Generation IX (Leadership, Mentorship, Advocacy)

2019 Programs/Retreats

Gen IX Advocacy (ages 20+ with diagnosis of hemophilia B)
Program is September 25-29
Online Registration via CampDoc (deadline to apply: August 16, 2019)
FAQ Sheet (destination and itinerary details)


Gen IX for Teens
(ages 14-17). Program is June 6-9 CLOSED
Gen IX for Mentors (ages 18-30). Program is June 4-9 CLOSED
Gen IX Leadership Initiative (ages 18-35) Program is January 8-13 CLOSED

What Is the Gen IX Project?

If you are a young person living with hemophilia B, know that there are others like you—teens and young adults who will band together to learn how to do more, learn more, experience more, and be more than they thought possible.

The Coalition’s Generation IX Project is the only national program designed specifically for – and by – those living with hemophilia B. Aptevo Therapeutics is proud to be the sole sponsor of this program. The Gen IX programs are also hosted in partnership with GutMonkey, a group that creates unique interactive educational experiences. Teens age 14-17 are mentored, taken out of their comfort zone, and helped to do amazing things that push their limits and teach them the meaning of true teamwork.

Separate Leadership and Advocacy programs are training grounds for future leaders in our hemophilia B community that brings together adults of all ages from our community members, training them to act as youth mentors and community advocates.

The Generation IX Project is provided at no cost to participants thanks to Aptevo.

Watch a video of the Generation IX Project in action (held in Oxbow Park, Oregon)