5b/UniQure.png Resource Library - FDA Accepts Hemophilia B Gene Therapy Product for Priority Review - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/long-term-cardiovascular-outcomes-of-covid-19 monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/cdc-proposes-new-opioid-guidelines monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9e935084-6d82-44ca-971e-ac2c2c0dc055/image+%2810%29.jpg Resource Library - CDC Proposes New Opioid Guidelines - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/tell-congress-advance-the-access-to-marketplace-insurance-act monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/311858c2-3dd2-4758-a264-628e1b82b94f/time+for+action.JPG Resource Library - TELL CONGRESS: Advance the Access to Marketplace Insurance Act - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/help-us-re-introduce-and-advance-the-access-to-marketplace-insurance-act monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f74ce8fc-222b-4bd0-9a17-3ab9c2da8aa5/IMG_8662.PNG Resource Library - Help Us Re-Introduce and Advance the Access to Marketplace Insurance Act - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/womens-retreat-a-weekend-of-empowerment-and-education monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182616082-25JQ8M7LKKUXD1EDUUVA/247734943_256694099834037_6877840717251355888_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182616102-JTFZEVOVLSYW8UEFYAQ4/256525579_256692416500872_3542248254295500826_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182616708-SBFR8RS1VLBLZHW858EG/256675122_256692039834243_8513123978536096568_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182644434-8RL189WCIKQICRC8I0UV/256723671_256692309834216_1888335650140167401_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cffc92da-0bd5-454b-ab37-7bdadd55c273/256788133_256692163167564_2610844288902092673_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182735908-14AB4N0BNRHUHQGPN0P8/256804763_256692473167533_888877362174071339_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182736128-9UBZNLU428U45GBWDP4D/257130054_256692219834225_4278898717107264002_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182736297-CJ19SNW5Q4ZE3AR4GI0G/257353268_256692096500904_95160263584773067_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1644182736480-EONBG3PM6NCBZ5U6OXID/257388284_256692179834229_7055169823841450741_n.jpg Resource Library - Women’s Retreat: A Weekend of Empowerment and Education https://www.hemob.org/resource-library/a-weekend-of-empowerment-and-education-men-reconnect-virtually monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/81293e3e-d90a-4db5-a898-ec653db6e9b5/mens+retreat.JPG Resource Library - A Weekend of Empowerment and Education: Men Reconnect Virtually - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b3fa3dc5-9e78-4f34-9d05-1310cd4aea8b/mens+retreat+1.JPG Resource Library - A Weekend of Empowerment and Education: Men Reconnect Virtually - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-beat-goes-on monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f31db485-22ca-4570-b4f5-49da7b3297d3/beats.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3c7e42f7-ffc4-475d-85e9-1f96de7e9358/beats+1.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1063edda-4fd8-4df2-8942-99736dd82d29/beats+2.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b8b6223a-5aa9-4e36-a147-d71fa86c7502/beats+3.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/5cda22c6-4f9d-4777-af1f-6c34ab257123/beats+4.JPG Resource Library - The BEAT Goes On! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/golf-gave-me-back-my-child monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2c7d969f-3c36-4638-860d-1425b68d4e0e/Lisa+and+James.jpeg Resource Library - Golf Gave me Back my Child - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3757fdc7-9f0a-4339-a86e-4f06410eccf8/James+1.jpg Resource Library - Golf Gave me Back my Child - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/youth-meet-10-year-old-advocate-fantine monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6ee3a42a-7c28-4267-953d-864ddda9f70d/USE+%281%29.jpeg Resource Library - YOUTH: Meet 10-Year-Old Advocate Fantine - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/3932ce88-3141-411c-8b03-799fa731f930/fantine.JPG Resource Library - YOUTH: Meet 10-Year-Old Advocate Fantine - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/teen-nothing-is-stopping-nick monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/62f2f2c7-81ba-4179-9644-711fecd39998/958EC7B3-A94F-4774-8BA3-A7E677C2299B+%281%29.jpeg Resource Library - TEEN: Nothing is Stopping Nick! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/317a1087-7eac-4779-b663-bb5a863750e7/IMG_1231+%281%29.jpeg Resource Library - TEEN: Nothing is Stopping Nick! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/58788044-155e-4e5f-a599-06743fccf04b/Cropped+Photo+to+Use+-+Nick.jpeg Resource Library - TEEN: Nothing is Stopping Nick! