9:00 AM09:00

New England Family Meeting

 Our venue,  Westin Portland Harborview , is recognized as one of the Historic Hotels of America.

Our venue, Westin Portland Harborview, is recognized as one of the Historic Hotels of America.

Join us for our FREE Coalition for Hemophilia B Meeting in Portland, Maine, on Saturday, April 14 at the Westin Portland Harborview Hotel

We have secured a room rate of $143. Hotel phone is 207-517-8822.

Gas and tolls are reimbursed.

Parking is free (paid for compliments of the Coalition for Hemophilia B).

Breakfast and lunch served.

Childcare will be provided.

We are arranging a fun day trip for tweens and teens!

Meeting includes dinner on Saturday night.

Exhibitor Registration

Attendee Registration

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11:00 AM11:00

2nd Annual Golf Fundraiser

  • Sawgrass Marriott Golf Resort & Spa (map)
  • Google Calendar ICS

It's a good cause and good fun! This "Fore Life Initiative" raises monies for our Patient Assistance Fund. Join us and PGA touring pro (and fellow hemophiliac) Perry Parker at the TPC Sawgrass Golf Course for a training clinic and tournament.

Set on 65 acres, this laid-back golf resort is 2.7 miles from Ponte Vedra Beach and 7 miles from Adventure Landing entertainment complex.

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6:30 PM18:30

11th Annual Eternal Spirit Award Fundraising Dinner

Eternal Spirit Award 2018 Recipients: Laureen A. Kelley & Dr. William Patsakos

Laureen A. Kelley is founder of LA Kelley Communications and the author of ten books on bleeding disorders. She is editor of the quarterly Parent Empowerment Newsletter and founder of Project SHARE, a humanitarian program that donates blood-clotting medicine to impoverished patients in developing countries.

Dr. William Patsakos, Pharm.D., is a Client Relations Executive at Caremark Specialty Pharmacy/CVS Health. Dr. Patsakos has three sons with hemophilia B and is a staunch educator and advocate for the hemophilia community, participating in advocacy days at the federal and state levels.

To RSVP, contact: Kim Phelan at 212-520-8272 or kimbo1217@live.com.

Proceeds benefit the William N. Drohan Scholarship Fund, The Coalition for Hemophilia B Advocacy Programs and The Coalition for Hemophilia B Educational Programs.

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