Generation IX (Teen, Mentor & Leadership Programs)

Registration for Mentor and Teens 2019 Program:

Gen IX for Mentors (ages 18-30). Program is June 4-9
FAQs For Mentors (includes itinerary and details)
Online Registration for Mentors (deadline April 26)

Gen IX for Teens (ages 14-17). Program is June 6-9
FAQs for Teens (includes itinerary and details)
Online Registration for Teens (deadline April 26)

What Is the Gen IX Project?

If you are a young person living with hemophilia B, know that there are others like you—teens and young adults who will band together to learn how to do more, learn more, experience more, and be more than they thought possible.

The Coalition’s Generation IX Project is the only national program designed specifically for – and by – those living with hemophilia B. Aptevo Therapeutics is proud to be the sole sponsor of this program. The Gen IX programs are also hosted in partnership with Gutmonkey, a group that creates unique interactive educational experiences. Teens age 14-17 are mentored, taken out of their comfort zone, and helped to do amazing things that push their limits and teach them the meaning of true teamwork.

The separate Leadership program is a training ground for future leaders in our hemophilia B community that brings together community members age 21 and older, training them to act as youth mentors and community advocates.

The Generation IX Project is provided at no cost to participants thanks to Aptevo.

Watch a video of the Generation IX Project in action (held in Oxbow Park, Oregon)