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-covid-pill-what-is-it-and-how-does-it-work monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/build-back-better-act monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/teen-an-unconventional-adventure monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8597014e-cba1-4fdb-ace3-c48d13d7ae8f/USE+%288%29.JPG Resource Library - TEEN: An Unconventional Adventure - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/teen-ive-got-a-bad-feeling-about-thisand-thats-awesome monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/362c0dfd-c0de-41f7-8b25-fccc5c3326b9/USE+%282%29.JPG Resource Library - TEEN: I’ve Got a Bad Feeling About This…And That’s Awesome! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e50bf629-3c20-4b89-a1e0-f501a8dd81de/USE.jpg Resource Library - TEEN: I’ve Got a Bad Feeling About This…And That’s Awesome! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-gift-of-a-broken-scone monthly 0.5 2025-02-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d502c4f9-4bae-43df-94c1-32258b53493f/IMG-7272.JPG Resource Library - Cassandra - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6c6f9621-6c63-497b-ab72-0a548cdf0d5e/USE+%283%29.JPG Resource Library - Cassandra - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6d283f6a-53fe-4b2d-bbaa-4658095f5a60/USE.JPG Resource Library - Cassandra - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b272cf6e-fdbc-4edb-98bb-38c36aeb8994/USE+%281%29.JPG Resource Library - Cassandra - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/what-hemophilia-tracking-app-should-i-be-using monthly 0.5 2024-11-07 https://www.hemob.org/resource-library/dont-give-up-on-living-your-best-life-heidis-story monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e8dada3e-39f2-4f2b-882f-be38ee7f028f/USE+%283%29.jpeg Resource Library - Don’t Give Up on Living Your Best Life: Heidi’s story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2487799b-857c-47f0-b1ec-5f0f9860d8f5/USE.jpeg Resource Library - Don’t Give Up on Living Your Best Life: Heidi’s story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/crazy-the-odds-tabithas-story monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1637250144167-TP9PMOQUAXV7Y68PI6VE/USE+%282%29.jpeg Resource Library - Crazy the Odds: Tabitha’s Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1637250142374-WLGIQA8I2QD5V1LCVUIS/USE+%281%29.jpg Resource Library - Crazy the Odds: Tabitha’s Story - Make it stand out Photography by Taryn Starky The Photo Doula https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1637250145367-UU1BSACD1IY7W2JB049Y/USE.jpg Resource Library - Crazy the Odds: Tabitha’s Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1637250144957-DHW8GQZLXTK7G9DVQS6L/USE+%283%29.jpg Resource Library - Crazy the Odds: Tabitha’s Story - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/the-special-challenges-of-having-twins-with-hemophilia-one-moms-story monthly 0.5 2024-11-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a7b16b87-9e26-40cd-96d6-e6c3c661299f/A1EFC26D-F824-45C1-A385-C05DE40DFE96.jpeg Resource Library - The Special Challenges of Having Twins with Hemophilia: One Mom’s Story - Make it stand out Kole and Karter https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e83da949-40a2-4853-aec1-b6636c1e6c8d/876BA0C4-6E4D-49C4-B3B5-001CF88F0002.jpeg Resource Library - The Special Challenges of Having Twins with Hemophilia: One Mom’s Story - Make it stand out Kassidee, Karter, Stetson, Kole and Shealynn https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a5fe4202-4c23-441d-8492-7bd4d3a1271b/USE.jpeg Resource Library - The Special Challenges of Having Twins with Hemophilia: One Mom’s Story - Make it stand out Worrisome times in the hospital https://www.hemob.org/resource-library/help-ensure-lower-patient-copays-act-help-copays-act-advances-federal-efforts-to-end-accumulator-adjustor-programs monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/hhs-to-states-tell-immigrants-medicaid-and-chip-are-for-them-too monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1631045200251-MOVOZ0OF09M5WE110PT9/unsplash-image-nXt5HtLmlgE.jpg Resource Library - HHS to States: Tell Immigrants Medicaid and CHIP Are for Them Too - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/this-is-really-scary-kids-struggle-with-long-covid monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965006501-SBVDWNHIM3VA67BT111M/merlin_187735770_204c0ca1-3f44-40d5-80fd-c31ba36b2686-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out Will Grogan, 15, experienced such profound brain fog after Covid that he forgot material in biology class that he’d mastered the day before.Credit...Nitashia Johnson for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965035913-1I37S59MRQHQD0P9MWS0/merlin_187696824_2bbdff83-54a7-4cc4-aab3-73be528d4ccc-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out “My idea of Covid before I got it was, You know what, if I get it, I’ll get it over with and I’ll have the antibodies and I’ll be good,” Will said. “But oh, my gosh, I just never want to go through that again. Never.”Credit...Nitashia Johnson