Meet Our Team

We have more than 27 years' experience in hemophilia B addressing unmet needs in our community. Our approach is hands on and family oriented because hemophilia affects the whole family.

  WAYNE COOK President    waynec@hemob.org

WAYNE COOK
President

waynec@hemob.org

Wayne is a lifetime mentor to the hemophilia B community and has been president of the Coalition for over 10 years. Diagnosed with the condition at age six, he is dedicated to using his experiences to improve the quality of life of all affected by hemophilia B. He urges the community to “get out there, get involved, and enjoy living life to its fullest.”

  KIM PHELAN Vice President    kimp@hemob.org

KIM PHELAN
Vice President

kimp@hemob.org

Kim is one of those rare individuals whose compassion is matched only by her passion. She has been with the Coalition for Hemophilia B since its beginning over 27 years ago. She has worked in every aspect of the Coalition, from advocacy to fundraising.

  DR. DAVE CLARK Chairman   

DR. DAVE CLARK
Chairman

 

Dr. Clark has served as chairman of the Coalition for over 10 years and has written much of the technical content of our newsletters for over 20 years. As a researcher, he has been involved with factor IX since 1982, when he joined the American Red Cross, Plasma Derivatives.

  CHRISTIAN VILLARREAL, JD Community Relations & Advocacy Manager   chrisv@hemob.org

CHRISTIAN VILLARREAL, JD
Community Relations & Advocacy Manager

chrisv@hemob.org

  SHAD TULLEDGE Program Coordinator  shadt@hemob.org

SHAD TULLEDGE
Program Coordinator

shadt@hemob.org

  NATHY DE LA CRUZ Office Manager / Patient Liaison   nathyd@hemob.org

NATHY DE LA CRUZ
Office Manager / Patient Liaison

nathyd@hemob.org

  KAREN  BROGNO Communications Director   karenb@hemob.org

KAREN  BROGNO
Communications Director

karenb@hemob.org

  FARRAH MURATOVIC Patient Liaison    farrahm@hemob.org

FARRAH MURATOVIC
Patient Liaison

farrahm@hemob.org


Advisors

Glenn Mones, Advocacy Consultant
Anthony Vetter, Program Development
Chad Stevens, Program Coordinator
Donald Akers, JD, Education & Advocacy Advisor

 

 

Board of Directors

Dr. David Clark
Wayne Cook
Kim Phelan
Helen Day
William Gati
Anthony Sacco
Fran Lax
Lisa Mittman

Founders: John, Joyce and John Taylor

The Taylors founded the Coalition in 1990 when their son was diagnosed with severe hemophilia B. At age 13, their son John decided to launch a site designed to address the concerns of those within the hemophilia community and to be a resource and advocate for them.


Even if I am only like a little mouse, taking bites around the edge of the cheese, I feel eventually I am going to make a difference. It is going to take a lot of bites and a fair amount of time, but it will happen. Meanwhile, we’ll keep biting away.

— John Taylor, founder