Each year, the Coalition for Hemophilia B sponsors a retreat for men age 21 and older living with hemophilia B, and we now include fathers of children with hemo B. The retreat’s main mission is to help the men of the Factor IX community through peer support and education.
Our Factor Nine Men's Retreats are an outstanding success. The participants, who often call each other “blood brothers,” enjoy the retreat as a time to gather and share with other people who have encountered similar challenges.
Watch a video from one of our Men's Retreats
The Coalition for Hemophilia B also hosts an annual retreat for caregivers, mothers, wives, and women with bleeding disorders to create a supportive environment where they will learn new methods of coping with the challenges of living with hemophilia B. The first annual retreat was held in April 2015 and generously sponsored by Pfizer.
Our goal is to enable and empower women in the hemophilia community to find their voices and bond with others in similar situations. Our program puts an emphasis on Wellness by tackling topics such as depression, communication, self care, health & financial concerns, and many other issues that they face.
Watch a video from one of our Women's Retreat