for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965066119-COGNECCH8QYOP33PI5EX/merlin_187735542_7266504b-3254-4d79-a2d6-373052bbcfe6-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out “Am I going to be able to be a good student ever again?” Will worried. “Because this is really scary.”Credit...Nitashia Johnson for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965130490-WYB8YIKLN6GEJ2C01W4C/merlin_187283484_30991c7d-cd02-4fd7-997c-17845725d124-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out Six months after being infected with the coronavirus, Sierra Trudeau’s long Covid symptoms remained worrisome enough that she and her mother made a 50-mile trip from their home to Boston Children’s Hospital.Credit...Maddie Malhotra for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965161247-8PW89YQIKZTBJM1UIGYI/merlin_187283475_655d715f-e06d-46d6-8651-9d9058e66151-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out One optimistic sign for Sierra was that her smell and taste returned this spring. In July, other symptoms were improving with treatment, although “her energy level still varies from day to day,” her mother said.Credit...Maddie Malhotra for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965242389-GGETLX9LZZPVC6K35QRO/merlin_189266784_3b01dd06-adbb-4725-bfc8-84f769887886-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out After Covid, Messiah Rodriguez had to stop playing basketball because he had to vomit in the middle of two games. “Nothing like that has ever happened to me, and I’ve been playing sports my whole life,” he said. Credit...Michael A. McCoy for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965290703-BDCI0J2JNCTNYP10Q4FO/merlin_189266724_6cdbadd3-3639-4372-baf1-0a5274cbd914-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out Despite long Covid, Messiah has maintained at least two hobbies: playing piano and writing poetry. “I can still write,” he said. “It’s just sometimes I’ve got to think harder than I usually had to.”Credit...Michael A. McCoy for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965349426-4OKW1RKBNS5PK57J2K9U/merlin_188590932_2b3b94d8-d64b-471d-80fa-6abc49a1006b-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out “We thought, It’s going to be over,” Miya Walker’s mother said of her daughter’s long Covid. “Then it just came again, and it was just so disappointing for her.”Credit...Schaun Champion for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965392043-H5U9ADI8PGJ5DDPQMUOD/00virus-kids-long-11-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out Miya has been a passionate dancer since age 3. She recently enrolled in a summer dance program, but her doctors said that because of her long Covid, such strenuous activity is too much for her body right now.Credit...Schaun Champion for The New York Times https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1630965471078-XJN2QY4GV9UNT89IPDRA/merlin_187696809_f26958e3-0e16-48a5-be76-75fc8859ded8-superJumbo.jpeg Resource Library - ‘This Is Really Scary’: Kids Struggle With Long Covid - Make it stand out In tennis this spring, Will’s hand-eye coordination was off. “I would just miss the ball completely,” he said. But after easing back to exercise, this and other issues have largely improved.Credit...Nitashia Johnson for The New York Times https://www.hemob.org/resource-library/the-world-is-nowhere-near-the-end-of-the-covid-pandemic-says-famed-epidemiologist-larry-brilliant monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/how-have-we-adapted-to-change monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626460661705-1THAHSFTU3ZJXZV9T7PY/Coalition%2BTeam%2B03.07.jpeg Resource Library - How Have We Adapted to Change?</a> - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/advisory-voluntary-recall-of-mononine-batch monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626463793873-RO0IOVJ11GZBA0DLI6IO/safety.png Resource Library - Advisory: Voluntary Recall of Mononine Batch - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626462990969-GY24ESRFPX3C5UTPGZ46/CSLBehring+Logo_transparent.png Resource Library - Advisory: Voluntary Recall of Mononine Batch - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/new-legislation-would-mandate-medicare-coverage-for-genetic-counseling monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/the-opportunity-of-my-life-getting-to-know-dr-david-clark monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659445787-SVHRPBGA8A5626L4QCS0/clark_linda.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Dr. Dave and Linda married for 27 years and going strong! They love traveling, hiking and spending time in nature. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660156285-D0R7R0BJG64C86JMJGW1/clark_7.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660059609-YI7IUIXXS32NEESW3BX9/clark_drohan.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660017248-E3Z4CFW3UN58H6C3S761/clark_8.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659957270-6I1YLUJC1T2CW09PJ3SC/clark_9.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659731124-28ZCERH49K1EG3L7D5EC/clark_11.