Oct
19
Oct 22

6th Men's Retreat

  • Carefree Resort & Conference Center

For men with Hemophilia B & Fathers of a child with Hemophilia B (21 and over) 


Apr
27
Apr 30

5th Annual Men's Retreat

  • Carefree Resort & Conference Center

For men with Hemophilia B & Fathers of a child with Hemophilia B (21 and over)

Mar
30
10:00 am10:00

1st Annual Golf Fundraiser

  • Sawgrass Marriott Golf Resort & Spa

Please join us as we raise monies for our Patient Assistance Fund at the TPC Sawgrass Golf Course.

Set on 65 acres, this laid-back golf resort is 2.7 miles from Ponte Vedra Beach and 7 miles from Adventure Landing entertainment complex. 

Mar
2
6:00 pm18:00

10th Annual Fundraising Dinner

  • Terrace on the Park

Eternal Spirit Award Recipients: Perry Parker & Pat Torrey 

Entertainment by Americas Got Talent Comedian John Pizzi & Bill Gati Band

Shuttle bus service from hotel to venue and back.

 

Nov
12
8:00 am08:00

Chicago Family Meeting

  • Chicago Marriott Schaumburg

Please come join us for our FREE Coalition for Hemophilia B Meeting in Chicago, IL on Saturday, November 12th from 8:00 AM to 4:00 PM at the:

Chicago Marriott Schaumburg

50 N Martingale Road,

Schaumburg, IL 60173

Tel: 847-240-0100

Hotel Information:  We have secured a room rate of $89.00 plus tax per night. 

Breakfast, Lunch, PM snack and Dinner is provided free of charge.

There is a pool on the premises so don't forget  your bathingsuits!

Kids will have a fun Day Trip!

With your registration, you are automatically entered into a raffle to win awesome prizes! Raffle prizes will be announced at the end of the event.

Gas and tolls are reimbursed and parking is paid for compliments of the Coalition for Hemophilia B. 

 (Please make sure to keep your receipts and use the Gas/Toll Reimbursement form attached in the agenda section below) 

Nov
5
8:00 am08:00

Texas Family Meeting

  • Austin Marriott North

Please come join us for our FREE Coalition for Hemophilia B Meeting in Austin, TX on Saturday, November 5th from 8:00 AM to 4:30 PM at the:

Austin Marriott North

2600 La Frontera Blvd,

Round Rock, TX 78681

Tel: 512-733-6767

Hotel Information:  We have secured a room rate of $105.00 plus tax per night. 

Breakfast, Lunch, PM snack and Dinner is provided free of charge.

There is a pool on the premises so don't forget  your bathingsuits!

Kids will have a fun Day Trip!

With your registration, you are automatically entered into a raffle to win awesome prizes! Raffle prizes will be announced at the end of the event.

Gas and tolls are reimbursed and parking is paid for compliments of the Coalition for Hemophilia B. 

(Please make sure to keep your receipts and use the Gas/Toll Reimbursment form attached in the agenda section below) 

Agenda, Bios and Permission slip to follow.

Oct
22
8:00 am08:00

Missouri Family Meeting

  • Marriott St. Louis Airport

Please come join us for our FREE Coalition for Hemophilia B Meeting in St. Louis, MO on Saturday, October 22nd from 8:00 AM to 4:00 PM at the:

Marriott St. Louis Airport

10700 Pear Tree Lane,

St. Louis, MO 63134

Tel: 314-423-9700

Hotel Information:  We have secured a room rate of $110.00 plus tax per night. 

Breakfast, Lunch, PM snack and Dinner is provided free of charge.

There is a pool on the premises so don't forget  your bathing-suits!

Kids will have a fun Day Trip!

Raffle prizes will be announced at the end of the event! 

Gas and tolls are reimbursed and parking is paid for compliments of the Coalition for Hemophilia B 

 (please make sure to keep your receipts and use the Gas/Toll Reimbursement form attached in the agenda section below) 

Agenda, Bios and Permission slip to follow.

Sep
17
8:00 am08:00

Minnesota Family Meeting

  • Hilton Minneapolis - St. Paul Airport / Mall of America

Please come join us for our FREE Coalition for Hemophilia B Meeting in Minneapolis, MN on September 17th from 8:00 AM to 4:00 PM at the:

Hilton Minneapolis - St. Paul Airport / Mall of America

3800 American Blvd East

Bloomington, MN 55425

Tel: 952-854-2100

Hotel Information:  We have secured a room rate of $129.00 plus tax per night. 

Breakfast, Lunch, PM snack and Dinner is provided.

There is a pool on the premises so don't forget  your bathingsuits!

Kids will have a fun Day Trip!

Raffle prizes will be announced at the end of the event! 

Gas and tolls are reimbursed and parking is paid for compliments of the Coalition for Hemophilia B 

 (please make sure to keep your receipts and use the Gas/Toll Reimbursment form attached in the agenda section below) 

Permission slip to follow.