The Children's Health Insurance Program (CHIP) is a federally funded program that provides health insurance for children of uninsured families who do not qualify for Medicaid. Many families affected by hemophilia rely on this program for their children’s health care. Recently, funding for the program expired and Congress has failed to renew it. Emergency short-term funding was passed in late December but without new long-term funding, the program will end soon.
We urge you to contact your representatives in Congress on this critical issue. When you contact them, please help us create awareness by sharing your personal hemophilia story, and include a mention of the uniqueness of hemophilia B.
The Hemophilia Federation of America, another national organization, has set up a page to facilitate contacting legislators on this issue. It includes telephone, email and Twitter options – just choose the one you are most comfortable with. You can reach the page by clicking HERE.