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626659703394-XDM67VVHVLI4DAFZEE0T/clark_10.jpeg Resource Library - “The Opportunity Of My Life” Getting To Know Dr. David Clark - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/csl-behring-to-discontinue-mononine monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626464457017-SZH6GGYOH8FP0MYOZDGQ/discontinue.png Resource Library - CSL Behring to Discontinue Mononine - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/delta-variant-of-concern monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/pregnancy-associated-bleeding-in-carriers-and-women-with-hemophilia monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660515400-GM5KE8GAJQE4YC4GO0QK/unsplash-image-son4VHt4Ld0.jpg Resource Library - Pregnancy-Associated Bleeding in Carriers and Women with Hemophilia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/10-things-to-know-about-donating-plasma monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/delta-variant-of-concern-xbk9c monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/hows-your-blood-pressure monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626660804035-A5I09PSRDLLR8M58D3IA/unsplash-image-If-en2ld-E8.jpg Resource Library - How's Your Blood Pressure? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/plasma-saves-lives monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626700465985-TK59RPLWJ8KRDBKEECIW/plasma_hero_inset.png Resource Library - Plasma Saves Lives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/your-story-is-your-advocacy monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626700980419-DXS5CC6F6RPAIWM3DPRX/unsplash-image-FluPNkHfCTs.jpg Resource Library - Your Story Is Your Advocacy - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/end-of-year-advocacy-update monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/five-self-care-practices-your-emergency-kit-for-covid-19 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626661070606-1LHF5EC4BY72P2VVESRZ/unsplash-image-TOZqUHD8L38.jpg Resource Library - Five Self-Care Practices: Your Emergency Kit for COVID-19 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626661156872-HDBGTP5NB4SAYE556UZ1/unsplash-image-Vz0RbclzG_w.jpg Resource Library - Five Self-Care Practices: Your Emergency Kit for COVID-19 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/vaccination-guidelines monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626633570495-IER4KYRUWB5G7OOO33UZ/unsplash-image-90ejoVTj2-M.jpg Resource Library - COVID-19 Vaccination Guidance for Those with Bleeding Disorders - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/understanding-mrna-covid-vaccines monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/women-with-hemophilia monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626661677949-4Z2C7OBYEANH7EKPNTV4/unsplash-image-Xt4g9VbMljE.jpg Resource Library - Women with Hemophilia - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/new-series-on-pbs-highlights-one-mans-life-with-hemophilia-b monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1631032225427-UOC7P2AL2B408Q8FEFLZ/educator%2BBen%2BSchuldiner.jpeg Resource Library - New Series on PBS Highlights One Man’s Life with Hemophilia B - Make it stand out Educator and community member Ben Shuldiner highlighted in this PBS “Medical Stories” episode. https://www.hemob.org/resource-library/fda-warns-of-dangerous-hand-sanitizers monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626632043983-TAE8YTT0WFPP48D2ZFJ0/unsplash-image-3FHp2yOPDxU.jpg Resource Library - FDA Warns of Dangerous Hand Sanitizers - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/von-willwbrand-factor monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/how-many-hemophilia-patients-are-there monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626662121248-M6GEC1T08JLONVGO7J75/unsplash-image-LjqARJaJotc.jpg Resource Library - How Many Hemophilia Patients Are There? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/fda-warns-of-a-potential-drug-interaction-with-remdesivir-for-treatment-of-covid-19 monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/update-from-dr-david-clark-what-we-know-and-dont-know-about-covid-19-at-this-point monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/update-from-dr-david-clark-inhibitor-development-in-covid-19 monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/update-from-dr-david-clark-rebinyn-and-covid-19 monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/the-fight-is-in-us-effort-to-find-covid-19-plasma-donors monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626634475615-O724AOCTNEFYH3XGE0G1/unsplash-image-ufwC2cmbaaI.jpg Resource Library - "The Fight Is in Us": Effort to Find COVID-19 Plasma Donors - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626462990969-GY24ESRFPX3C5UTPGZ46/CSLBehring+Logo_transparent.png Resource Library - "The Fight Is in Us": Effort to Find COVID-19 Plasma Donors - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/statement-from-novo-nordisk-on-rebinyn-and-covid-19 monthly 0.5 