Family Meetings

The Coalition holds several Factor IX Family Meetings over the year throughout the United States.

The meetings are educational and supportive and especially helpful to families with no prior history of hemophilia B (about 30% of those diagnosed).

We create an “extended family” for our members, encouraging them to share contact information with one another to provide support for the challenges that come with being diagnosed with or having a child with hemophilia B.

Click here for a list of upcoming meetings