2026-01-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1626635129545-FIAQZTNBUQAACGSNAP79/novo_logo.png Resource Library - Statement from Novo Nordisk on Rebinyn and COVID-19 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/resource-library/hemophilia-and-covid-19 monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/remdesivir-and-a-four-drug-combo monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/update-from-dr-david-clark-covid-symptoms-and-inflammation monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/covid-19-symptoms-and-time-course monthly 0.5 2026-01-07 https://www.hemob.org/resource-library/category/Joint+Health monthly 0.5 https://www.hemob.org/resource-library/category/Treatment+Options monthly 0.5 https://www.hemob.org/resource-library/category/Ask+Jen monthly 0.5 https://www.hemob.org/resource-library/category/Mental+Health monthly 0.5 https://www.hemob.org/resource-library/category/Research monthly 0.5 https://www.hemob.org/resource-library/category/Beats monthly 0.5 https://www.hemob.org/resource-library/category/research monthly 0.5 https://www.hemob.org/resource-library/category/Advocacy monthly 0.5 https://www.hemob.org/resource-library/category/Events monthly 0.5 https://www.hemob.org/resource-library/category/Test monthly 0.5 https://www.hemob.org/resource-library/category/News monthly 0.5 https://www.hemob.org/resource-library/category/Emerging+Therapies monthly 0.5 https://www.hemob.org/resource-library/category/Aging monthly 0.5 https://www.hemob.org/resource-library/category/Stories monthly 0.5 https://www.hemob.org/resource-library/category/Diagnosis monthly 0.5 https://www.hemob.org/resource-library/category/drclark monthly 0.5 https://www.hemob.org/resource-library/category/Dr.+Clark monthly 0.5 https://www.hemob.org/resource-library/category/news monthly 0.5 https://www.hemob.org/resource-library/category/Women monthly 0.5 https://www.hemob.org/resource-library/category/Gene+Therapy monthly 0.5 https://www.hemob.org/resource-library/category/Product+Landscape monthly 0.5 https://www.hemob.org/resource-library/category/Educational monthly 0.5 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monthly 0.5 https://www.hemob.org/resource-library/tag/0-1+Parenting monthly 0.5 https://www.hemob.org/resource-library/tag/advocacy monthly 0.5 https://www.hemob.org/resource-library/tag/%23PressRelease monthly 0.5 https://www.hemob.org/resource-library/tag/Stories monthly 0.5 https://www.hemob.org/resource-library/tag/2-4+Parenting monthly 0.5 https://www.hemob.org/resource-library/tag/Blog monthly 0.5 https://www.hemob.org/resource-library/tag/drclark monthly 0.5 https://www.hemob.org/resource-library/tag/news monthly 0.5 https://www.hemob.org/resource-library/tag/press+release monthly 0.5 https://www.hemob.org/resource-library/tag/stories monthly 0.5 https://www.hemob.org/resource-library/tag/13%2B+Parenting monthly 0.5 https://www.hemob.org/resource-library/tag/Women+%26+Girls monthly 0.5 https://www.hemob.org/resource-library/tag/james+romano monthly 0.5 https://www.hemob.org/resource-library/tag/newly+diagnosed monthly 0.5 https://www.hemob.org/resource-library/tag/5-10+Parenting monthly 0.5 https://www.hemob.org/resource-library/tag/Newly+Diagnosed monthly 0.5 https://www.hemob.org/resource-library/tag/Teens monthly 0.5 https://www.hemob.org/resource-library/tag/Aging+50%2B monthly 0.5 https://www.hemob.org/podcast daily 0.75 2026-03-30 https://www.hemob.org/podcast/episode-30 monthly 0.5 2026-03-30 https://www.hemob.org/podcast/episode-27 monthly 0.5 2026-03-30 https://www.hemob.org/podcast/episode-26 monthly 0.5 2026-03-09 https://www.hemob.org/podcast/episode-25 monthly 0.5 2026-02-19 https://www.hemob.org/podcast/episode-24 monthly 0.5 2025-12-22 https://www.hemob.org/podcast/episode-23 monthly 0.5 2025-12-19 https://www.hemob.org/podcast/episode-22 monthly 0.5 2025-11-23 https://www.hemob.org/podcast/episode-21 monthly 0.5 2025-11-22 https://www.hemob.org/podcast/episode-20 monthly 0.5 2025-11-10 https://www.hemob.org/podcast/episode-19 monthly 0.5 2025-10-17 https://www.hemob.org/podcast/episode-18 monthly 0.5 2025-09-30 https://www.hemob.org/podcast/episode-17 monthly 0.5 2025-09-16 https://www.hemob.org/podcast/episode-16 monthly 0.5 2025-08-28 https://www.hemob.org/podcast/episode-15 monthly 0.5 2025-07-22 https://www.hemob.org/podcast/episode-14 monthly 0.5 2025-07-03 https://www.hemob.org/podcast/episode-13 monthly 0.5 2025-05-29 https://www.hemob.org/podcast/episode-12 monthly 0.5 2025-04-28 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d08695c6-ca34-4fc6-88e3-9cb9bc70cc1a/Music+Heals.png Boundless B: The Hemophilia B Podcast - Music Heals - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/episode-11 monthly 0.5 2025-01-31 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b9ba8d81-f705-4cc4-aac9-02a3a9e293c2/Unity+through+music-2.png Boundless B: The Hemophilia B Podcast - We Are the World: Celebrating Unity Through Music - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/episode-10 monthly 0.5 2025-01-08 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1734635254611-DMDCIOMICFEHVAD6KG21/Ashley+and+Madilyn+Zebley.jpg Boundless B: The Hemophilia B Podcast - From Silence to Strength: Women and Hemophilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/episode-9 monthly 0.5 2024-12-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0374073f-9f62-48a8-bccd-c45ab52c0551/Gingerbread+%282%29.png Boundless B: The Hemophilia B Podcast - The Gingerbread Tradition - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/episode-8 monthly 0.5 2024-12-21 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/618474b6-07d2-42bd-bb3c-18396964499f/Navigating+adulthood-4.png Boundless B: The Hemophilia B Podcast - The Road to Independence and Adulthood - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/episode-7 monthly 0.5 2024-11-25 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9c2677ea-9584-47a2-90d7-21425513483b/Deena+Lipinski+FINAL.png Boundless B: The Hemophilia B Podcast - A Mother’s Hemophilia B and Inhibitor Journey - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/drum monthly 0.5 2024-12-19 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/61f51eb9-ab22-412d-84b0-891a2b376dc5/Dr.+Robert+Friedman+FINAL.png Boundless B: The Hemophilia B Podcast - The Healing Power of the Drum - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/alternative-funding monthly 0.5 2024-11-14 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e4ad7ee4-1dc2-4376-858d-f21239955d58/Barkhouse+and+Romano+FINAL.png Boundless B: The Hemophilia B Podcast - Alternative Funding Programs - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/women-and-hemophilia-drnance monthly 0.5 2024-11-03 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7c52efb4-03e3-4f71-bcae-c305e3c5fcdf/Dr.+Daniele+Nance+FINAL.png Boundless B: The Hemophilia B Podcast - Women and Hemophilia B - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/podcast/community-and-mental-health-an-interview-with-dr-mina-nguyen-driver monthly 0.5 2024-11-12 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https://www.hemob.org/meetings-on-the-road daily 0.75 2026-03-20 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/67c52bc5-9836-4c50-841e-535fed5f64c2/CSLBehring_Corporate+Logo_Digital+Only.jpg https://www.hemob.org/beats-music daily 0.75 2026-03-16 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/20007bfb-f069-4ad6-88c7-c49301044365/Sanofi.png Beats Music Sanofi logo with black and purple text on a white background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e26d233e-774a-497d-b15d-de7d16eae7ca/FB%2BBeats%2Balbum%2B%2813%29.jpg Beats Music Two people in a music studio working on a computer and keyboard https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2477467c-0ab9-497f-b84f-8ae0cdfd9c5e/cvs.jpg Beats Music CVS Specialty logo in red text on a white background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b6a30384-0dbc-4771-a8eb-4d5d331a07e8/FB%2BBeats%2Balbum%2B%2821%29.jpg Beats Music A group of people in a music studio with synthesizers and other equipment, engaged in conversation. One person is wearing a cowboy hat. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d6114328-64cf-482b-b3e5-a72c3941ce4b/FB%2BBeats%2Balbum%2B%2830%29.jpg Beats Music A man wearing a cowboy hat playing an acoustic guitar in a casual indoor setting, seated on a chair. Another person is sitting beside him, watching. A can of beer is on the floor. The room has a red patterned rug and large windows with natural light. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/38769348-9a54-45b6-bae4-4a69b287c8ef/FB%2BBeats%2Balbum%2B%286%29.jpg Beats Music Group of people in a music workshop playing drums and percussion instruments in a room with drum sets in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/ad81d901-030b-49e7-82cc-199c520d661d/FB%2BBeats%2Balbum%2B%2834%29.jpg Beats Music Two women sitting at a welcome table for The Coalition for Hemophilia B, Inc., featuring promotional items and documents. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/f3132edd-da40-439c-ac54-f746ae95ea29/FB%2BBeats%2Balbum%2B%2835%29.jpg Beats Music A group of five people seated in a circle playing various drums in a room with patterned carpet and light-colored walls. They appear to be focused on a drumming session. A drum set is visible in the background next to a doorway. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9a2dc81b-2359-4d5f-bb9c-48f242ba10c1/FB%2BBeats%2Balbum%2B%2837%29.jpg Beats Music Three people laughing together, wearing black T-shirts with "the Beats" logo, in a casual setting. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/58a1958a-0b6a-4894-9cd5-400827464e79/FB%2BBeats%2Balbum%2B%2840%29.jpg Beats Music Person with a beard holding an acoustic guitar https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/26aca27c-af9f-4c98-8ac2-581c12e7084f/FB%2BBeats%2Balbum%2B%2843%29.jpg Beats Music Six men holding guitars stand in a hotel lobby. They are positioned in front of a sign that mentions a guitar session at Ryman Studio. The carpet has a vibrant pattern, and there are plants and lamps in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0a00e4f2-6623-4524-a17d-4a48bb490571/FB%2BBeats%2Balbum%2B%2845%29.jpg Beats Music A music studio setup with people working on mixing equipment, a computer screen displaying software, and a wall decorated with music-related items and a full moon poster. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d4609847-26fe-48b5-9e1f-c48195737f80/FB%2BBeats%2Balbum%2B%2847%29.jpg Beats Music Two men sitting on a couch, one holding a guitar and both wearing black t-shirts. The man with the guitar has a shirt labeled 'the Beats'. They appear to be laughing or smiling. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/cf7940c0-961a-4aea-b005-f8b21b757980/FB%2BBeats%2Balbum%2B%2855%29.jpg Beats Music Group of people in a circle holding hands indoors, facing each other, with a photographer kneeling in the center capturing the moment. The room has carpeted flooring and bright overhead lighting. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/c8399ebc-863a-40c7-a94e-428a600ae146/FB%2BBeats%2Balbum%2B%28109%29.jpg Beats Music A group of people in a room, one sitting at a drum set while others stand around observing and holding drumsticks. https://www.hemob.org/lets-play-nine-golf-event daily 0.75 2025-04-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/399fbbf5-81cc-472b-a7cf-9d2b61664e19/GolfScholarship.jpg https://www.hemob.org/mens-retreat daily 0.75 2025-04-07 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/99f865fa-fad4-4035-b9b9-43dd737a213d/0040.jpg Men’s Retreat Two people on an outdoor basketball court with a basketball hoop, surrounded by tall buildings and palm trees, under a clear blue sky. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dcc6705d-1ba9-4c2a-b64e-4d488b5ee029/0043.jpg Men’s Retreat A group of people attending a seminar or workshop in a conference room, facing a speaker and a presentation screen. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6eeb3d63-d028-41d1-a41e-b54ef3328cf0/0083.jpg Men’s Retreat Group of men standing outdoors on a grassy area holding a black banner, with a background of hedges, palm trees, and a gated entrance leading to a fountain and tables. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/57a3b771-624d-4f2b-9fd7-4e3a9c0e637a/0088.jpg Men’s Retreat Group of men playing blackjack at a casino table, with a dealer managing the game. Several poker chips and cards are visible on the green table surface. The men are wearing casual attire and appear engaged in the game. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/55ca7704-afbf-43c2-80b8-ff99497af5d3/0024.jpg Men’s Retreat Group of men outdoors, playfully striking martial arts poses, surrounded by palm trees and buildings. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/69a65008-5b9b-44a2-a4e1-574a9e8e6c62/0120.jpg Men’s Retreat Group of older adults playing Spikeball on grass, surrounded by buildings and palm trees. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/db41c3f0-0c58-48a1-8c8e-7b53b2256994/MensRetreat+%281%29.jpg Men’s Retreat Group practicing martial arts in outdoor desert setting https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e2926e21-2216-4bd4-8bb0-c3eebd862146/MensRetreat+%283%29.jpg Men’s Retreat Three men in a conference room, two seated at a table, one standing in front, possibly presenting. A large framed photo of cacti is on the wall. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/543ca896-0c8e-4f45-a0bc-8f9e55a3ab68/MensRetreat+%287%29.jpg Men’s Retreat Group of six people sitting outside in a patio area with cacti, drinking and conversing, wearing matching beige shirts with name tags. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4c247562-4e79-48ab-b56e-61381abac3c9/MensRetreat+%2810%29.jpg Men’s Retreat A group of people in a casual indoor setting with a table covered in backpacks and drinks, including soda cans and bottles, as well as a bowl of fruit. Some individuals are hugging, while others stand watching or using their phones. The room has modern lighting and a television on the wall. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4c54e6c0-c709-4662-ad50-9d3c6b91e523/MensRetreat+%2811%29.jpg Men’s Retreat Man wearing a beige polo shirt with a conference lanyard https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b9580136-d461-4374-a9de-72561215edf7/MensRetreat+%2812%29.jpg Men’s Retreat Two women at a welcome table for an annual men's retreat, with backpacks and materials on display. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/629f1628-6050-4bc4-bcb1-684e1194d2db/MensRetreat+%2813%29.jpg Men’s Retreat People sitting around a campfire at night in a desert setting, with a large cactus in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1a060320-ec34-415f-9110-b57b49696ee9/MensRetreat+%2814%29.jpg Men’s Retreat Four people sitting at a conference table with papers, taking notes, under a framed floral picture on the wall. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/7cae63f3-922b-496f-b9ce-31a346d32ed9/MensRetreat+%2815%29.jpg Men’s Retreat Man standing in a room holding papers, in front of a screen and flip chart. There are tables with materials around the room. Casual setting. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/4b475d1c-bced-48d1-834f-ebbecd9ea3d4/Men%27s+Retreat+Vegas+NEW.jpg https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2f9bc7d6-e17b-4351-85de-be206346fd8c/Mens+New+Deadline.jpg https://www.hemob.org/womens-retreat daily 0.75 2023-05-25 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a456c5a1-de5f-4342-8453-9ac49cd41862/0016.jpg Women’s Retreat Group of women exercising outdoors on grass, surrounded by palm trees and a building in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/2af2843e-0ce7-4758-8b30-e4bbf71b0508/0051.jpg Women’s Retreat A group of people interacting at a social event or workshop in a conference room, with some holding hands and talking. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e93886d6-8d1f-43a7-8a12-f33407c04ae2/0061.jpg Women’s Retreat Group of women standing in a circle, participating in a team-building exercise indoors. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/dfc28a2c-b236-4885-9eed-b5d5bf7fe6a4/0067.jpg Women’s Retreat Group of people posing outdoors in matching shirts, with a park and pavilion in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/8ca02d4f-ded8-4f68-b82f-60e09d5415f3/0077.jpg Women’s Retreat Group painting class with participants working on blue-themed canvases, seated at tables with paint supplies and easels in a brightly lit room. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/24101ed5-5c9a-4852-af41-2f5ab3b04fd5/0091.jpg Women’s Retreat Group of people in a room practicing yoga with hands raised, wearing colorful shawls. Indoor setting with columns and arched windows. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/15583abf-7b0c-4924-af01-28ebae54c1da/0004.jpg Women’s Retreat A group of women sitting at an outdoor restaurant table, smiling and enjoying a meal. The setting appears casual with greenery in the background. Several plates of food and drinks are on the table with menus and a sign indicating seating for Toscana Bar & Grill. https://www.hemob.org/genix daily 0.75 2025-09-23 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/aad8b40f-504a-4c19-a14e-52df3fe76c65/Gen-IX-Project1.jpg Generation IX Group of four men posing outdoors in wooded area, two holding a rope, wearing casual clothing and hoodies, surrounded by trees. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/a068124b-8dd1-4331-bcbe-1db76b4db416/Gen-IX-Project2.jpg Generation IX Two people in a forest, one wearing a blue helmet holding a camera on a stick while the other, in a blue shirt, appears to be instructing or assisting them, surrounded by lush greenery. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/9af68433-d1fe-4ab9-bdeb-22b23e63522b/Gen-IX-Project6.jpg Generation IX A person wearing a blue helmet and harness standing in a forested area, with a group of people standing in the background. The scene is outdoors surrounded by trees and greenery. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/d0794953-124a-4462-947c-dfecfbf7476b/Gen-IX-Project10.jpg Generation IX Group of people playing gaga ball in an octagonal pit in a forest setting. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/6923ee59-751f-4429-9a49-0cd6afd37065/Gen-IX-Project13.jpg Generation IX Group of people gathered outdoors in a forest setting, some participating in an activity, and standing on wood chips. Several individuals are wearing casual clothing. Trees and picnic tables are visible in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/e55c564e-f862-42a5-a9fc-b0ec94b95e55/Gen-IX-Project14.jpg Generation IX A group of people sitting in a circle in a wooden interior room, participating in a meeting or discussion. The room has a high ceiling with exposed beams and large windows. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/89669b80-0311-4654-98be-29f179fbb793/GenIX0007.jpg Generation IX Group of six young men, some wearing harnesses, standing in a forest. One wears a helmet. Sunny day with lush green trees in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/82226934-b5a0-4e62-a781-8461f5f4053c/GenIX0036.jpg Generation IX Group of people in an outdoor forest setting, listening to a person speaking. Some are sitting and some are standing. Trees and wooden structures are in the background. https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/0b2d7928-5c42-428e-ba28-8c218d4fb264/Leadership+Posts.jpg Generation IX - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.hemob.org/annual-symposium daily 0.75 2026-03-19 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/673e6a2e-aa58-45bc-b3c1-b1bdd5247bbc/Platinum.png https://www.hemob.org/nat-lathrop-music-scholarship daily 0.75 2026-01-16 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/b1c1068d-280b-4a98-be24-cd7c0d25026b/Nat+for+website.jpg https://www.hemob.org/scholarships daily 0.75 2026-03-04 https://images.squarespace-cdn.com/content/v1/5f2a10f59e16f43d1bcb5526/1625545315692-CGARI7ZV1YSWP3WKWTA7/unsplash-image-yqZ7Z3ye154.jpg 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